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Patients with myeloma, AL amyloidosis, and monoclonal gammpathaies of undetermined significance (MGUS) “are at increased risk of severe infection and higher mortality” and should be inoculated with a COVID-19 vaccine “as soon as is available” according to guidelines for physicians released by Dr. Nikhil Munshi on behalf of the Executive Committee of the International Myeloma MYELOMA PATIENT RESPONSES TO THE COVID VACCINE Over half of multiple myeloma patients develop an antibody response to the COVID vaccine, according to a new study published in The Lancet Haematology. In the study led by Sarah Bird and colleagues at The Institute of Cancer Research in London, Dr. Bird noted that IgG responses were found in 56% of myeloma patients after their first shot, "which rises to 70% when measuring Total antibody." OUR MYELOMA SPECIALIST DIRECTORY Over 80% of myeloma patients are seen by community oncologists but data shows that patients who have a specialist on their team live longer. In fact, if myeloma patients are treated by a myeloma specialist within the first year, a UNC study says they live 38%longer.
COVID VACCINE RESPONSES LIMITED IN BLOOD CANCER PATIENTS About the Author. Jennifer Ahlstrom - Jenny A - Myeloma survivor, patient advocate, wife, mom of 6. Believer that patients can help accelerate a cure by weighing in and participating in clinical trials. Founder of Myeloma Crowd, Myeloma Crowd Radio, HealthTree and the CrowdCare Foundation. HEALTHTREE - IMPROVING MYELOMA PATIENT OUTCOMES JACK AIELLO. Myeloma Patient Advocate "I'm excited that HealthTree offers patients two major benefits. The first is a way to organize their past treatments, responses and side-effects. DIET IN MGUS AND SMOLDERING MYELOMA TO PREVENT PROGRESSION Does diet affect myeloma progression? It's one of the most common questions patients have. We know that more than 3% of the general population over the age of 50 has either monoclonal gammopathy of undetermined significance (MGUS) or smoldering myeloma. MYELOMA MAINTENANCE THERAPY...HOW LONG? About the Author. Jennifer Ahlstrom - Jenny A - Myeloma survivor, patient advocate, wife, mom of 6. Believer that patients can help accelerate a cure by weighing in and participating in clinical trials. Founder of Myeloma Crowd, Myeloma Crowd Radio, HealthTree and the CrowdCare Foundation. KAPPA AND LAMBDA LIGHT CHAINS How do kappa and lambda light chains in an antibody affect a patient's multiple myeloma? Learn more and why patients should track their levels. Download the chart to help you understand your myeloma diagnosis and your myeloma lab results. HOW CLOSE ARE WE TO A CURE FOR MYELOMA? PATIENT POWER How Close Is a Cure for Myeloma? from Patient Power on Vimeo. Here are some highlights from the interview (Remember that the opinions expressed are those of the person stating them and are not necessarily shared by Patient Power, the Myeloma Crowd or its partners and sponsors): From Dr. Burke: we already cure, I think, a small subset ofmyeloma patients.
COVID VACCINE IMPACT ON MYELOMA PATIENTS Italian researchers performed a study to determine levels of antibodies developed by blood cancer patients following the first dose of the Pfizer vaccine. The study included 42 patients with multiple myeloma and 50 additional patients with myeloid cancers (CML and others). All patients on the study were on active cancer treatment and were compared to 36 elderly people who did not have cancer. COVID VACCINATION GUIDELINES FOR MYELOMA PATIENTS RELEASEDAUTHOR: GREGBROZEIT
Patients with myeloma, AL amyloidosis, and monoclonal gammpathaies of undetermined significance (MGUS) “are at increased risk of severe infection and higher mortality” and should be inoculated with a COVID-19 vaccine “as soon as is available” according to guidelines for physicians released by Dr. Nikhil Munshi on behalf of the Executive Committee of the International Myeloma MYELOMA PATIENT RESPONSES TO THE COVID VACCINE Over half of multiple myeloma patients develop an antibody response to the COVID vaccine, according to a new study published in The Lancet Haematology. In the study led by Sarah Bird and colleagues at The Institute of Cancer Research in London, Dr. Bird noted that IgG responses were found in 56% of myeloma patients after their first shot, "which rises to 70% when measuring Total antibody." OUR MYELOMA SPECIALIST DIRECTORY Over 80% of myeloma patients are seen by community oncologists but data shows that patients who have a specialist on their team live longer. In fact, if myeloma patients are treated by a myeloma specialist within the first year, a UNC study says they live 38%longer.
COVID VACCINE RESPONSES LIMITED IN BLOOD CANCER PATIENTS About the Author. Jennifer Ahlstrom - Jenny A - Myeloma survivor, patient advocate, wife, mom of 6. Believer that patients can help accelerate a cure by weighing in and participating in clinical trials. Founder of Myeloma Crowd, Myeloma Crowd Radio, HealthTree and the CrowdCare Foundation. HEALTHTREE - IMPROVING MYELOMA PATIENT OUTCOMES JACK AIELLO. Myeloma Patient Advocate "I'm excited that HealthTree offers patients two major benefits. The first is a way to organize their past treatments, responses and side-effects. DIET IN MGUS AND SMOLDERING MYELOMA TO PREVENT PROGRESSION Does diet affect myeloma progression? It's one of the most common questions patients have. We know that more than 3% of the general population over the age of 50 has either monoclonal gammopathy of undetermined significance (MGUS) or smoldering myeloma. MYELOMA MAINTENANCE THERAPY...HOW LONG? About the Author. Jennifer Ahlstrom - Jenny A - Myeloma survivor, patient advocate, wife, mom of 6. Believer that patients can help accelerate a cure by weighing in and participating in clinical trials. Founder of Myeloma Crowd, Myeloma Crowd Radio, HealthTree and the CrowdCare Foundation. KAPPA AND LAMBDA LIGHT CHAINS How do kappa and lambda light chains in an antibody affect a patient's multiple myeloma? Learn more and why patients should track their levels. Download the chart to help you understand your myeloma diagnosis and your myeloma lab results. HOW CLOSE ARE WE TO A CURE FOR MYELOMA? PATIENT POWER How Close Is a Cure for Myeloma? from Patient Power on Vimeo. Here are some highlights from the interview (Remember that the opinions expressed are those of the person stating them and are not necessarily shared by Patient Power, the Myeloma Crowd or its partners and sponsors): From Dr. Burke: we already cure, I think, a small subset ofmyeloma patients.
MYELOMA NEWS
ASCO 2021: FDA grants Breakthrough Therapy Designation to Teclistamab, a Bispecific Antibody for Relapsed or Refractory Multiple Myeloma. MYELOMA NEWS - June 06, 2021. Teclistamab, an off-the shelf bispecific antibody targeting BCMA by Janssen, has received Breakthrough Therapy Designation from the FDA. COVID VACCINE RESPONSES LIMITED IN BLOOD CANCER PATIENTS About the Author. Jennifer Ahlstrom - Jenny A - Myeloma survivor, patient advocate, wife, mom of 6. Believer that patients can help accelerate a cure by weighing in and participating in clinical trials. Founder of Myeloma Crowd, Myeloma Crowd Radio, HealthTree and the CrowdCare Foundation. ASCO 2021: CONSIDERATIONS FOR OLDER MULTIPLE MYELOMA Older myeloma patients have additional things to consider. Learn what Dr. Tanya Wildes shared at ASCO 2021 to identify risk, improve frailty and treat with therapy that is TREATMENT CONSIDERATIONS FOR OLDER MYELOMA PATIENT Multiple myeloma is more prevalent in the older population; the median age of diagnosis is 69 years, and 35% of patients are age 75 or older at diagnosis. 1 Older individuals may have unique needs that should be considered in developing a treatment plan. But what is meant by“older?”
MULTIPLE MYELOMA CASES DOUBLE WORLDWIDE SINCE 1990 According to Chinese myeloma researchers, the global incidence of multiple myeloma has more than doubled globally since 1990.In a study, data from the 2019 Global Burden of Disease study was used to calculate incidence, mortality and disability adjusted life-years associated with myeloma. HEALTHTREE - IMPROVING MYELOMA PATIENT OUTCOMES JACK AIELLO. Myeloma Patient Advocate "I'm excited that HealthTree offers patients two major benefits. The first is a way to organize their past treatments, responses and side-effects.MYELOMACROWD.ORG
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UNDERSTANDING THE MYELOMA STEM CELL TRANSPLANT PROCESS Stem Cell Transplants and Myeloma. Stem cell transplant is still the single most effective treatment for multiple myeloma, yet 45% of patients are never given this therapy, according to Dr. Sergio Giralt of the Memorial Sloan Kettering Cancer Center. MYELOMA MAINTENANCE THERAPY...HOW LONG? About the Author. Jennifer Ahlstrom - Jenny A - Myeloma survivor, patient advocate, wife, mom of 6. Believer that patients can help accelerate a cure by weighing in and participating in clinical trials. Founder of Myeloma Crowd, Myeloma Crowd Radio, HealthTree and the CrowdCare Foundation. DISCOVERING IF YOU'RE HIGH RISK AT DIAGNOSIS Knowing what type of myeloma you are facing allows you to better fight it. High-risk genetic myeloma often requires a more aggressive treatment regimen than those who are standard-risk patients. Learn from Skyline Dx representatives about their new diagnostic test. This test is one way that newly di__
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ASCO 2020: ARE MYELOMA PATIENTS GETTING THE RIGHT VACCINATIONS? MYELOMA NEWS - May 26, 2020 Vaccines are the first line of prevention for infectious diseases. This is key for myeloma patients because infection is a major cause of death in myeloma. Mult... Read More Chemo Brain for the Multiple Myeloma Patient CHEMO BRAIN FOR THE MULTIPLE MYELOMA PATIENT LIFE WITH MYELOMA - May 26, 2020 An interesting article, titled “Chemo Brain’ : an imprecise term for a complex phenomenon” was just published on-line. The article gets right ... Read More Breathing Your Way to Better Health BREATHING YOUR WAY TO BETTER HEALTH LIFE WITH MYELOMA - May 22, 2020 Breathe in, breathe out. Doesn't sound that hard, does it? It's so easy, you can do it in your sleep! But experts say that there's a right and ... Read More OUR NEXT SHOW: MID-YEAR ASCO MYELOMA UPDATE WITH PAUL RICHARDSON, MD, MONDAY, JUNE 1 @ 9 AM EASTERN UPCOMING MC RADIO SHOWS - May 20, 2020 Monday, June 1 @ 6 am Pacific, 7 am Mountain, 8 am Central, 9 am Eastern Call In by Phone to Listen Live: (347) 637-2631 or Listen Live Via Computer Myel... Read More MY MYELOMA JOURNEY: FROM DESPAIR TO ACTIVE ACCEPTANCE LIFE WITH MYELOMA - May 20, 2020 By Lois Rudnick For 9 years my MGUS (monoclonal gammopathy of undetermined significance) was monitored annually. I had not a care in the world bec... Read MoreADVERTISEMENT
MYELOMA COACH: OVERCOMING FINANCIAL INDECISION IN TRYING TIMES MYELOMA COACH - May 20, 2020 It may not come as a surprise to many of you that making new changes in your life can be difficult, and it is the natural human tendency to procrastinate even w... Read More ISATUXIMAB EXTENDS SURVIVAL WHEN USED WITH CARFILZOMIB AND DEXAMETHASONE IN MULTIPLE MYELOMA MYELOMA NEWS - May 19, 2020 Adding isatuximab to a combination with carfilzomib and dexamethasone significantly extended remission and survival for relapsed myeloma patients, according to ... Read MoreADVERTISEMENT
OUR NEXT SHOW: ANTIBODY TESTING STRATEGIES FOR COVID-19 WITH STEPHEN RUSSELL, MD, PHD, MAYO CLINIC, FRIDAY MAY 29 @ 1 PM CENTRAL UPCOMING MC RADIO SHOWS - May 18, 2020 Friday, May 29, 2020 @ 11 am Pacific, Noon Mountain, 1 pm Central, 2 pm Eastern Call In by Phone to Listen Live: (347) 637-2631 or Listen Live Via... Read More MENTAL HEALTH & MYELOMA: LET'S TALK ABOUT IT LIFE WITH MYELOMA - May 18, 2020 May is mental health awareness month. Mental health is often not discussed openly due to negative stereotypes. Some struggle with mental healt... Read More SIGN UP FOR THE MYELOMA CROWD NEWSLETTER Get the latest thought leadership on multiple myeloma delivered straight to your inbox.Sign up
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HEALTHTREE WEBINAR PART 1: TRACK MY MYELOMA ON THURSDAY, MAY 21 AT 10AM MOUNTAIN
MC EVENTS - May 17, 2020 HealthTree is an unprecedented way of understanding and being proactive about your disease and treatment, making your consultations with your physicians and nur... Read More PANDEMIC DRAMATICALLY IMPACTING DISEASE DIAGNOSIS AND MEDICAL TESTS MYELOMA NEWS - May 14, 2020 “COVID-19 has caused massive disruption to healthcare, one that will reverberate for months and years to come.” — Komodo Health study... Read More
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KARYOPHARM DONATES FREE MASKS FOR MULTIPLE MYELOMA AND OTHER PATIENTS LIFE WITH MYELOMA - May 14, 2020 Karyopharm, maker of selinexor (XPOVIO) used in myeloma treatment has donated 60,000 medical masks in partnership with the Myeloma Crowd, Family Reach and the L... Read More IMPROVED UNDERSTANDING OF CHRONIC GRAFT VERSUS HOST DISEASE LIFE WITH MYELOMA - May 14, 2020 Graft versus host disease (GvHD) is a condition that might occur after an allogeneic stem cell transplant (allo-SCT). In GvHD, the donated stem cells view the r... Read MoreLoad More Articles
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Our Next Show: Antibody Testing Strategies for COVID-19 with Stephen Russell, MD, PhD, Mayo Clinic, Friday May 29 @ 1 pm Central ------------------------- Myeloma Crowd Round Table Expert Videos: San Diego -- March 7, 2020 ------------------------- Our Next Show: Mid-Year ASCO Myeloma Update with Paul Richardson, MD, Monday, June 1 @ 9 am Eastern ------------------------- Myeloma Crowd COVID-19 Round Table Expert Videos: Webcast--April 18,2020
------------------------- My Myeloma Journey: From Despair to Active Acceptance ------------------------- -------------------------Myeloma News
ASCO 2020: Are Myeloma Patients Getting the Right Vaccinations? Isatuximab Extends Survival When Used with Carfilzomib and Dexamethasone in Multiple Myeloma Pandemic Dramatically Impacting Disease Diagnosis and Medical Tests -------------------------Life with Myeloma
Chemo Brain for the Multiple Myeloma Patient Breathing Your Way to Better Health My Myeloma Journey: From Despair to Active Acceptance -------------------------MC Radio
Full Show: COVID-19 Update with Ola Landgren, MD, PhD, MSKCC Full Show: COVID-19 and What Multiple Myeloma Patients Need to Know Full Show: Preventing Infections and Vaccination Recommendations After Myeloma Transplant with Jennifer Saullo, MD, PharmD, DukeUniversity
-------------------------MC Events
HealthTree Webinar Part 1: Track My Myeloma on Thursday, May 21 at 10AM Mountain
Donate Today to the Myeloma Crowd's #GivingTuesdayNow Campaign and Help Fund COVID-19 / Myeloma Research! Muscles for Myeloma Fitness Challenge, April - May 2020 ------------------------- Myeloma Clinical Trials XPOVIO (selinexor) Study Shows Impact When Used in Earlier Lines of Multiple Myeloma Therapy with Velcade and Dex Clinical Trial: Smoldering Myeloma Personalized Vaccine at MDAnderson
Clinical Trial: Avelumab in Combination With Hypofractionated Radiotherapy in Patients With Relapsed Refractory Multiple Myeloma -------------------------Myeloma 101
What is a Neutropenic Diet for Multiple Myeloma Patients? Why all Multiple Myeloma Patients Need a Myeloma Specialist Signs and Symptoms of Multiple Myeloma ------------------------- Upcoming MC Round Tables -------------------------Myeloma Coach
My Myeloma Journey: From Despair to Active Acceptance Myeloma Coach: Overcoming Financial Indecision In Trying Times Mental Health & Myeloma: Let's Talk About It -------------------------HealthTree
Myeloma Crowd Introduces Largest COVID-19 Multiple Myeloma PatientStudy
Accelerating Multiple Myeloma Research with FREE HealthTree Surveysand Studies
What We Are Learning about Multiple Myeloma Together: HealthTree Reports and Real World Data -------------------------FIND MYELOMA HELP
FINANCIAL RESOURCES
Find financial resources like housing, prescription and patient assistance programs and other helpful links that will guide you through your myeloma care.Learn More
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Patients who are seen by myeloma specialists live longer. Find a myeloma specialists closest to you and add them to your care team foryour best outcomes.
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MYELOMA TREATMENTS and CLINICAL TRIALS Find personally relevant treatment options and clinical trials at every stage of your myeloma with HealthTree and SparkCures.Learn More
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We're a team of myeloma patient and caregiver volunteers who can help you find and use the best myeloma resources so you can better navigateyour myeloma care.
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The Myeloma Crowd Research Initiative (MCRI) is a new approach to funding cancer research; combining the skill and knowledge of leading myeloma specialists with the patient perspective and supportive patient social communities to select and fund promising research projects in myeloma. The goal of the MCRI is to find and fund a cure for multiple myeloma.Learn More
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