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ALS PATIENT SUPPORT SERVICES • LES TURNER ALS FOUNDATION ALS poses steep obstacles -- and sometimes the road can feel lonely. The Les Turner ALS Foundation support services were designed to make things a little easier -- offering community, comfort and tangible resources for people living with ALS and their loved ones. A cure still eludes us -- but help is within reach. Our services include: WHAT IS ALS? • LES TURNER ALS FOUNDATION What is ALS? ALS (Amyotrophic Lateral Sclerosis) is a rapidly progressive, neuromuscular disease that causes muscle weakness in the arms and legs and causes difficulty speaking and swallowing. No two cases of ALS are alike and no two people living with ALS are exactly alike. The symptoms and progression of the disease can vary greatly. ALS FINANCIAL SUPPORT AND BENEFITS • LES TURNER ALS FOUNDATION Grant Programs & Equipment Loans. The Les Turner ALS Foundation offers a variety of financial assistance to people living with ALS and their families. This includes the Walter Boughton Foundation Support Services Grants, the Dan Nelson Respite Care Grant Program, Assistive Technology Applications and the Stuart Rosen ALS Transportation Fund. FREE ALS SUPPORT GROUPS • LES TURNER ALS FOUNDATION An 8-week bereavement group for spouses or partners of people who have died from ALS within the past six months. This group provides support, validation, and education in a supportive setting to those who are grieving the loss of their loved one. Date: Dates to be determined, by invitation only. Time: 6:30 - 8pm. THE ALS LAB OF DR. TEEPU SIDDIQUE • LES TURNER FOUNDATION The Les Turner ALS Research Laboratory led by Teepu Siddique, MD focuses on the clinical and molecular characteristics of ALS and the development of novel therapeutics. The lab was first dedicated by the Les Turner ALS Foundation in 1979 and has been directed by Dr. Siddique since 1991. Dr. Teepu Siddique was the founder of theNeuromuscular
LAB OF DR. HANDE OZDINLER Lab of Dr. Hande Ozdinler. The ALS research laboratory led by Hande Ozdinler, PhD, opened in October 2008. This lab focuses on the motor neurons which reside in the brain and connect with motor neurons in the spinal cord to initiate and control movement. These two motor neuron populations progressively degenerate in ALS patients, andtherefore
ALS WALK FOR LIFE CHICAGO • LES TURNER ALS FOUNDATION Thank you to everyone who participated in our first-ever 2020 virtual ALS Walk for Life! Relive the Facebook Live Event here . Our 2020 Virtual ALS Walk for Life welcomed walkers from 32 states and 3 countries. This truly was one of our biggest Walks ever! For more information, contact events@lesturnerals.org or call 847 679 3311.Walk for Hope.
ALS SUPPORT: WALTER BOUGHTON FOUNDATION • LES TURNER About the Walter Boughton Foundation Support Services Grant Program. Walter Boughton lost his battle with ALS in 1993. In his memory, friends of Walter created a foundation in his name to raise funds to be donated to various ALS organizations, including the Les Turner ALSFoundation.
STATEMENT FROM NOVARTIS GENE THERAPIES: OAV301 PROGRAM FOR Please see summary below from Novartis Gene Therapies on the OAV301 program for familial ALS caused by the SOD1 mutation: Novartis Gene Therapies (formerly AveXis) deeply appreciates the collaboration and support of the amyotrophic lateral sclerosis (ALS) community. THE LES TURNER ALS FOUNDATION • CARE, COMMUNITY, CURE The Les Turner ALS Foundation is one of the longest-serving independent ALS groups in the country. For over 40 years, we have taken an individualized approach to ensure each person living with the disease receives the best quality of care and access to the most promising therapies. We treat each person like family, supporting themevery step of
ALS PATIENT SUPPORT SERVICES • LES TURNER ALS FOUNDATION ALS poses steep obstacles -- and sometimes the road can feel lonely. The Les Turner ALS Foundation support services were designed to make things a little easier -- offering community, comfort and tangible resources for people living with ALS and their loved ones. A cure still eludes us -- but help is within reach. Our services include: WHAT IS ALS? • LES TURNER ALS FOUNDATION What is ALS? ALS (Amyotrophic Lateral Sclerosis) is a rapidly progressive, neuromuscular disease that causes muscle weakness in the arms and legs and causes difficulty speaking and swallowing. No two cases of ALS are alike and no two people living with ALS are exactly alike. The symptoms and progression of the disease can vary greatly. ALS FINANCIAL SUPPORT AND BENEFITS • LES TURNER ALS FOUNDATION Grant Programs & Equipment Loans. The Les Turner ALS Foundation offers a variety of financial assistance to people living with ALS and their families. This includes the Walter Boughton Foundation Support Services Grants, the Dan Nelson Respite Care Grant Program, Assistive Technology Applications and the Stuart Rosen ALS Transportation Fund. FREE ALS SUPPORT GROUPS • LES TURNER ALS FOUNDATION An 8-week bereavement group for spouses or partners of people who have died from ALS within the past six months. This group provides support, validation, and education in a supportive setting to those who are grieving the loss of their loved one. Date: Dates to be determined, by invitation only. Time: 6:30 - 8pm. THE ALS LAB OF DR. TEEPU SIDDIQUE • LES TURNER FOUNDATION The Les Turner ALS Research Laboratory led by Teepu Siddique, MD focuses on the clinical and molecular characteristics of ALS and the development of novel therapeutics. The lab was first dedicated by the Les Turner ALS Foundation in 1979 and has been directed by Dr. Siddique since 1991. Dr. Teepu Siddique was the founder of theNeuromuscular
LAB OF DR. HANDE OZDINLER Lab of Dr. Hande Ozdinler. The ALS research laboratory led by Hande Ozdinler, PhD, opened in October 2008. This lab focuses on the motor neurons which reside in the brain and connect with motor neurons in the spinal cord to initiate and control movement. These two motor neuron populations progressively degenerate in ALS patients, andtherefore
ALS WALK FOR LIFE CHICAGO • LES TURNER ALS FOUNDATION Thank you to everyone who participated in our first-ever 2020 virtual ALS Walk for Life! Relive the Facebook Live Event here . Our 2020 Virtual ALS Walk for Life welcomed walkers from 32 states and 3 countries. This truly was one of our biggest Walks ever! For more information, contact events@lesturnerals.org or call 847 679 3311.Walk for Hope.
ALS SUPPORT: WALTER BOUGHTON FOUNDATION • LES TURNER About the Walter Boughton Foundation Support Services Grant Program. Walter Boughton lost his battle with ALS in 1993. In his memory, friends of Walter created a foundation in his name to raise funds to be donated to various ALS organizations, including the Les Turner ALSFoundation.
STATEMENT FROM NOVARTIS GENE THERAPIES: OAV301 PROGRAM FOR Please see summary below from Novartis Gene Therapies on the OAV301 program for familial ALS caused by the SOD1 mutation: Novartis Gene Therapies (formerly AveXis) deeply appreciates the collaboration and support of the amyotrophic lateral sclerosis (ALS) community. DONATE TO THE LES TURNER ALS FOUNDATION Donate by Mail. If you prefer to make your donation by mail or if you wish to hand-deliver it to the Foundation office, our address is: Les Turner ALS Foundation 5550 W. Touhy Avenue, Suite 302 Skokie, IL 60077-3254 For phone or in-person donations, the Foundation office is open Monday through Friday between the hours of 8:30am and 4:30pm. ALS LEARNING SERIES • LES TURNER ALS FOUNDATION ALS Learning SeriesEmpowering Through ALS Education. The Les Turner ALS Foundation’s online ALS Learning Series is aimed at empowering our ALS community through the latest information and insights. Educational webinars and interactive Q&A’s covering a diverse array of topics, from telemedicine to respiratory care, are hosted monthlyby the
CELEBRATION OF LIFE
Celebration of Life Saturday, June 12. This will be a moving, 15-minute online service honoring those we have lost to ALS and includes readings from our CEO, Andrea Pauls Backman, and Support Group Facilitator Anne Lidsky, PhD, who will lead a virtual candle lighting ceremony, and music from Cantor Adam Kahan.. Stay tuned for the Celebration of Life at 11am CDT via Facebook Live! MAY 2021 FOUNDATION ENEWS Our #TakeABreath campaign during ALS Awareness Month in May allows you to share how you “take a breath,” to recognize and honor the resiliency of people living with ALS. Whether you bike, draw, meditate, read or more, turn your hobby and passion into an ALS Awareness Month fundraiser in support of those for whom breathing is achallenge.
THE ALS LAB OF DR. TEEPU SIDDIQUE • LES TURNER FOUNDATION The Les Turner ALS Research Laboratory led by Teepu Siddique, MD focuses on the clinical and molecular characteristics of ALS and the development of novel therapeutics. The lab was first dedicated by the Les Turner ALS Foundation in 1979 and has been directed by Dr. Siddique since 1991. Dr. Teepu Siddique was the founder of theNeuromuscular
FINDING HOPE IN ALS RESEARCH AND CLINICAL TRIALS The Les Turner ALS Foundation has joined with the ALS community in support of two pieces of legislation – the Promising Pathway Act (S. 3872) and the Accelerating Access to Critical Therapies for ALS Act (H. 7071), which is co-sponsored by one of our Illinois members of Congress, Rep. Mike Quigley (IL-5). To learn more the bills, visithere.
"THEY'RE LIKE A SECOND FAMILY..." On Saturday, March 9, we honored Mindy Evans-Williams with the Hope Through Caring Award at our annual Hope Through Caring Gala. Mindy has been living with ALS for over two decades, supported by the Foundation every step of the way. ALS REVERSAL: DR. RICHARD BEDLACK'S UNIQUE APPROACH ALS Reversal: Dr. Richard Bedlack’s Unique Approach. Dr. Richard Bedlack, Professor of Medicine/Neurology at Duke University, Director of the Duke ALS Clinic, and Chief of Neurology at the Durham Veterans Affairs Medical Center, dedicates his life’s work to researching alternative and innovative methods to cure ALS. Deeming himself the 2021 HOPE THROUGH CARING GALA 2021 Hope Through Caring Gala Saturday, March 20, 2021 7:00PM Virtual Event Frequently Asked Questions What is a Virtual Gala? This year we are bringing the 34th Annual Hope Through Caring Gala to you. Ourvirtual platform
ALS: MANAGEMENT PROBLEMS Noninvasive ventilation is proved to extend life in people living with ALS on average 205 days.2 All patients with ALS qualifying and requiring noninvasive ventilation must be initi- THE LES TURNER ALS FOUNDATION • CARE, COMMUNITY, CURE The Les Turner ALS Foundation is one of the longest-serving independent ALS groups in the country. For over 40 years, we have taken an individualized approach to ensure each person living with the disease receives the best quality of care and access to the most promising therapies. We treat each person like family, supporting themevery step of
ALS PATIENT SUPPORT SERVICES • LES TURNER ALS FOUNDATION ALS poses steep obstacles -- and sometimes the road can feel lonely. The Les Turner ALS Foundation support services were designed to make things a little easier -- offering community, comfort and tangible resources for people living with ALS and their loved ones. A cure still eludes us -- but help is within reach. Our services include: VIRTUAL HOPE THROUGH CARING GALA Saturday, March 20, 2021Virtual Event7:00pm. Every Spring, the Les Turner ALS Foundation hosts the Hope Through Caring Gala. In 2021, we’re hosting our first-ever virtual gala, and bringing this exciting evening to you! Our virtual gala includes entertainment, an online auction, virtual paddle raise, and an optional dinner packageall from
COVID-19 & ALS: FAQS • LES TURNER ALS FOUNDATION Currently, our Lois Insolia ALS Clinic is accepting both in-person visits and Telehealth visits but encourages Telehealth visits if there is not a current need to meet in person. To make an appointment at the Lois Insolia ALS Clinic, please call 312 695 7950. Options for virtual care include a phone consult, video visit, or MyChart encounter. FREE ALS SUPPORT GROUPS • LES TURNER ALS FOUNDATION An 8-week bereavement group for spouses or partners of people who have died from ALS within the past six months. This group provides support, validation, and education in a supportive setting to those who are grieving the loss of their loved one. Date: Dates to be determined, by invitation only. Time: 6:30 - 8pm. LAB OF DR. HANDE OZDINLER Lab of Dr. Hande Ozdinler. The ALS research laboratory led by Hande Ozdinler, PhD, opened in October 2008. This lab focuses on the motor neurons which reside in the brain and connect with motor neurons in the spinal cord to initiate and control movement. These two motor neuron populations progressively degenerate in ALS patients, andtherefore
ALS SUPPORT: WALTER BOUGHTON FOUNDATION • LES TURNER About the Walter Boughton Foundation Support Services Grant Program. Walter Boughton lost his battle with ALS in 1993. In his memory, friends of Walter created a foundation in his name to raise funds to be donated to various ALS organizations, including the Les Turner ALSFoundation.
2021 HOPE THROUGH CARING GALA 2021 Hope Through Caring Gala Saturday, March 20, 2021 7:00PM Virtual Event Frequently Asked Questions What is a Virtual Gala? This year we are bringing the 34th Annual Hope Through Caring Gala to you. Ourvirtual platform
BARRINGTON SUPPORT GROUP Meets the Second Saturday of each month from 10:30am – 12:30pm Facilitator(s): Karen Raley Steffens, RN, CHPN, CCM RSVP: Please email us at supportgroup@lesturnerals.org to RSVP STATEMENT FROM NOVARTIS GENE THERAPIES: OAV301 PROGRAM FOR Please see summary below from Novartis Gene Therapies on the OAV301 program for familial ALS caused by the SOD1 mutation: Novartis Gene Therapies (formerly AveXis) deeply appreciates the collaboration and support of the amyotrophic lateral sclerosis (ALS) community. THE LES TURNER ALS FOUNDATION • CARE, COMMUNITY, CURE The Les Turner ALS Foundation is one of the longest-serving independent ALS groups in the country. For over 40 years, we have taken an individualized approach to ensure each person living with the disease receives the best quality of care and access to the most promising therapies. We treat each person like family, supporting themevery step of
ALS PATIENT SUPPORT SERVICES • LES TURNER ALS FOUNDATION ALS poses steep obstacles -- and sometimes the road can feel lonely. The Les Turner ALS Foundation support services were designed to make things a little easier -- offering community, comfort and tangible resources for people living with ALS and their loved ones. A cure still eludes us -- but help is within reach. Our services include: VIRTUAL HOPE THROUGH CARING GALA Saturday, March 20, 2021Virtual Event7:00pm. Every Spring, the Les Turner ALS Foundation hosts the Hope Through Caring Gala. In 2021, we’re hosting our first-ever virtual gala, and bringing this exciting evening to you! Our virtual gala includes entertainment, an online auction, virtual paddle raise, and an optional dinner packageall from
COVID-19 & ALS: FAQS • LES TURNER ALS FOUNDATION Currently, our Lois Insolia ALS Clinic is accepting both in-person visits and Telehealth visits but encourages Telehealth visits if there is not a current need to meet in person. To make an appointment at the Lois Insolia ALS Clinic, please call 312 695 7950. Options for virtual care include a phone consult, video visit, or MyChart encounter. FREE ALS SUPPORT GROUPS • LES TURNER ALS FOUNDATION An 8-week bereavement group for spouses or partners of people who have died from ALS within the past six months. This group provides support, validation, and education in a supportive setting to those who are grieving the loss of their loved one. Date: Dates to be determined, by invitation only. Time: 6:30 - 8pm. LAB OF DR. HANDE OZDINLER Lab of Dr. Hande Ozdinler. The ALS research laboratory led by Hande Ozdinler, PhD, opened in October 2008. This lab focuses on the motor neurons which reside in the brain and connect with motor neurons in the spinal cord to initiate and control movement. These two motor neuron populations progressively degenerate in ALS patients, andtherefore
ALS SUPPORT: WALTER BOUGHTON FOUNDATION • LES TURNER About the Walter Boughton Foundation Support Services Grant Program. Walter Boughton lost his battle with ALS in 1993. In his memory, friends of Walter created a foundation in his name to raise funds to be donated to various ALS organizations, including the Les Turner ALSFoundation.
2021 HOPE THROUGH CARING GALA 2021 Hope Through Caring Gala Saturday, March 20, 2021 7:00PM Virtual Event Frequently Asked Questions What is a Virtual Gala? This year we are bringing the 34th Annual Hope Through Caring Gala to you. Ourvirtual platform
BARRINGTON SUPPORT GROUP Meets the Second Saturday of each month from 10:30am – 12:30pm Facilitator(s): Karen Raley Steffens, RN, CHPN, CCM RSVP: Please email us at supportgroup@lesturnerals.org to RSVP STATEMENT FROM NOVARTIS GENE THERAPIES: OAV301 PROGRAM FOR Please see summary below from Novartis Gene Therapies on the OAV301 program for familial ALS caused by the SOD1 mutation: Novartis Gene Therapies (formerly AveXis) deeply appreciates the collaboration and support of the amyotrophic lateral sclerosis (ALS) community. ALS - LES TURNER ALS FOUNDATION Navigation. What is ALS? Support Services. ALS Learning Series; Coronavirus (COVID-19) Information & Updates. COVID-19 & ALS: Frequently Asked Questions ALS PATIENT SUPPORT SERVICES • LES TURNER ALS FOUNDATION ALS poses steep obstacles -- and sometimes the road can feel lonely. The Les Turner ALS Foundation support services were designed to make things a little easier -- offering community, comfort and tangible resources for people living with ALS and their loved ones. A cure still eludes us -- but help is within reach. Our services include: WHAT IS ALS? • LES TURNER ALS FOUNDATION What is ALS? ALS (Amyotrophic Lateral Sclerosis) is a rapidly progressive, neuromuscular disease that causes muscle weakness in the arms and legs and causes difficulty speaking and swallowing. No two cases of ALS are alike and no two people living with ALS are exactly alike. The symptoms and progression of the disease can vary greatly. LES TURNER ALS FOUNDATION • DONATION, VOLUNTEERING AND The Les Turner ALS Foundation has a wide variety of ways that you can get involved and make a difference for people living with ALS and their families. Whether it be through a donation , volunteering, participating in any of our annual signature events, or creating your own fundraising and awareness event, the opportunities are endless! DONATE TO THE LES TURNER ALS FOUNDATION Donate by Mail. If you prefer to make your donation by mail or if you wish to hand-deliver it to the Foundation office, our address is: Les Turner ALS Foundation 5550 W. Touhy Avenue, Suite 302 Skokie, IL 60077-3254 For phone or in-person donations, the Foundation office is open Monday through Friday between the hours of 8:30am and 4:30pm. THE ALS LAB OF DR. TEEPU SIDDIQUE • LES TURNER FOUNDATION The Les Turner ALS Research Laboratory led by Teepu Siddique, MD focuses on the clinical and molecular characteristics of ALS and the development of novel therapeutics. The lab was first dedicated by the Les Turner ALS Foundation in 1979 and has been directed by Dr. Siddique since 1991. Dr. Teepu Siddique was the founder of theNeuromuscular
"THEY'RE LIKE A SECOND FAMILY..." On Saturday, March 9, we honored Mindy Evans-Williams with the Hope Through Caring Award at our annual Hope Through Caring Gala. Mindy has been living with ALS for over two decades, supported by the Foundation every step of the way. 2021 HOPE THROUGH CARING GALA 2021 Hope Through Caring Gala Saturday, March 20, 2021 7:00PM Virtual Event Frequently Asked Questions What is a Virtual Gala? This year we are bringing the 34th Annual Hope Through Caring Gala to you. Ourvirtual platform
RESOURCE LIST FOR ALS PATIENTS AND FAMILIES ALS is not a curable disease, but it is a treatable one. Treatments are now available that can make a major difference in prolonging life and enhancing the quality of life for people with the diseaseand there are treatments for many of the ALS REVERSAL: DR. RICHARD BEDLACK'S UNIQUE APPROACH ALS Reversal: Dr. Richard Bedlack’s Unique Approach. Dr. Richard Bedlack, Professor of Medicine/Neurology at Duke University, Director of the Duke ALS Clinic, and Chief of Neurology at the Durham Veterans Affairs Medical Center, dedicates his life’s work to researching alternative and innovative methods to cure ALS. Deeming himself the THE LES TURNER ALS FOUNDATION • CARE, COMMUNITY, CURE The Les Turner ALS Foundation is one of the longest-serving independent ALS groups in the country. For over 40 years, we have taken an individualized approach to ensure each person living with the disease receives the best quality of care and access to the most promising therapies. We treat each person like family, supporting themevery step of
ALS - LES TURNER ALS FOUNDATIONLES TURNER ALS FOUNDATION CHICAGOTHE ALS FOUNDATIONALS RESEARCH FOUNDATIONSALS WALK FOR LIFENORTHWESTERNALS CLINIC
Navigation. What is ALS? Support Services. ALS Learning Series; Coronavirus (COVID-19) Information & Updates. COVID-19 & ALS: Frequently Asked Questions ALS PATIENT SUPPORT SERVICES • LES TURNER ALS FOUNDATIONLES TURNER ALS FOUNDATION CHICAGOLES TURNER ALS FOUNDATION CHICAGO ALS poses steep obstacles -- and sometimes the road can feel lonely. The Les Turner ALS Foundation support services were designed to make things a little easier -- offering community, comfort and tangible resources for people living with ALS and their loved ones. A cure still eludes us -- but help is within reach. Our services include: ALS SUPPORT: LES TURNER ALS FOUNDATION RESOURCE GUIDE The third edition of the Les Turner ALS Foundation Resource Guide provides information and resources for people living with ALS, family members, caregivers and health professionals. Assembled by the staff of the Lois Insolia ALS Clinic at the Les Turner ALS Center at Northwestern Medicine and members of the Support Services Team, theResource
ALS FINANCIAL SUPPORT AND BENEFITS • LES TURNER ALS FOUNDATION Grant Programs & Equipment Loans. The Les Turner ALS Foundation offers a variety of financial assistance to people living with ALS and their families. This includes the Walter Boughton Foundation Support Services Grants, the Dan Nelson Respite Care Grant Program, Assistive Technology Applications and the Stuart Rosen ALS Transportation Fund. ALS WALK FOR LIFE CHICAGO • LES TURNER ALS FOUNDATIONLES TURNER ALS FOUNDATIONLES TURNER ALS FOUNDATIONLES TURNER ALSLES TURNER ALS FOUNDATION CHICAGOLES TURNER NEWNAN Thank you to everyone who participated in our first-ever 2020 virtual ALS Walk for Life! Relive the Facebook Live Event here . Our 2020 Virtual ALS Walk for Life welcomed walkers from 32 states and 3 countries. This truly was one of our biggest Walks ever! For more information, contact events@lesturnerals.org or call 847 679 3311.Walk for Hope.
LAB OF DR. HANDE OZDINLER Lab of Dr. Hande Ozdinler. The ALS research laboratory led by Hande Ozdinler, PhD, opened in October 2008. This lab focuses on the motor neurons which reside in the brain and connect with motor neurons in the spinal cord to initiate and control movement. These two motor neuron populations progressively degenerate in ALS patients, andtherefore
BARRINGTON SUPPORT GROUP Meets the Second Saturday of each month from 10:30am – 12:30pm Facilitator(s): Karen Raley Steffens, RN, CHPN, CCM RSVP: Please email us at supportgroup@lesturnerals.org to RSVP ALS SUPPORT: WALTER BOUGHTON FOUNDATION • LES TURNERALS SUPPORT GROUP TOPICSALS SUPPORT GROUPS NEAR MEALS OF MICHIGANLOCAL ALS SUPPORT GROUPSONLINE ALS SUPPORT GROUP About the Walter Boughton Foundation Support Services Grant Program. Walter Boughton lost his battle with ALS in 1993. In his memory, friends of Walter created a foundation in his name to raise funds to be donated to various ALS organizations, including the Les Turner ALSFoundation.
RESOURCE LIST FOR ALS PATIENTS AND FAMILIES ALS is not a curable disease, but it is a treatable one. Treatments are now available that can make a major difference in prolonging life and enhancing the quality of life for people with the diseaseand there are treatments for many of the THE LES TURNER ALS FOUNDATION • CARE, COMMUNITY, CURE The Les Turner ALS Foundation is one of the longest-serving independent ALS groups in the country. For over 40 years, we have taken an individualized approach to ensure each person living with the disease receives the best quality of care and access to the most promising therapies. We treat each person like family, supporting themevery step of
ALS - LES TURNER ALS FOUNDATIONLES TURNER ALS FOUNDATION CHICAGOTHE ALS FOUNDATIONALS RESEARCH FOUNDATIONSALS WALK FOR LIFENORTHWESTERNALS CLINIC
Navigation. What is ALS? Support Services. ALS Learning Series; Coronavirus (COVID-19) Information & Updates. COVID-19 & ALS: Frequently Asked Questions ALS PATIENT SUPPORT SERVICES • LES TURNER ALS FOUNDATIONLES TURNER ALS FOUNDATION CHICAGOLES TURNER ALS FOUNDATION CHICAGO ALS poses steep obstacles -- and sometimes the road can feel lonely. The Les Turner ALS Foundation support services were designed to make things a little easier -- offering community, comfort and tangible resources for people living with ALS and their loved ones. A cure still eludes us -- but help is within reach. Our services include: ALS SUPPORT: LES TURNER ALS FOUNDATION RESOURCE GUIDE The third edition of the Les Turner ALS Foundation Resource Guide provides information and resources for people living with ALS, family members, caregivers and health professionals. Assembled by the staff of the Lois Insolia ALS Clinic at the Les Turner ALS Center at Northwestern Medicine and members of the Support Services Team, theResource
ALS FINANCIAL SUPPORT AND BENEFITS • LES TURNER ALS FOUNDATION Grant Programs & Equipment Loans. The Les Turner ALS Foundation offers a variety of financial assistance to people living with ALS and their families. This includes the Walter Boughton Foundation Support Services Grants, the Dan Nelson Respite Care Grant Program, Assistive Technology Applications and the Stuart Rosen ALS Transportation Fund. ALS WALK FOR LIFE CHICAGO • LES TURNER ALS FOUNDATIONLES TURNER ALS FOUNDATIONLES TURNER ALS FOUNDATIONLES TURNER ALSLES TURNER ALS FOUNDATION CHICAGOLES TURNER NEWNAN Thank you to everyone who participated in our first-ever 2020 virtual ALS Walk for Life! Relive the Facebook Live Event here . Our 2020 Virtual ALS Walk for Life welcomed walkers from 32 states and 3 countries. This truly was one of our biggest Walks ever! For more information, contact events@lesturnerals.org or call 847 679 3311.Walk for Hope.
LAB OF DR. HANDE OZDINLER Lab of Dr. Hande Ozdinler. The ALS research laboratory led by Hande Ozdinler, PhD, opened in October 2008. This lab focuses on the motor neurons which reside in the brain and connect with motor neurons in the spinal cord to initiate and control movement. These two motor neuron populations progressively degenerate in ALS patients, andtherefore
BARRINGTON SUPPORT GROUP Meets the Second Saturday of each month from 10:30am – 12:30pm Facilitator(s): Karen Raley Steffens, RN, CHPN, CCM RSVP: Please email us at supportgroup@lesturnerals.org to RSVP ALS SUPPORT: WALTER BOUGHTON FOUNDATION • LES TURNERALS SUPPORT GROUP TOPICSALS SUPPORT GROUPS NEAR MEALS OF MICHIGANLOCAL ALS SUPPORT GROUPSONLINE ALS SUPPORT GROUP About the Walter Boughton Foundation Support Services Grant Program. Walter Boughton lost his battle with ALS in 1993. In his memory, friends of Walter created a foundation in his name to raise funds to be donated to various ALS organizations, including the Les Turner ALSFoundation.
RESOURCE LIST FOR ALS PATIENTS AND FAMILIES ALS is not a curable disease, but it is a treatable one. Treatments are now available that can make a major difference in prolonging life and enhancing the quality of life for people with the diseaseand there are treatments for many of the ALS - LES TURNER ALS FOUNDATION What is ALS? Support Services. ALS Learning Series; Coronavirus (COVID-19) Information & Updates. COVID-19 & ALS: Frequently Asked Questions; Care Recommendations for Respiratory Issues LES TURNER ALS FOUNDATION • DONATION, VOLUNTEERING AND The Les Turner ALS Foundation has a wide variety of ways that you can get involved and make a difference for people living with ALS and their families. Whether it be through a donation , volunteering, participating in any of our annual signature events, or creating your own fundraising and awareness event, the opportunities are endless! WHAT IS ALS? • LES TURNER ALS FOUNDATION What is ALS? ALS (Amyotrophic Lateral Sclerosis) is a rapidly progressive, neuromuscular disease that causes muscle weakness in the arms and legs and causes difficulty speaking and swallowing. No two cases of ALS are alike and no two people living with ALS are exactly alike. The symptoms and progression of the disease can vary greatly. JUNE 2021 FOUNDATION ENEWS Join longtime friends of our Les Turner ALS family, Jonathan Eig, acclaimed New York Times best-selling author of 'Luckiest Man: The Life and Death of Lou Gehrig,' and renowned Chicago DJ and radio personality Lin Brehmer of XRT93 for a very special online program to commemorate the first national Lou Gehrig Day on Wednesday, June 2 at12pm CDT.
DONATE TO THE LES TURNER ALS FOUNDATION Donate by Mail. If you prefer to make your donation by mail or if you wish to hand-deliver it to the Foundation office, our address is: Les Turner ALS Foundation 5550 W. Touhy Avenue, Suite 302 Skokie, IL 60077-3254 For phone or in-person donations, the Foundation office is open Monday through Friday between the hours of 8:30am and 4:30pm. FREE ALS SUPPORT GROUPS • LES TURNER ALS FOUNDATION An 8-week bereavement group for spouses or partners of people who have died from ALS within the past six months. This group provides support, validation, and education in a supportive setting to those who are grieving the loss of their loved one. Date: Dates to be determined, by invitation only. Time: 6:30 - 8pm. THE ALS LAB OF DR. TEEPU SIDDIQUE • LES TURNER FOUNDATION The Les Turner ALS Research Laboratory led by Teepu Siddique, MD focuses on the clinical and molecular characteristics of ALS and the development of novel therapeutics. The lab was first dedicated by the Les Turner ALS Foundation in 1979 and has been directed by Dr. Siddique since 1991. Dr. Teepu Siddique was the founder of theNeuromuscular
"THEY'RE LIKE A SECOND FAMILY..." On Saturday, March 9, we honored Mindy Evans-Williams with the Hope Through Caring Award at our annual Hope Through Caring Gala. Mindy has been living with ALS for over two decades, supported by the Foundation every step of the way. 2020 VIRTUAL ALS WALK FOR LIFE 2020 Virtual ALS Walk for Life - Les Turner ALS Foundation. Toggle navigation. Register Participate in the ALS Walk for Life. Donate Help people with ALS. Get Inspired Meet other teams. Captain & RESOURCE LIST FOR ALS PATIENTS AND FAMILIES ALS is not a curable disease, but it is a treatable one. Treatments are now available that can make a major difference in prolonging life and enhancing the quality of life for people with the diseaseand there are treatments for many of the__ __
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COVID-19
Information & Updates THE LEADER IN COMPREHENSIVE ALS CARE IN CHICAGOLAND. Although we’re one of the largest independent ALS groups in the country, we treat each person like family and we’re committed to supporting them every step of the way. Our individualized approach ensures each person living with the disease receives the best quality of care, and our local community of support provides their loved ones with answers and encouragement. Our Les Turner ALS Centerat Northwestern
Medicine is led by the most well-respected and successful clinicians and researchers in the field, advancing vital care and research in pursuit of life-enhancing treatments and a cure. Learn MoreMake a Donation
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INDIVIDUALIZED CARE, A LOCAL COMMUNITY OF SUPPORT AND HOPE THROUGHSCIENTIFIC RESEARCH
ALS is scary. Really scary. The progression of ALS can mean tomorrow is often worse than today. As a result, people living with ALS are overwhelmed and unsure of what questions to ask and what to do next. The Les Turner ALS Foundation exists to care for those affected by the disease, answer their questions, support them and their loved ones and provide hope through scientific research.WHAT IS ALS?
ALS (Amyotrophic Lateral Sclerosis) is a terminal progressive disease that causes muscle weakness, difficulty speaking and swallowing and, generally, complete paralysis. ALS is scary. Really scary. But we’re here to answer your questions, provide encouragement and ensure you, and those you love, feel comforted and confident as you progress in your ALS journey.More Information
------------------------- CORONAVIRUS (COVID-19) INFORMATION & UPDATES The safety of our Les Turner ALS family, especially those living with ALS, is our top priority. People living with ALS are at an increased risk of respiratory problems associated with viral and bacterialinfections.
DUE TO THE CURRENT CORONAVIRUS (COVID-19) OUTBREAK WE HAVE PAUSED ALL IN-PERSON LES TURNER ALS FOUNDATION SUPPORT SERVICE VISITS FROM OUR NURSES AND SOCIAL WORKERS AND ALL IN-PERSON SUPPORT GROUPS UNTILFURTHER NOTICE.
Updates & Resources
------------------------- LATEST NEWS & RESOURCES*
MAY 2020 FOUNDATION ENEWSMay 5, 2020
Be a Giver for #GivingTuesdayNow Today is #GivingTuesdayNow, a new global day of giving as an emergency response to the …Read More »*
INTRODUCING THE JOAN & PAUL RUBSCHLAGER PROFESSORSHIPApril 23, 2020
When Paul Rubschlager’s father was diagnosed with ALS in 1974, little was known about the cause of ALS and even …Read More »*
APRIL 2020 EVENTS ENEWSApril 14, 2020
Tag for ALS From Home As you can see from our video, we’re doing Tag Days a bit differently this …Read More » ------------------------- __ SEE ALL NEWS & RESOURCES ------------------------- WE TREAT EACH PERSON LIKE FAMILY AND WE’RE COMMITTED TO SUPPORTING THEM EVERY STEP OF THE WAY. YOU ARE THE REASON WE EXIST Over the last 40 years, you have helped us build an ALS community in Chicagoland that feels like family. And just as each member of a family is unique, so is our care for each person living with ALS. We exist to provide care for those affected by ALS, answer their questions, support their loved ones and provide hope through scientific research. -------------------------*
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SUPPORT SERVICES
We provide a personalized approach to treatment and care–preparing people living with ALS to navigate their difficult journey and supporting them every step of the way. Learn More*
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LES TURNER ALS CENTER AT NORTHWESTERN MEDICINE Our Les Turner ALS Center at Northwestern Medicine effectively connects the worlds of research and patient support to ensure the best care is provided and the brightest minds are working to find a cure.Learn More
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EDUCATION & EVENTS
Through a variety of special events and educational opportunities, we’re increasing awareness and education of ALS locally and nationwide, because we believe progress is achieved by working together. Find an Event ------------------------- LES TURNER ALS FOUNDATION info@lesturnerals.org847 679 3311
5550 W Touhy Avenue, Suite 302; Skokie, IL60077-3254
2020 Les Turner Amyotrophic Lateral Sclerosis Foundation, Ltd. The Les Turner ALS Foundation is a non-profit corporation under section 501(c)(3) of the U.S. Internal Revenue Code, EIN 36-2916466ACCREDITATION
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