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MEDICATIONS FOR SCLERODERMA, ARTHRITIS, AUTOIMMUNE AND Overview. Biologics or biologic agents are biologic response modifying agents that block specific pathways and signals of inflammation. Some of the biologics used to treat rheumatic diseases include etanercept (Enbrel), infliximab (Remicade), adalimumab (Humira), abatacept(Orencia), and
PERIORAL DERMATITIS OR PERIORIFICIAL DERMATITISSEE MORE ON SCLERO.ORG ISN: DR. C. STEPHEN FOSTER Dr. C. Stephen Foster ISN Medical Advisory Board Dr. Foster is founder of the Massachusetts Eye Research and Surgery Institute (MERSI) and of the Ocular Immunology and Uveitis Foundation.. Dr. Foster has now opened a new private Institute, the Massachusetts Eye Research and Surgery Institute (MERSI), and has formed a tax exempt research and education foundation, the Ocular Immunology and SUSIE: CREST SYNDROME What followed after the first diagnoses was rheumatoid arthritis, acid reflux, neuropathy in both feet, Raynaud's, Sjogren's syndrome, skin ulcers, itchy skin, nerve damage in my elbows and hands, a bout of gangrene in one finger, shortness of breath, high blood pressure, and osteoarthritis. I walked with a cane for about six months, but BREE: MY FATHER DIED FROM ASPIRATION PNEUMONIA Bree: My Father Died from Aspiration Pneumonia I do not fully understand how or why this form of disease would cause a person to die. I am writing to seek some information about aspiration pneumonia. My father died from this in September 2004. TONY B: SYSTEMIC SCLERODERMA WITH PULMONARY FIBROSIS Tony B: Systemic Scleroderma It has taken me some time to come to terms with this disease. My name is Tony and I was diagnosed with scleroderma in September of 2000, but I had the symptoms for three years before that. I am sure I do not have to tell any of you what it felt like to be told I had scleroderma and a poor prognosis. RACHELLE: INTERSTITIAL CYSTITIS She told me that the painful intercourse was because I had a uterus that was laying back on my bladder and this could be also causing the urinary tract infections (UTI) and all the pain. I was happy with this. She wanted to see me back to watch this. I went back to see her again I had another UTI and it was a bad one. NINA: FIBROMYALGIA, RAYNAUD'S, LIMITED SCLERODERMA/CREST On December 31, 1999, I was admitted to the hospital with a hemoglobin of 6.2. I had a ton of tests run and was told that I needed to see a gastroenterologist immediately. I had three transfusions and was released after three days. I went back to the same GI doctor that I had seen years earlier. WHAT IS CHRONIC FATIGUE SYNDROME? OPTIC NEUROPATHY OF SYSTEMIC SCLEROSIS (SCLERODERMA) Optic Neuropathy ISN Guide to Eye Involvement: Dr. Liz Irvin. Hello, I am Dr. Liz Irvin, your ISN Guide to Eye Involvement. In addition to helping Dr. C. Stephen Foster develop resources for this section of the ISN website, I am happy to try to respond to questions that you may have or to redirect you to resources that may be helpful. Email.
MEDICATIONS FOR SCLERODERMA, ARTHRITIS, AUTOIMMUNE AND Overview. Biologics or biologic agents are biologic response modifying agents that block specific pathways and signals of inflammation. Some of the biologics used to treat rheumatic diseases include etanercept (Enbrel), infliximab (Remicade), adalimumab (Humira), abatacept(Orencia), and
PERIORAL DERMATITIS OR PERIORIFICIAL DERMATITISSEE MORE ON SCLERO.ORG ISN: DR. C. STEPHEN FOSTER Dr. C. Stephen Foster ISN Medical Advisory Board Dr. Foster is founder of the Massachusetts Eye Research and Surgery Institute (MERSI) and of the Ocular Immunology and Uveitis Foundation.. Dr. Foster has now opened a new private Institute, the Massachusetts Eye Research and Surgery Institute (MERSI), and has formed a tax exempt research and education foundation, the Ocular Immunology and SUSIE: CREST SYNDROME What followed after the first diagnoses was rheumatoid arthritis, acid reflux, neuropathy in both feet, Raynaud's, Sjogren's syndrome, skin ulcers, itchy skin, nerve damage in my elbows and hands, a bout of gangrene in one finger, shortness of breath, high blood pressure, and osteoarthritis. I walked with a cane for about six months, but BREE: MY FATHER DIED FROM ASPIRATION PNEUMONIA Bree: My Father Died from Aspiration Pneumonia I do not fully understand how or why this form of disease would cause a person to die. I am writing to seek some information about aspiration pneumonia. My father died from this in September 2004. TONY B: SYSTEMIC SCLERODERMA WITH PULMONARY FIBROSIS Tony B: Systemic Scleroderma It has taken me some time to come to terms with this disease. My name is Tony and I was diagnosed with scleroderma in September of 2000, but I had the symptoms for three years before that. I am sure I do not have to tell any of you what it felt like to be told I had scleroderma and a poor prognosis. RACHELLE: INTERSTITIAL CYSTITIS She told me that the painful intercourse was because I had a uterus that was laying back on my bladder and this could be also causing the urinary tract infections (UTI) and all the pain. I was happy with this. She wanted to see me back to watch this. I went back to see her again I had another UTI and it was a bad one. NINA: FIBROMYALGIA, RAYNAUD'S, LIMITED SCLERODERMA/CREST On December 31, 1999, I was admitted to the hospital with a hemoglobin of 6.2. I had a ton of tests run and was told that I needed to see a gastroenterologist immediately. I had three transfusions and was released after three days. I went back to the same GI doctor that I had seen years earlier. SCLERODERMA? WE CAN HELP! Scleroderma is a rare form of arthritis. There are many types, with a wide range of causes, symptoms, severity, and treatments. To begin, watch our Video Series for clear-cut examples and symptoms. Then explore diagnosis, symptoms, treatments and clinical trials in our Medical Directory.. We also offer very broad coverage for many related or overlapping illnesses, such as Autoimmune Diseases CAUSES OF SCLERODERMA: CYTOKINES Statins Inhibit Cytokines in a Dose–Dependent Response in Patients with Systemic Sclerosis (SSc). Statins, particularly simvastatin, appear to have an immunosuppressive effect in reducing all cytokine secretion levels from peripheral blood mononuclear cells of SSc in a dose–dependent manner. PubMed, Inflammation, 10/04/2018. NINA: FIBROMYALGIA, RAYNAUD'S, LIMITED SCLERODERMA/CREST SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. LAURA'S STORY: UNDIFFERENTIATED CONNECTIVE TISSUE DISEASE Laura M: UCTD A rheumatologist told me I do not look sick and to "get a life." I am Laura. I am forty-three, and after ten years of symptoms, tests, and doctor visits, I have been diagnosed with Undifferentiated Connective Tissue Disease (UCTD).. I have extreme fatigue (in bed, days at a time), muscle weakness, Raynaud's in hands and feet, extreme nausea, abdominal pain, joint pain, TMJ, low RACHELLE: INTERSTITIAL CYSTITIS She told me that the painful intercourse was because I had a uterus that was laying back on my bladder and this could be also causing the urinary tract infections (UTI) and all the pain. I was happy with this. She wanted to see me back to watch this. I went back to see her again I had another UTI and it was a bad one.RIPPLING SKIN
Hi Angel Sky, How nice to hear from you again although I'm so sorry that you've been suffering with depression. I've included a link to Depression and Scleroderma which I really hope may be of help to you.. I must admit that I haven't experienced the rippling skin that you're describing so I'm unable to advise you from my own experience, as although I have Systemic Sclero, I have minimal skin ISN: PROFESSOR CAROL BLACK Professor Carol Black, MD, FRCP, CBE ISN Featured Expert in Voices of Scleroderma Volume 2. Professor Carol Black, MD, FRCP, CBE, is the Director of the Department of Rheumatology at Royal Free Hospital in London, England, and a renowned expert in scleroderma. The department has an active research program. JOELF - SCLERO FORUMS Joelf posted a topic in Sclero Forums (MAIN) Implication of miR-126 and miR-139-5p in Plasmacytoid Dendritic Cell (pDCs) Dysregulation in Systemic Sclerosis (SSc). These findings demonstrated that the miRNA profile is altered in pDCs of SSc patients already at THROAT MUSCLE SPASMS canon. Your throat spasms sound very painful. There are valve like muscles on different areas of your esophagus and probably any could be affected especially if you have reflux problems. I have esophageal spasms but with chest pain that radiates to the throat, jaw, teeth and arms. There are 2 types of spasms.ISN: JO FROWDE
Jo Frowde has been promoted to ISN News Guide for Scleroderma Medical News. She has been an Assistant News Guide since June 2011. She is researching, selecting, and preparing current medical abstracts for our Newsroom and web site. Jo is also Manager of Sclero Forums and a Sclero Forums Chat Host. Posted 01/10/2013. WHAT IS CHRONIC FATIGUE SYNDROME? OPTIC NEUROPATHY OF SYSTEMIC SCLEROSIS (SCLERODERMA) Optic Neuropathy ISN Guide to Eye Involvement: Dr. Liz Irvin. Hello, I am Dr. Liz Irvin, your ISN Guide to Eye Involvement. In addition to helping Dr. C. Stephen Foster develop resources for this section of the ISN website, I am happy to try to respond to questions that you may have or to redirect you to resources that may be helpful. Email.
MEDICATIONS FOR SCLERODERMA, ARTHRITIS, AUTOIMMUNE AND Overview. Biologics or biologic agents are biologic response modifying agents that block specific pathways and signals of inflammation. Some of the biologics used to treat rheumatic diseases include etanercept (Enbrel), infliximab (Remicade), adalimumab (Humira), abatacept(Orencia), and
PERIORAL DERMATITIS OR PERIORIFICIAL DERMATITISSEE MORE ON SCLERO.ORG ISN: DR. C. STEPHEN FOSTER Dr. C. Stephen Foster ISN Medical Advisory Board Dr. Foster is founder of the Massachusetts Eye Research and Surgery Institute (MERSI) and of the Ocular Immunology and Uveitis Foundation.. Dr. Foster has now opened a new private Institute, the Massachusetts Eye Research and Surgery Institute (MERSI), and has formed a tax exempt research and education foundation, the Ocular Immunology and SUSIE: CREST SYNDROME What followed after the first diagnoses was rheumatoid arthritis, acid reflux, neuropathy in both feet, Raynaud's, Sjogren's syndrome, skin ulcers, itchy skin, nerve damage in my elbows and hands, a bout of gangrene in one finger, shortness of breath, high blood pressure, and osteoarthritis. I walked with a cane for about six months, but BREE: MY FATHER DIED FROM ASPIRATION PNEUMONIA Bree: My Father Died from Aspiration Pneumonia I do not fully understand how or why this form of disease would cause a person to die. I am writing to seek some information about aspiration pneumonia. My father died from this in September 2004. TONY B: SYSTEMIC SCLERODERMA WITH PULMONARY FIBROSIS Tony B: Systemic Scleroderma It has taken me some time to come to terms with this disease. My name is Tony and I was diagnosed with scleroderma in September of 2000, but I had the symptoms for three years before that. I am sure I do not have to tell any of you what it felt like to be told I had scleroderma and a poor prognosis. RACHELLE: INTERSTITIAL CYSTITIS She told me that the painful intercourse was because I had a uterus that was laying back on my bladder and this could be also causing the urinary tract infections (UTI) and all the pain. I was happy with this. She wanted to see me back to watch this. I went back to see her again I had another UTI and it was a bad one. NINA: FIBROMYALGIA, RAYNAUD'S, LIMITED SCLERODERMA/CREST On December 31, 1999, I was admitted to the hospital with a hemoglobin of 6.2. I had a ton of tests run and was told that I needed to see a gastroenterologist immediately. I had three transfusions and was released after three days. I went back to the same GI doctor that I had seen years earlier. WHAT IS CHRONIC FATIGUE SYNDROME? OPTIC NEUROPATHY OF SYSTEMIC SCLEROSIS (SCLERODERMA) Optic Neuropathy ISN Guide to Eye Involvement: Dr. Liz Irvin. Hello, I am Dr. Liz Irvin, your ISN Guide to Eye Involvement. In addition to helping Dr. C. Stephen Foster develop resources for this section of the ISN website, I am happy to try to respond to questions that you may have or to redirect you to resources that may be helpful. Email.
MEDICATIONS FOR SCLERODERMA, ARTHRITIS, AUTOIMMUNE AND Overview. Biologics or biologic agents are biologic response modifying agents that block specific pathways and signals of inflammation. Some of the biologics used to treat rheumatic diseases include etanercept (Enbrel), infliximab (Remicade), adalimumab (Humira), abatacept(Orencia), and
PERIORAL DERMATITIS OR PERIORIFICIAL DERMATITISSEE MORE ON SCLERO.ORG ISN: DR. C. STEPHEN FOSTER Dr. C. Stephen Foster ISN Medical Advisory Board Dr. Foster is founder of the Massachusetts Eye Research and Surgery Institute (MERSI) and of the Ocular Immunology and Uveitis Foundation.. Dr. Foster has now opened a new private Institute, the Massachusetts Eye Research and Surgery Institute (MERSI), and has formed a tax exempt research and education foundation, the Ocular Immunology and SUSIE: CREST SYNDROME What followed after the first diagnoses was rheumatoid arthritis, acid reflux, neuropathy in both feet, Raynaud's, Sjogren's syndrome, skin ulcers, itchy skin, nerve damage in my elbows and hands, a bout of gangrene in one finger, shortness of breath, high blood pressure, and osteoarthritis. I walked with a cane for about six months, but BREE: MY FATHER DIED FROM ASPIRATION PNEUMONIA Bree: My Father Died from Aspiration Pneumonia I do not fully understand how or why this form of disease would cause a person to die. I am writing to seek some information about aspiration pneumonia. My father died from this in September 2004. TONY B: SYSTEMIC SCLERODERMA WITH PULMONARY FIBROSIS Tony B: Systemic Scleroderma It has taken me some time to come to terms with this disease. My name is Tony and I was diagnosed with scleroderma in September of 2000, but I had the symptoms for three years before that. I am sure I do not have to tell any of you what it felt like to be told I had scleroderma and a poor prognosis. RACHELLE: INTERSTITIAL CYSTITIS She told me that the painful intercourse was because I had a uterus that was laying back on my bladder and this could be also causing the urinary tract infections (UTI) and all the pain. I was happy with this. She wanted to see me back to watch this. I went back to see her again I had another UTI and it was a bad one. NINA: FIBROMYALGIA, RAYNAUD'S, LIMITED SCLERODERMA/CREST On December 31, 1999, I was admitted to the hospital with a hemoglobin of 6.2. I had a ton of tests run and was told that I needed to see a gastroenterologist immediately. I had three transfusions and was released after three days. I went back to the same GI doctor that I had seen years earlier. SCLERODERMA? WE CAN HELP! Scleroderma is a rare form of arthritis. There are many types, with a wide range of causes, symptoms, severity, and treatments. To begin, watch our Video Series for clear-cut examples and symptoms. Then explore diagnosis, symptoms, treatments and clinical trials in our Medical Directory.. We also offer very broad coverage for many related or overlapping illnesses, such as Autoimmune Diseases CAUSES OF SCLERODERMA: CYTOKINES Statins Inhibit Cytokines in a Dose–Dependent Response in Patients with Systemic Sclerosis (SSc). Statins, particularly simvastatin, appear to have an immunosuppressive effect in reducing all cytokine secretion levels from peripheral blood mononuclear cells of SSc in a dose–dependent manner. PubMed, Inflammation, 10/04/2018. NINA: FIBROMYALGIA, RAYNAUD'S, LIMITED SCLERODERMA/CREST SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. LAURA'S STORY: UNDIFFERENTIATED CONNECTIVE TISSUE DISEASE Laura M: UCTD A rheumatologist told me I do not look sick and to "get a life." I am Laura. I am forty-three, and after ten years of symptoms, tests, and doctor visits, I have been diagnosed with Undifferentiated Connective Tissue Disease (UCTD).. I have extreme fatigue (in bed, days at a time), muscle weakness, Raynaud's in hands and feet, extreme nausea, abdominal pain, joint pain, TMJ, low RACHELLE: INTERSTITIAL CYSTITIS She told me that the painful intercourse was because I had a uterus that was laying back on my bladder and this could be also causing the urinary tract infections (UTI) and all the pain. I was happy with this. She wanted to see me back to watch this. I went back to see her again I had another UTI and it was a bad one.RIPPLING SKIN
Hi Angel Sky, How nice to hear from you again although I'm so sorry that you've been suffering with depression. I've included a link to Depression and Scleroderma which I really hope may be of help to you.. I must admit that I haven't experienced the rippling skin that you're describing so I'm unable to advise you from my own experience, as although I have Systemic Sclero, I have minimal skin ISN: PROFESSOR CAROL BLACK Professor Carol Black, MD, FRCP, CBE ISN Featured Expert in Voices of Scleroderma Volume 2. Professor Carol Black, MD, FRCP, CBE, is the Director of the Department of Rheumatology at Royal Free Hospital in London, England, and a renowned expert in scleroderma. The department has an active research program. JOELF - SCLERO FORUMS Joelf posted a topic in Sclero Forums (MAIN) Implication of miR-126 and miR-139-5p in Plasmacytoid Dendritic Cell (pDCs) Dysregulation in Systemic Sclerosis (SSc). These findings demonstrated that the miRNA profile is altered in pDCs of SSc patients already at THROAT MUSCLE SPASMS canon. Your throat spasms sound very painful. There are valve like muscles on different areas of your esophagus and probably any could be affected especially if you have reflux problems. I have esophageal spasms but with chest pain that radiates to the throat, jaw, teeth and arms. There are 2 types of spasms.ISN: JO FROWDE
Jo Frowde has been promoted to ISN News Guide for Scleroderma Medical News. She has been an Assistant News Guide since June 2011. She is researching, selecting, and preparing current medical abstracts for our Newsroom and web site. Jo is also Manager of Sclero Forums and a Sclero Forums Chat Host. Posted 01/10/2013. CAUSES OF SCLERODERMA: CYTOKINESSEE MORE ON SCLERO.ORG WHAT IS CHRONIC FATIGUE SYNDROME?SEE MORE ON SCLERO.ORG SCLERODERMA FORUMS, CHATS AND BLOGS Join our free Sclero Forums — which is a service of the nonprofit International Scleroderma Network — to share heartfelt support and stellar medical information.. You can participate in the forum by reading and posting messages and photos online, and by attending weekly hosted chats! Our community is well-moderated by ISN Support Specialists who keep the list focused on providing stellar PREPARING FOR DOCTOR APPOINTMENTS These tips have come from our forums as people discussed their upcoming appointments with their specialists. It's a hot topic because the appointment is a big deal especially if it's the first one or it's been a long time coming or new, worrisome symptoms have arisen since the last appointment but do remember that these tips are just suggestions and you're free to disregard them. LAURA'S STORY: UNDIFFERENTIATED CONNECTIVE TISSUE DISEASE Laura M: UCTD A rheumatologist told me I do not look sick and to "get a life." I am Laura. I am forty-three, and after ten years of symptoms, tests, and doctor visits, I have been diagnosed with Undifferentiated Connective Tissue Disease (UCTD).. I have extreme fatigue (in bed, days at a time), muscle weakness, Raynaud's in hands and feet, extreme nausea, abdominal pain, joint pain, TMJ, low ISN: DR. C. STEPHEN FOSTER Dr. C. Stephen Foster ISN Medical Advisory Board Dr. Foster is founder of the Massachusetts Eye Research and Surgery Institute (MERSI) and of the Ocular Immunology and Uveitis Foundation.. Dr. Foster has now opened a new private Institute, the Massachusetts Eye Research and Surgery Institute (MERSI), and has formed a tax exempt research and education foundation, the Ocular Immunology and BLOGS - SCLERO FORUMS Not long after my first son was born I started having a lot of unexplained muscle pain and fatigue. The year was 1997. Soon, my hair started falling out - by the hand fulls. SUSIE: CREST SYNDROME Susie: CREST Syndrome He handed me a brown paper towel and told me to quit crying because I was one sick girl! I have had CREST syndrome for the past eight years. My specialist is SCLERODERMA CENTER AT THOMAS JEFFERSON UNIVERSITY IN Overview. This Scleroderma Center specializes in the treatment of patients with scleroderma and related fibrotic diseases. Dr. Fabian A. Mendoza-Ballesteros is Associate Director of the Scleroderma Center and they treat adults who have any form of scleroderma or other rare skin or fibrotic diseases, such as eosinophilic fasciitis and nephrogenic systemic fibrosis. ARE RETINOL SKIN TREATMENTS SAFE FOR SCLERODERMIANS I saw an article in a newsletter today that suggested topical retinol, carbon dioxide laser resurfacing, and hyaluronic acid injections have been proven clinically effective anti-aging treatments. Id sort of like to try the retinol for some of my wrinkles, but does anybody knowif a medication de
CAUSES OF SCLERODERMA: CYTOKINESSEE MORE ON SCLERO.ORG WHAT IS CHRONIC FATIGUE SYNDROME?SEE MORE ON SCLERO.ORG SCLERODERMA FORUMS, CHATS AND BLOGS Join our free Sclero Forums — which is a service of the nonprofit International Scleroderma Network — to share heartfelt support and stellar medical information.. You can participate in the forum by reading and posting messages and photos online, and by attending weekly hosted chats! Our community is well-moderated by ISN Support Specialists who keep the list focused on providing stellar PREPARING FOR DOCTOR APPOINTMENTS These tips have come from our forums as people discussed their upcoming appointments with their specialists. It's a hot topic because the appointment is a big deal especially if it's the first one or it's been a long time coming or new, worrisome symptoms have arisen since the last appointment but do remember that these tips are just suggestions and you're free to disregard them. LAURA'S STORY: UNDIFFERENTIATED CONNECTIVE TISSUE DISEASE Laura M: UCTD A rheumatologist told me I do not look sick and to "get a life." I am Laura. I am forty-three, and after ten years of symptoms, tests, and doctor visits, I have been diagnosed with Undifferentiated Connective Tissue Disease (UCTD).. I have extreme fatigue (in bed, days at a time), muscle weakness, Raynaud's in hands and feet, extreme nausea, abdominal pain, joint pain, TMJ, low ISN: DR. C. STEPHEN FOSTER Dr. C. Stephen Foster ISN Medical Advisory Board Dr. Foster is founder of the Massachusetts Eye Research and Surgery Institute (MERSI) and of the Ocular Immunology and Uveitis Foundation.. Dr. Foster has now opened a new private Institute, the Massachusetts Eye Research and Surgery Institute (MERSI), and has formed a tax exempt research and education foundation, the Ocular Immunology and BLOGS - SCLERO FORUMS Not long after my first son was born I started having a lot of unexplained muscle pain and fatigue. The year was 1997. Soon, my hair started falling out - by the hand fulls. SUSIE: CREST SYNDROME Susie: CREST Syndrome He handed me a brown paper towel and told me to quit crying because I was one sick girl! I have had CREST syndrome for the past eight years. My specialist is SCLERODERMA CENTER AT THOMAS JEFFERSON UNIVERSITY IN Overview. This Scleroderma Center specializes in the treatment of patients with scleroderma and related fibrotic diseases. Dr. Fabian A. Mendoza-Ballesteros is Associate Director of the Scleroderma Center and they treat adults who have any form of scleroderma or other rare skin or fibrotic diseases, such as eosinophilic fasciitis and nephrogenic systemic fibrosis. ARE RETINOL SKIN TREATMENTS SAFE FOR SCLERODERMIANS I saw an article in a newsletter today that suggested topical retinol, carbon dioxide laser resurfacing, and hyaluronic acid injections have been proven clinically effective anti-aging treatments. Id sort of like to try the retinol for some of my wrinkles, but does anybody knowif a medication de
CAUSES OF SCLERODERMA: FIBROBLASTS Overview. Fibroblasts are the most common cells of connective tissue. They produce the fibrous protein called collagen. "The major source of fibrosis in SSc is over production of collagens from fibroblasts."(1) ISN.(Also see What is Scleroderma? and Causes of Scleroderma).Fibroblasts.
SCLERODERMA DONATIONS SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. CLAUDIA: SYSTEMIC SCLERODERMA ISN Artist: Sherrill Knaggs (In Loving Memory) Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page.Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2. ISN Translator and Editor: AlbaLeón
NINA: FIBROMYALGIA, RAYNAUD'S, LIMITED SCLERODERMA/CREST SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. BLOGS - SCLERO FORUMS Not long after my first son was born I started having a lot of unexplained muscle pain and fatigue. The year was 1997. Soon, my hair started falling out - by the hand fulls. ISN: PROFESSOR CAROL BLACK Professor Carol Black, MD, FRCP, CBE ISN Featured Expert in Voices of Scleroderma Volume 2. Professor Carol Black, MD, FRCP, CBE, is the Director of the Department of Rheumatology at Royal Free Hospital in London, England, and a renowned expert in scleroderma. The department has an active research program. RACHELLE: INTERSTITIAL CYSTITIS Rachelle: Interstitial Cystitis Pain will take your life. I was a normal healthy teenage girl and at sixteen, had no real problem withmy health.
HELEN P: CREST SCLERODERMA Helen P: CREST Scleroderma I have discovered that there is an awful lot that is not known about CREST/scleroderma. I have CREST.I was diagnosed ten years ago when the symptoms kicked in with a vengeance following a very traumatic personal tragedy. TOTAL HIP REPLACEMENT SURGERY (THR). Hi All, Just to show how Scleroderma spreads its tentacles; I have just undergone surgery for a Total Hip Replacement (THR). The reason for this is because Ive been taking steroids (Prednisolone) for the last five and a half years, and unfortunately one of the side effects it can cause is Avascul SAMPLE EMPLOYMENT APPLICATION FORMWEB VIEW Thank you for your interest in volunteering for the nonprofit International Scleroderma Network. Our outstanding team of international volunteers all work together via the Internet and email to help provide quality medical and support information worldwide forthose affected by
CAUSES OF SCLERODERMA: CYTOKINESSEE MORE ON SCLERO.ORG WHAT IS CHRONIC FATIGUE SYNDROME? SCLERODERMA FORUMS, CHATS AND BLOGS Join our free Sclero Forums — which is a service of the nonprofit International Scleroderma Network — to share heartfelt support and stellar medical information.. You can participate in the forum by reading and posting messages and photos online, and by attending weekly hosted chats! Our community is well-moderated by ISN Support Specialists who keep the list focused on providing stellar PREPARING FOR DOCTOR APPOINTMENTS These tips have come from our forums as people discussed their upcoming appointments with their specialists. It's a hot topic because the appointment is a big deal especially if it's the first one or it's been a long time coming or new, worrisome symptoms have arisen since the last appointment but do remember that these tips are just suggestions and you're free to disregard them. XEROSTOMIA (DRY MOUTH) IN SYSTEMIC SCLEROSIS (SSC) AND Systemic sclerosis (SSc), commonly known as scleroderma, can cause dry mouth. People with dry mouth are more likely to get periodontal disease, cavities, and dental infections. Dry mouth can also make it difficult to eat, speak, or swallow. Drink at least eight glasses of water a day, and drink water during meals to ease painful chewing andswallowing.
EYE INVOLVEMENT OF RHEUMATIC DISEASES Eye Involvement of Rheumatic Diseases ISN Guide to Eye Involvement: Dr. Liz Irvin. Hello, I am Dr. Liz Irvin, your ISN Guide to Eye Involvement. In addition to helping Dr. C. Stephen Foster develop resources for this section of the ISN website, I am happy to try to respond to questions that you may have or to redirect you to resources that may be helpful. ISN: DR. C. STEPHEN FOSTER Dr. C. Stephen Foster ISN Medical Advisory Board Dr. Foster is founder of the Massachusetts Eye Research and Surgery Institute (MERSI) and of the Ocular Immunology and Uveitis Foundation.. Dr. Foster has now opened a new private Institute, the Massachusetts Eye Research and Surgery Institute (MERSI), and has formed a tax exempt research and education foundation, the Ocular Immunology and BLOGS - SCLERO FORUMS Not long after my first son was born I started having a lot of unexplained muscle pain and fatigue. The year was 1997. Soon, my hair started falling out - by the hand fulls. SCLERODERMA CENTER AT THOMAS JEFFERSON UNIVERSITY IN Overview. This Scleroderma Center specializes in the treatment of patients with scleroderma and related fibrotic diseases. Dr. Fabian A. Mendoza-Ballesteros is Associate Director of the Scleroderma Center and they treat adults who have any form of scleroderma or other rare skin or fibrotic diseases, such as eosinophilic fasciitis and nephrogenic systemic fibrosis. ARE RETINOL SKIN TREATMENTS SAFE FOR SCLERODERMIANS I saw an article in a newsletter today that suggested topical retinol, carbon dioxide laser resurfacing, and hyaluronic acid injections have been proven clinically effective anti-aging treatments. Id sort of like to try the retinol for some of my wrinkles, but does anybody knowif a medication de
CAUSES OF SCLERODERMA: CYTOKINESSEE MORE ON SCLERO.ORG WHAT IS CHRONIC FATIGUE SYNDROME? SCLERODERMA FORUMS, CHATS AND BLOGS Join our free Sclero Forums — which is a service of the nonprofit International Scleroderma Network — to share heartfelt support and stellar medical information.. You can participate in the forum by reading and posting messages and photos online, and by attending weekly hosted chats! Our community is well-moderated by ISN Support Specialists who keep the list focused on providing stellar PREPARING FOR DOCTOR APPOINTMENTS These tips have come from our forums as people discussed their upcoming appointments with their specialists. It's a hot topic because the appointment is a big deal especially if it's the first one or it's been a long time coming or new, worrisome symptoms have arisen since the last appointment but do remember that these tips are just suggestions and you're free to disregard them. XEROSTOMIA (DRY MOUTH) IN SYSTEMIC SCLEROSIS (SSC) AND Systemic sclerosis (SSc), commonly known as scleroderma, can cause dry mouth. People with dry mouth are more likely to get periodontal disease, cavities, and dental infections. Dry mouth can also make it difficult to eat, speak, or swallow. Drink at least eight glasses of water a day, and drink water during meals to ease painful chewing andswallowing.
EYE INVOLVEMENT OF RHEUMATIC DISEASES Eye Involvement of Rheumatic Diseases ISN Guide to Eye Involvement: Dr. Liz Irvin. Hello, I am Dr. Liz Irvin, your ISN Guide to Eye Involvement. In addition to helping Dr. C. Stephen Foster develop resources for this section of the ISN website, I am happy to try to respond to questions that you may have or to redirect you to resources that may be helpful. ISN: DR. C. STEPHEN FOSTER Dr. C. Stephen Foster ISN Medical Advisory Board Dr. Foster is founder of the Massachusetts Eye Research and Surgery Institute (MERSI) and of the Ocular Immunology and Uveitis Foundation.. Dr. Foster has now opened a new private Institute, the Massachusetts Eye Research and Surgery Institute (MERSI), and has formed a tax exempt research and education foundation, the Ocular Immunology and BLOGS - SCLERO FORUMS Not long after my first son was born I started having a lot of unexplained muscle pain and fatigue. The year was 1997. Soon, my hair started falling out - by the hand fulls. SCLERODERMA CENTER AT THOMAS JEFFERSON UNIVERSITY IN Overview. This Scleroderma Center specializes in the treatment of patients with scleroderma and related fibrotic diseases. Dr. Fabian A. Mendoza-Ballesteros is Associate Director of the Scleroderma Center and they treat adults who have any form of scleroderma or other rare skin or fibrotic diseases, such as eosinophilic fasciitis and nephrogenic systemic fibrosis. ARE RETINOL SKIN TREATMENTS SAFE FOR SCLERODERMIANS I saw an article in a newsletter today that suggested topical retinol, carbon dioxide laser resurfacing, and hyaluronic acid injections have been proven clinically effective anti-aging treatments. Id sort of like to try the retinol for some of my wrinkles, but does anybody knowif a medication de
SCLERODERMA MEDICAL NEWS: MARCH 2021 March 2021 Scleroderma News. Expression quantitative trait loci, (eQTL) analysis in systemic sclerosis (SSc) identifies new candidate genes associated with multiple aspects of disease pathology. The data of the present study provides a new layer of the molecular complexity of SSc, contributing to a better understanding of the pathogenesis of SCLERODERMA DONATIONS SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. SOCIAL CONSIDERATIONS OF TATTOOS Social Considerations of Tattoos. Acceptance of tattoos varies widely by tribes and cultures throughout the world. Employers often ban tattoos or body piercings. Some people refuse to get a tattoo or date anyone with a tattoo, for religious reasons. For people with scleroderma, the risks are multiplied due to health considerationssuch as the
BLOGS - SCLERO FORUMS Not long after my first son was born I started having a lot of unexplained muscle pain and fatigue. The year was 1997. Soon, my hair started falling out - by the hand fulls. ELIZABETH O: LINEAR SCLERODERMA She is studying international relations in Mexico City. Go to Ell: Morphea Scleroderma. SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501 (c) (3) U.S.-based public charitable foundation, established in 2002. ISN: DR. JERRY MOLITOR Dr. Jerry A. Molitor Liaison to ISN Medical Advisory Board Minnesota. Dr. Jerry A. Molitor is Associate Professor of Medicine in the Division of Rheumatology and Autoimmune Diseases at the University of Minnesota.He is a PhD graduate of Duke University, an MD graduate of the University of Iowa, and trained in Internal Medicine and Rheumatology at the University of Washington. RACHELLE: INTERSTITIAL CYSTITIS She told me that the painful intercourse was because I had a uterus that was laying back on my bladder and this could be also causing the urinary tract infections (UTI) and all the pain. I was happy with this. She wanted to see me back to watch this. I went back to see her again I had another UTI and it was a bad one. ISN: PROFESSOR CAROL BLACK Professor Carol Black, MD, FRCP, CBE ISN Featured Expert in Voices of Scleroderma Volume 2. Professor Carol Black, MD, FRCP, CBE, is the Director of the Department of Rheumatology at Royal Free Hospital in London, England, and a renowned expert in scleroderma. The department has an active research program. HELEN P: CREST SCLERODERMA Helen P: CREST Scleroderma I have discovered that there is an awful lot that is not known about CREST/scleroderma. I have CREST.I was diagnosed ten years ago when the symptoms kicked in with a vengeance following a very traumatic personal tragedy. NINA: FIBROMYALGIA, RAYNAUD'S, LIMITED SCLERODERMA/CREST On December 31, 1999, I was admitted to the hospital with a hemoglobin of 6.2. I had a ton of tests run and was told that I needed to see a gastroenterologist immediately. I had three transfusions and was released after three days. I went back to the same GI doctor that I had seen years earlier. CAUSES OF SCLERODERMA: CYTOKINESSEE MORE ON SCLERO.ORG WHAT IS CHRONIC FATIGUE SYNDROME? SCLERODERMA FORUMS, CHATS AND BLOGS Join our free Sclero Forums — which is a service of the nonprofit International Scleroderma Network — to share heartfelt support and stellar medical information.. You can participate in the forum by reading and posting messages and photos online, and by attending weekly hosted chats! Our community is well-moderated by ISN Support Specialists who keep the list focused on providing stellar PREPARING FOR DOCTOR APPOINTMENTS These tips have come from our forums as people discussed their upcoming appointments with their specialists. It's a hot topic because the appointment is a big deal especially if it's the first one or it's been a long time coming or new, worrisome symptoms have arisen since the last appointment but do remember that these tips are just suggestions and you're free to disregard them. XEROSTOMIA (DRY MOUTH) IN SYSTEMIC SCLEROSIS (SSC) AND Systemic sclerosis (SSc), commonly known as scleroderma, can cause dry mouth. People with dry mouth are more likely to get periodontal disease, cavities, and dental infections. Dry mouth can also make it difficult to eat, speak, or swallow. Drink at least eight glasses of water a day, and drink water during meals to ease painful chewing andswallowing.
EYE INVOLVEMENT OF RHEUMATIC DISEASES Eye Involvement of Rheumatic Diseases ISN Guide to Eye Involvement: Dr. Liz Irvin. Hello, I am Dr. Liz Irvin, your ISN Guide to Eye Involvement. In addition to helping Dr. C. Stephen Foster develop resources for this section of the ISN website, I am happy to try to respond to questions that you may have or to redirect you to resources that may be helpful. ISN: DR. C. STEPHEN FOSTER Dr. C. Stephen Foster ISN Medical Advisory Board Dr. Foster is founder of the Massachusetts Eye Research and Surgery Institute (MERSI) and of the Ocular Immunology and Uveitis Foundation.. Dr. Foster has now opened a new private Institute, the Massachusetts Eye Research and Surgery Institute (MERSI), and has formed a tax exempt research and education foundation, the Ocular Immunology and BLOGS - SCLERO FORUMS Not long after my first son was born I started having a lot of unexplained muscle pain and fatigue. The year was 1997. Soon, my hair started falling out - by the hand fulls. SCLERODERMA CENTER AT THOMAS JEFFERSON UNIVERSITY IN Overview. This Scleroderma Center specializes in the treatment of patients with scleroderma and related fibrotic diseases. Dr. Fabian A. Mendoza-Ballesteros is Associate Director of the Scleroderma Center and they treat adults who have any form of scleroderma or other rare skin or fibrotic diseases, such as eosinophilic fasciitis and nephrogenic systemic fibrosis. ARE RETINOL SKIN TREATMENTS SAFE FOR SCLERODERMIANS I saw an article in a newsletter today that suggested topical retinol, carbon dioxide laser resurfacing, and hyaluronic acid injections have been proven clinically effective anti-aging treatments. Id sort of like to try the retinol for some of my wrinkles, but does anybody knowif a medication de
CAUSES OF SCLERODERMA: CYTOKINESSEE MORE ON SCLERO.ORG WHAT IS CHRONIC FATIGUE SYNDROME? SCLERODERMA FORUMS, CHATS AND BLOGS Join our free Sclero Forums — which is a service of the nonprofit International Scleroderma Network — to share heartfelt support and stellar medical information.. You can participate in the forum by reading and posting messages and photos online, and by attending weekly hosted chats! Our community is well-moderated by ISN Support Specialists who keep the list focused on providing stellar PREPARING FOR DOCTOR APPOINTMENTS These tips have come from our forums as people discussed their upcoming appointments with their specialists. It's a hot topic because the appointment is a big deal especially if it's the first one or it's been a long time coming or new, worrisome symptoms have arisen since the last appointment but do remember that these tips are just suggestions and you're free to disregard them. XEROSTOMIA (DRY MOUTH) IN SYSTEMIC SCLEROSIS (SSC) AND Systemic sclerosis (SSc), commonly known as scleroderma, can cause dry mouth. People with dry mouth are more likely to get periodontal disease, cavities, and dental infections. Dry mouth can also make it difficult to eat, speak, or swallow. Drink at least eight glasses of water a day, and drink water during meals to ease painful chewing andswallowing.
EYE INVOLVEMENT OF RHEUMATIC DISEASES Eye Involvement of Rheumatic Diseases ISN Guide to Eye Involvement: Dr. Liz Irvin. Hello, I am Dr. Liz Irvin, your ISN Guide to Eye Involvement. In addition to helping Dr. C. Stephen Foster develop resources for this section of the ISN website, I am happy to try to respond to questions that you may have or to redirect you to resources that may be helpful. ISN: DR. C. STEPHEN FOSTER Dr. C. Stephen Foster ISN Medical Advisory Board Dr. Foster is founder of the Massachusetts Eye Research and Surgery Institute (MERSI) and of the Ocular Immunology and Uveitis Foundation.. Dr. Foster has now opened a new private Institute, the Massachusetts Eye Research and Surgery Institute (MERSI), and has formed a tax exempt research and education foundation, the Ocular Immunology and BLOGS - SCLERO FORUMS Not long after my first son was born I started having a lot of unexplained muscle pain and fatigue. The year was 1997. Soon, my hair started falling out - by the hand fulls. SCLERODERMA CENTER AT THOMAS JEFFERSON UNIVERSITY IN Overview. This Scleroderma Center specializes in the treatment of patients with scleroderma and related fibrotic diseases. Dr. Fabian A. Mendoza-Ballesteros is Associate Director of the Scleroderma Center and they treat adults who have any form of scleroderma or other rare skin or fibrotic diseases, such as eosinophilic fasciitis and nephrogenic systemic fibrosis. ARE RETINOL SKIN TREATMENTS SAFE FOR SCLERODERMIANS I saw an article in a newsletter today that suggested topical retinol, carbon dioxide laser resurfacing, and hyaluronic acid injections have been proven clinically effective anti-aging treatments. Id sort of like to try the retinol for some of my wrinkles, but does anybody knowif a medication de
SCLERODERMA MEDICAL NEWS: MARCH 2021 March 2021 Scleroderma News. Expression quantitative trait loci, (eQTL) analysis in systemic sclerosis (SSc) identifies new candidate genes associated with multiple aspects of disease pathology. The data of the present study provides a new layer of the molecular complexity of SSc, contributing to a better understanding of the pathogenesis of SCLERODERMA DONATIONS SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. SOCIAL CONSIDERATIONS OF TATTOOS Social Considerations of Tattoos. Acceptance of tattoos varies widely by tribes and cultures throughout the world. Employers often ban tattoos or body piercings. Some people refuse to get a tattoo or date anyone with a tattoo, for religious reasons. For people with scleroderma, the risks are multiplied due to health considerationssuch as the
BLOGS - SCLERO FORUMS Not long after my first son was born I started having a lot of unexplained muscle pain and fatigue. The year was 1997. Soon, my hair started falling out - by the hand fulls. ELIZABETH O: LINEAR SCLERODERMA She is studying international relations in Mexico City. Go to Ell: Morphea Scleroderma. SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501 (c) (3) U.S.-based public charitable foundation, established in 2002. ISN: DR. JERRY MOLITOR Dr. Jerry A. Molitor Liaison to ISN Medical Advisory Board Minnesota. Dr. Jerry A. Molitor is Associate Professor of Medicine in the Division of Rheumatology and Autoimmune Diseases at the University of Minnesota.He is a PhD graduate of Duke University, an MD graduate of the University of Iowa, and trained in Internal Medicine and Rheumatology at the University of Washington. RACHELLE: INTERSTITIAL CYSTITIS She told me that the painful intercourse was because I had a uterus that was laying back on my bladder and this could be also causing the urinary tract infections (UTI) and all the pain. I was happy with this. She wanted to see me back to watch this. I went back to see her again I had another UTI and it was a bad one. ISN: PROFESSOR CAROL BLACK Professor Carol Black, MD, FRCP, CBE ISN Featured Expert in Voices of Scleroderma Volume 2. Professor Carol Black, MD, FRCP, CBE, is the Director of the Department of Rheumatology at Royal Free Hospital in London, England, and a renowned expert in scleroderma. The department has an active research program. HELEN P: CREST SCLERODERMA Helen P: CREST Scleroderma I have discovered that there is an awful lot that is not known about CREST/scleroderma. I have CREST.I was diagnosed ten years ago when the symptoms kicked in with a vengeance following a very traumatic personal tragedy. NINA: FIBROMYALGIA, RAYNAUD'S, LIMITED SCLERODERMA/CREST On December 31, 1999, I was admitted to the hospital with a hemoglobin of 6.2. I had a ton of tests run and was told that I needed to see a gastroenterologist immediately. I had three transfusions and was released after three days. I went back to the same GI doctor that I had seen years earlier.SCLERO.ORG
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