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PARENT SUPPORT
Contact us. 020 7833 4883; 020 7833 5999 (fax) CLAPA, The Green House 244-254 Cambridge Heath Road LONDON, E2 9DA THE TOP 12 QUESTIONS In 2011-12 there was a big consultation with a wide range of people including patients, their families and carers, and Cleft Team members. This consultation was run by the James Lind Alliance, and aimed to bring different kinds of people affected by cleft together to find out which questions we should be trying to answer through research.. This was a long process which has been used many times CHRISTMAS - CLAPA - CLEFT LIP & PALATE ASSOCIATION CLAPA is the only UK-wide voluntary organisation specifically helping those with, and affected by, cleft lip and palate. It is unique. CLEFT LIP & PALATE ASSOCIATION CLAPA is the only UK-wide voluntary organisation specifically helping those with, and affected by, cleft lip and palate. It is unique. CLEFT LIP & PALATE ASSOCIATION One of our founding members, former Orthodontist Michael Mars has watched CLAPA grow from an idea into a national charity working to improve the lives of people affected by cleft all over the UK. In this interview, he looks back on how CLAPA was founded and how far it hascome since 1979.
CLEFT LIP & PALATE ASSOCIATION CLAPA is the only UK-wide voluntary organisation specifically helping those with, and affected by, cleft lip and palate. It is unique. CLEFT LIP & PALATE ASSOCIATION Cleft Lip and Palate Awareness Week 2021: Celebrating Difference 8th – 16th May When we share what makes us unique with others, the world becomes a better, more interesting place. Cleft Lip and Palate Awareness Week is about celebrating differences, not only in how we look and sound, but also in the experiences that make CLEFT LIP & PALATE ASSOCIATIONSEE MORE ON CLAPA.COM CLEFT LIP & PALATE ASSOCIATION Published: November 2015 Next Review: February 2017 Source(s): Range of existing literature from CLAPA, including a leaflet produced by the Royal College of Surgeons in association with CLAPA. Various studies concerning the experiences of adults with a cleft were also used. Stories and suggestions from adults born with a cleft have been included throughout.PARENT SUPPORT
Contact us. 020 7833 4883; 020 7833 5999 (fax) CLAPA, The Green House 244-254 Cambridge Heath Road LONDON, E2 9DA THE TOP 12 QUESTIONS In 2011-12 there was a big consultation with a wide range of people including patients, their families and carers, and Cleft Team members. This consultation was run by the James Lind Alliance, and aimed to bring different kinds of people affected by cleft together to find out which questions we should be trying to answer through research.. This was a long process which has been used many times CHRISTMAS - CLAPA - CLEFT LIP & PALATE ASSOCIATION CLAPA is the only UK-wide voluntary organisation specifically helping those with, and affected by, cleft lip and palate. It is unique. CLEFT LIP & PALATE ASSOCIATION CLAPA is the only UK-wide voluntary organisation specifically helping those with, and affected by, cleft lip and palate. It is unique. CLEFT LIP & PALATE ASSOCIATION One of our founding members, former Orthodontist Michael Mars has watched CLAPA grow from an idea into a national charity working to improve the lives of people affected by cleft all over the UK. In this interview, he looks back on how CLAPA was founded and how far it hascome since 1979.
CLAPA:NEWS 9/11/09 13:49 PAGE 22 22 FEATURE RICHARD HAWLEY Clapanews 22 feature Richard Hawley Singer/songwriter Richard Hawley talks for the first time about his experience of growing up with a cleft lip and palate and how it has CLEFT LIP & PALATE ASSOCIATION Wherever you are in your cleft journey, you’re not alone. In this section, you’ll find information on all our support services, from Parent Supporters to Facebook Groups.. CLAPA is committed to safeguarding the people of all ages and backgrounds who use ourservices.
NEWS - CLAPA - CLEFT LIP & PALATE ASSOCIATION Adult Stories | Michael’s Story. 28 May 2021. In reflecting on his 20 years of treatment at Great Ormond Street Hospital, Michael, who was born with a bilateral cleft lip and palate, composed two music pieces of music: his Great Ormond Street Hymn, and Symphony No.1. CLEFT LIP & PALATE ASSOCIATION Year Three (2020-21) March 2018 saw the official start of CLAPA’s 3-year Adult Services Project. Read on to find out more about the project and how you can get involved. Interested in what we did in Year One? Access the archive here. Interested in what we did in Year Two? Access the archive here. Jump CLEFT LIP & PALATE ASSOCIATION The NHS recommends exclusive breastfeeding for the first six months of a baby’s life, but feeding issues caused by a cleft lip and/or palate can make breastfeeding very difficult.. At this time, it is important to remember three key things: It is very unlikely that yourchild’s cleft was
CLEFT LIP & PALATE ASSOCIATION A syndrome is when a group of different symptoms occur together. Cleft lip and/or palate are listed as symptoms of over 400 various conditions and syndromes, although some are extremely rare. This means the cleft itself is caused by the condition or syndrome. CLEFT LIP & PALATE ASSOCIATION Published: November 2015 Next Review: February 2017 Source(s): Range of feeding literature from Cleft Units, with assistance from Cleft Nurse Specialists in Manchester, Nottingham and South London. Stories and suggestions from parents of children born with a cleft were also used. If you have a comment or question about the information in this page, or would like to know more about the sourcesPARENT SUPPORT
Contact us. 020 7833 4883; 020 7833 5999 (fax) CLAPA, The Green House 244-254 Cambridge Heath Road LONDON, E2 9DA CLEFT LIP & PALATE ASSOCIATION Contact us. 020 7833 4883; 020 7833 5999 (fax) CLAPA, The Green House 244-254 Cambridge Heath Road LONDON, E2 9DA CLEFT LIP & PALATE ASSOCIATION Join Nicky Davis & Kenny Ardouin for Cleft Talk. Cleft Talk are CLAPA’s very own panel discussion podcasts that you can listen to from the comfort of your own home, in the car, on public transport, while out for a run or wherever you are at a time that suits you. Tuneinto our panel
LAURA - CLAPA
CLAPA. Cleft Lip and Palate Association UK. Menu and widgets. PreviousImage. Laura
CLEFT LIP & PALATE ASSOCIATION CLAPA is the only UK-wide voluntary organisation specifically helping those with, and affected by, cleft lip and palate. It is unique. ADULTS - TREATMENT - CLEFT LIP & PALATE ASSOCIATION Appearance. In a survey CLAPA conducted in 2014, 97% of adults with a cleft lip said they thought of themselves as having a ‘visible difference’, which is a feature of your appearance which is noticeably different from the ‘norm’, such as a scar or birthmark. This page goes through what affect can a visible difference like acleft scar
CLEFT LIP & PALATE ASSOCIATION Cleft Lip and Palate Awareness Week 2021: Celebrating Difference 8th – 16th May When we share what makes us unique with others, the world becomes a better, more interesting place. Cleft Lip and Palate Awareness Week is about celebrating differences, not only in how we look and sound, but also in the experiences that make CLEFT LIP & PALATE ASSOCIATION Support. Wherever you are in your cleft journey, you’re not alone. In this section, you’ll find information on all our support services, from Parent Supporters to Facebook Groups. CLAPA is committed to safeguarding the people of all ages and backgrounds who use our services. Click to find out more about how we make safeguarding a priority. TIMELINE - CLAPA - CLEFT LIP & PALATE ASSOCIATION This is a summary of services commissioned by NHS England based on the full Service Specification. It is designed to help you understand how everything in the treatment pathway for cleft fits together, and what you might expect at each stage of your or your child’s life. It CLEFT LIP & PALATE ASSOCIATION The NHS recommends exclusive breastfeeding for the first six months of a baby’s life, but feeding issues caused by a cleft lip and/or palate can make breastfeeding very difficult.. At this time, it is important to remember three key things: It is very unlikely that yourchild’s cleft was
CLEFT LIP & PALATE ASSOCIATIONSEE MORE ON CLAPA.COM THE TOP 12 QUESTIONS In 2011-12 there was a big consultation with a wide range of people including patients, their families and carers, and Cleft Team members. This consultation was run by the James Lind Alliance, and aimed to bring different kinds of people affected by cleft together to find out which questions we should be trying to answer through research.. This was a long process which has been used many times CLEFT LIP & PALATE ASSOCIATION MAM Bottles and Teats. CLAPA is the only UK supplier of MAM’s range of specialist cleft feeding equipment, including their soft bottles and orthodontic teats. The soft bottles can be gently squeezed to help the milk flow regardless of the baby’s ability to suck. Before using this bottle, parents and carers should be instructed in its safe CHRISTMAS - CLAPA - CLEFT LIP & PALATE ASSOCIATION With your help, we’ll be able to keep providing monthly Coffee Clubs for parents/carers to meet and share experiences, our one-to-one support service for parents/carers and adults, up-to-date online information about surgery and treatment, virtual events to bring young people affected by cleft together, our monthly Cleft Talk podcasts for CLEFT LIP & PALATE ASSOCIATION CLAPA is the only UK-wide voluntary organisation specifically helping those with, and affected by, cleft lip and palate. It is unique. ADULTS - TREATMENT - CLEFT LIP & PALATE ASSOCIATION Appearance. In a survey CLAPA conducted in 2014, 97% of adults with a cleft lip said they thought of themselves as having a ‘visible difference’, which is a feature of your appearance which is noticeably different from the ‘norm’, such as a scar or birthmark. This page goes through what affect can a visible difference like acleft scar
CLEFT LIP & PALATE ASSOCIATION Cleft Lip and Palate Awareness Week 2021: Celebrating Difference 8th – 16th May When we share what makes us unique with others, the world becomes a better, more interesting place. Cleft Lip and Palate Awareness Week is about celebrating differences, not only in how we look and sound, but also in the experiences that make CLEFT LIP & PALATE ASSOCIATION Support. Wherever you are in your cleft journey, you’re not alone. In this section, you’ll find information on all our support services, from Parent Supporters to Facebook Groups. CLAPA is committed to safeguarding the people of all ages and backgrounds who use our services. Click to find out more about how we make safeguarding a priority. TIMELINE - CLAPA - CLEFT LIP & PALATE ASSOCIATION This is a summary of services commissioned by NHS England based on the full Service Specification. It is designed to help you understand how everything in the treatment pathway for cleft fits together, and what you might expect at each stage of your or your child’s life. It CLEFT LIP & PALATE ASSOCIATION The NHS recommends exclusive breastfeeding for the first six months of a baby’s life, but feeding issues caused by a cleft lip and/or palate can make breastfeeding very difficult.. At this time, it is important to remember three key things: It is very unlikely that yourchild’s cleft was
CLEFT LIP & PALATE ASSOCIATIONSEE MORE ON CLAPA.COM THE TOP 12 QUESTIONS In 2011-12 there was a big consultation with a wide range of people including patients, their families and carers, and Cleft Team members. This consultation was run by the James Lind Alliance, and aimed to bring different kinds of people affected by cleft together to find out which questions we should be trying to answer through research.. This was a long process which has been used many times CLEFT LIP & PALATE ASSOCIATION MAM Bottles and Teats. CLAPA is the only UK supplier of MAM’s range of specialist cleft feeding equipment, including their soft bottles and orthodontic teats. The soft bottles can be gently squeezed to help the milk flow regardless of the baby’s ability to suck. Before using this bottle, parents and carers should be instructed in its safe CHRISTMAS - CLAPA - CLEFT LIP & PALATE ASSOCIATION With your help, we’ll be able to keep providing monthly Coffee Clubs for parents/carers to meet and share experiences, our one-to-one support service for parents/carers and adults, up-to-date online information about surgery and treatment, virtual events to bring young people affected by cleft together, our monthly Cleft Talk podcasts for CLEFT LIP & PALATE ASSOCIATION Support. Wherever you are in your cleft journey, you’re not alone. In this section, you’ll find information on all our support services, from Parent Supporters to Facebook Groups. CLAPA is committed to safeguarding the people of all ages and backgrounds who use our services. Click to find out more about how we make safeguarding a priority. CLEFT LIP & PALATE ASSOCIATION Contact us. 020 7833 4883; 020 7833 5999 (fax) CLAPA, The Green House 244-254 Cambridge Heath Road LONDON, E2 9DAMEET THE TEAM
For general inquiries please email info@clapa.com or call the office on 020 7833 4883. Find Vacancies on Charity Jobs or listed on our website. Claire Cunniffe Chief Executive Officer Claire joined CLAPA in February 2011, initially to pilot the Regional Coordinator project which she has led on since its inception. Having been Deputy ChiefExecutive
CLEFT LIP & PALATE ASSOCIATION The NHS recommends exclusive breastfeeding for the first six months of a baby’s life, but feeding issues caused by a cleft lip and/or palate can make breastfeeding very difficult.. At this time, it is important to remember three key things: It is very unlikely that yourchild’s cleft was
CLEFT LIP & PALATE ASSOCIATION 1/700 people will be born with a cleft lip and/or palate, though some statistics put it closer to 1/600. This is around 0.14% of the population. A cleft is the most common craniofacial (to do with the skull or face) abnormality in the world, and in the UK alone around three babies will be born with a cleft every day. APPEARANCE - ADULTS - CLEFT LIP & PALATE ASSOCIATION Published: November 2015 Next Review: February 2017 Source(s): Range of existing literature from CLAPA, including a leaflet produced by the Royal College of Surgeons in association with CLAPA. Various studies concerning the experiences of adults with a cleft were also used. Stories and suggestions from adults born with a cleft have been included throughout.SCHOOL YEARS (5-12)
Assessment between 7 and 9 years of age by the Cleft Team’s orthodontist, paediatric dentist and surgeon responsible for Alveolar Bone Grafting (ABG), followed by surgery if necessary between ages 8-12. Support from the clinical psychologist for the child and/or their family. Paediatric dentistry and orthodontic treatment (e.g.braces) as needed.
CLEFT LIP & PALATE ASSOCIATION Glue Ear ( Otitis Media with Effusion, or ‘OME’) is a common condition in children with a cleft palate. This is thought to happen when the eustachian tube doesn’t function properly. The eustachian tube runs from the middle ear to the back of the nose and throat, and it works by equalising air pressure between these two areas, sort oflike
CLEFT LIP & PALATE ASSOCIATION In 2016, we ran a survey on the topic of diagnosis which collected a wide range of information about the experiences of hundreds of parents, including those who had received an antenatal diagnosis. This data fed into three academic papers, including “Breaking the News: Parents’ Experiences of Receiving an Antenatal Diagnosis of CleftLip”.
CLEFT LIP & PALATE ASSOCIATION One of our founding members, former Orthodontist Michael Mars has watched CLAPA grow from an idea into a national charity working to improve the lives of people affected by cleft all over the UK. In this interview, he looks back on how CLAPA was founded and how far it hascome since 1979.
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WORKING TO SUPPORT, CONNECT AND EMPOWER EVERYONE AFFECTED BY CLEFT INTHE UNITED KINGDOM
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MICHAEL’S STORY
In reflecting on his 20 years of treatment at Great Ormond Street Hospital, Michael, who was born with a bilateral cleft lip and palate, composed two music pieces of music: his Great Ormond Street Hymn, and Symphony No.1. Click to learn about his cleft journey and find out why he wanted to write music.Read more
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7 Jun 2021 09:24 -7 Jun 2021 09:24More information
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RESEARCH OPPORTUNITY: YOUNG PEOPLE’S EXPERIENCES WITH APPEARANCE ANDBODY IMAGE
The Centre for Appearance Research has launched a new study called TABI (Teen Appearance and Body Image) to explore young people’s experience of appearance and body image using an online survey.*
CLEFT LIP AND PALATE AWARENESS WEEK 2021: THANK YOU! This Cleft Lip and Palate Awareness Week,*
7 Jun 2021 09:24 -7 Jun 2021 09:24
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7 Jun 2021 09:24 -7 Jun 2021 09:24
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