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Who Gets MS?
HISTORY OF MULTIPLE SCLEROSIS Jean-Martin Charcot was a french neurologist who defined and gave a name to multiple sclerosis in 1868. Throughout the 1800s and 1900s, hundreds of therapies were tried, without success, in the treatment of multiple sclerosis. Deadly nightshade (a plant with poisonous fruit), arsenic, mercury, and the injection of malaria parasites, are just a WHAT'S NEW IN MS RESEARCH Topics include racial and ethnic differences in MS presentation and treatment response, an app for dealing with MS-related anxiety, and promising results from a Phase II trial of the investigational agent IMU-838. Factors predicting the persistence of COVID-19 symptoms in people with MS, as well as the links between MS severity and the prevalence of other health conditions, also are examined. TIMELINE - THE HISTORY OF MULTIPLE SCLEROSIS MS Timeline. 1380: St. Lidwina born in Holland; her progressive illness suggests a diagnosis of MS. 1794: Birth of Augustus d’Este, an early case of what would later be known as MS. 1838: Robert Carswell includes an illustration of a case of “a peculiar disease state,” showing the features of MS. 1868: Jean-Martin Charcot givesthree
WHAT’S NEW IN MS RESEARCH: JANUARY 2021 The expression, “Here’s hoping this year is better than the last” has particular poignancy as we transition into 2021. Happily, much of the recent news regarding multiple sclerosis (MS) provides cause for considerable hope, as reflected in the study results and other reports featured in this month’s iteration of “What’s Newin MS Research.”
COOLING PRODUCTS
(adult cooling equipment only) or Mail-In Application (see steps below). Step 1: Download the Cooling Distribution Program Application Step 2: Please complete the forms, print, and sign. Step 3: Please place the signed forms, along with any necessary additional documentation, in an envelope and mail to: MSAA Attn: Manager of Distribution Services – Cooling FDA APPROVES GENERIC VERSION OF TECFIDERA®, TAKEN ORALLY Tecfidera was approved by the FDA in March 2013 as a first-line therapy for the long-term treatment of relapsing forms of MS in adults. This now includes clinically isolated syndrome, relapsing-remitting disease, and active secondary-progressive disease. Tecfidera’s starting dose is a delayed-release 120-mg capsule taken twice daily for seven MRI ACCESS PROGRAM APPLICATION Cherry Hill, NJ 08034 (800) 532-7667 . Email: mri@mymsaa.org ANNIVERSARY CHALLENGE 2021 Join Team MSAA's Anniversary Challenge 2021. On June 8, 1970 MSAA was founded to help improve the lives of those living with MS, by providing free programs and services. Join Team MSAA for our Anniversary Challenge by running, walking, or biking in honor of MSAA serving the MS community for 50 COOLING DISTRIBUTION PROGRAM APPLICATION Please return this form to: 1-800-532-7667 Fax 856-488-8257 The Multiple Sclerosis Association of America 375 Kings Highway North EMAIL ADDRESS: msaa@mymsaa.org Cherry Hill, New Jersey 08034 WEB SITE ADDRESS: www.mymsaa.org Revised 4/14 MULTIPLE SCLEROSIS ASSOCIATION OF AMERICA Multiple sclerosis (MS) is an autoimmune disease affecting the central nervous system. A variety of symptoms are possible, often beginning with periods of flare-ups and remissions. Signs and Symptoms of MS.Who Gets MS?
HISTORY OF MULTIPLE SCLEROSIS Jean-Martin Charcot was a french neurologist who defined and gave a name to multiple sclerosis in 1868. Throughout the 1800s and 1900s, hundreds of therapies were tried, without success, in the treatment of multiple sclerosis. Deadly nightshade (a plant with poisonous fruit), arsenic, mercury, and the injection of malaria parasites, are just a WHAT'S NEW IN MS RESEARCH Topics include racial and ethnic differences in MS presentation and treatment response, an app for dealing with MS-related anxiety, and promising results from a Phase II trial of the investigational agent IMU-838. Factors predicting the persistence of COVID-19 symptoms in people with MS, as well as the links between MS severity and the prevalence of other health conditions, also are examined. TIMELINE - THE HISTORY OF MULTIPLE SCLEROSIS MS Timeline. 1380: St. Lidwina born in Holland; her progressive illness suggests a diagnosis of MS. 1794: Birth of Augustus d’Este, an early case of what would later be known as MS. 1838: Robert Carswell includes an illustration of a case of “a peculiar disease state,” showing the features of MS. 1868: Jean-Martin Charcot givesthree
WHAT’S NEW IN MS RESEARCH: JANUARY 2021 The expression, “Here’s hoping this year is better than the last” has particular poignancy as we transition into 2021. Happily, much of the recent news regarding multiple sclerosis (MS) provides cause for considerable hope, as reflected in the study results and other reports featured in this month’s iteration of “What’s Newin MS Research.”
COOLING PRODUCTS
(adult cooling equipment only) or Mail-In Application (see steps below). Step 1: Download the Cooling Distribution Program Application Step 2: Please complete the forms, print, and sign. Step 3: Please place the signed forms, along with any necessary additional documentation, in an envelope and mail to: MSAA Attn: Manager of Distribution Services – Cooling FDA APPROVES GENERIC VERSION OF TECFIDERA®, TAKEN ORALLY Tecfidera was approved by the FDA in March 2013 as a first-line therapy for the long-term treatment of relapsing forms of MS in adults. This now includes clinically isolated syndrome, relapsing-remitting disease, and active secondary-progressive disease. Tecfidera’s starting dose is a delayed-release 120-mg capsule taken twice daily for seven MRI ACCESS PROGRAM APPLICATION Cherry Hill, NJ 08034 (800) 532-7667 . Email: mri@mymsaa.org ANNIVERSARY CHALLENGE 2021 Join Team MSAA's Anniversary Challenge 2021. On June 8, 1970 MSAA was founded to help improve the lives of those living with MS, by providing free programs and services. Join Team MSAA for our Anniversary Challenge by running, walking, or biking in honor of MSAA serving the MS community for 50 COOLING DISTRIBUTION PROGRAM APPLICATION Please return this form to: 1-800-532-7667 Fax 856-488-8257 The Multiple Sclerosis Association of America 375 Kings Highway North EMAIL ADDRESS: msaa@mymsaa.org Cherry Hill, New Jersey 08034 WEB SITE ADDRESS: www.mymsaa.org Revised 4/14 THE CORONAVIRUS AND MS: WHAT YOU NEED TO KNOW The “coronavirus disease 2019” (COVID-19) is a potentially serious respiratory disease that was first reported in December 2019 in China. As of early March, 2020, the illness had made its way to almost 70 locations, including the United States, and has COOLING PRODUCTS PROGRAM APPLICATION To qualify for the Cooling Distribution Program: Have not received a cooling vest from MSAA within the last 5 years. Meet Income Eligibility Requirement. Upload a letter or a prescription to show proof of MS diagnosis. Make your product selection. Complete the application, sign, and submit all required information.MRI ACCESS PROGRAM
Attn: MRI Access Program. 375 Kings Highway North. Cherry Hill, NJ 08034. Applications can also be faxed to MSAA at 856-488-8257. For questions or to request a mailed copy of the MRI Access Fund application, please call MSAA at (800) 532-7667, ext. 142. THE FUTURE OF MULTIPLE SCLEROSIS RESEARCH AND TREATMENTS The Future of Multiple Sclerosis Research and Treatments. Targets for multiple sclerosis (MS) treatments include the many components and functions of the immune system response. In general, treatments have been developed to block, reduce, or deplete those cells and other agents that promote inflammation and/or damage to the central nervous THE IMMUNE SYSTEM AND MULTIPLE SCLEROSIS Lymphocytes are a type of white blood cell and play a strong role in the body’s defense system. Another type of white blood cell is the macrophage, and this works to ingest and destroy foreign substances.. White blood cells circulate in the blood and are produced when the immune system perceives a foreign body and instructs the cells to eliminate it, thereby “protecting” the body. MSAA: THE MULTIPLE SCLEROSIS ASSOCIATION OF AMERICA Learn how the Multiple Sclerosis Association of America (MSAA) improves lives by providing vital services, information, and support to people living with MS. MOBILITY AND AMBULATION Mobility and Ambulation. With MS, maintaining safe and independent mobility can sometimes be difficult. The result is often a marked decrease in overall activity – which leads to preventable disuse weakness and deconditioning. If inactivity continues, other problems can develop. These include: muscle tightness and/or weakness;increased
THE BENEFITS OF REHABILITATION Deconditioning also increases neuromuscular tension, resting pulse rate, fatigue, anxiety, and depression. The benefits of aerobic exercise include increased lean muscle mass, flexibility, and tone, while decreasing body fat. It improves heart and lung COOLING DISTRIBUTION PROGRAM APPLICATION Please return this form to: 1-800-532-7667 Fax 856-488-8257 The Multiple Sclerosis Association of America 375 Kings Highway North EMAIL ADDRESS: msaa@mymsaa.org Cherry Hill, New Jersey 08034 WEB SITE ADDRESS: www.mymsaa.org Revised 4/14 THE “COMMON” COLD So frustrating!”. According to our MS community, the “common cold” is anything but common. While most people recover from a cold in seven to ten days 1, for MS patients, it can take much longer. According to many of our community members, cold symptoms are also more intense for people with MS, often making underlying MS symptomsmore
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WHAT IS MULTIPLE SCLEROSIS? Multiple sclerosis (MS) is an autoimmune disease affecting the central nervous system. A variety of symptoms are possible, often beginning with periods of flare-ups and remissions. * Signs and Symptoms of MS* Who Gets MS?
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MAKING A DIFFERENCE
> Thank you so much for sending the body cooling kit. Now I look > forward to the summer instead of dreading the hot days. I really, > really appreciate it. > Jean S., Arrington, VA > Thank you MSAA for all you do for the MS community. Feeling grateful > for everyone working on making our lives better. > Cathy C., New Jersey > MSAA does a great service to the many who have MS, and to the > families and caregivers who look for answers, support and> understanding.
> Jose F., Florida > Thank you so much for the cooling vest. It has given me the > opportunity to win one more battle over MS. When I saw the package I > almost came to tears. The resources you are giving MS patients are > wonderful. I love the cooling vest.> M.V., Florida
> I am so appreciative of this benefit that your > organization offers. Everyone throughout this process has just been > wonderful. I feel I have gotten the best care from the most > outstanding professionals in all aspects. > Darci P., Idaho > We chose MSAA because your organization provides very > practical items. Whether it is financial assistance, cooling vests > and other physical aid items, or education for families and recently > diagnosed persons, these items provide real and concrete help for > people diagnosed with MS. > Lucy R., California HOW YOU CAN HELP TODAY IMPROVE THE LIVES OF PEOPLE WITH MS*
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MS CONVERSATIONS: MSAA’S BLOG CULTIVATING EMOTIONAL WELLNESSSelena Fisher
Emotional health plays such an important role in your wellness journey. The mind and body are connected which means that your emotional wellness can have a direct effect on your physical well-being. Individuals looking from the outside in are unableRead More
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