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JO'S CERVICAL CANCER TRUST Jo’s Cervical Cancer Trust is the UK’s leading cervical cancer charity. We campaign for change, provide support and trustworthy information at every step. CERVICAL SCREENING (SMEAR TEST) Cervical screening (smear test) Find out what cervical screening is for, who is invited and what to expect at the appointment. Your world might look different because of coronavirus (COVID-19), so our How it works now series aims to help you make sense of how our healthcare system works at the moment. BARRIERS TO CERVICAL SCREENING The information on this page is aimed at professionals who want to understand barriers to cervical screening. What do we mean by a ‘barrier’? There is a broad and complex range of reasons why women and people with a cervix find cervical screening difficult. IMPROVING ACCESS TO CERVICAL SCREENING Improving access to cervical screening. Attending cervical screening is a patient choice, but some patients may not have that choice available for many reasons – from lack of understanding through to inappropriate equipment or adjustments. Understanding these patients and evaluating how you can offer them the correct support can help

improve

FACTSHEET: HPV

Jo’s Cervical Cancer Trust Helpline: 0808 802 8000 T 020 7250 8311 E info@jostrust.org.uk www.jostrust.org.uk Registered in England and Wales Company Limited by Guarantee: 7111375 LET’S TALK ABOUT…ACCESSING SMEAR TESTS WHEN YOU HAVE A Smear tests can be difficult for a variety of reasons, but some women can face additional barriers to getting tested. This includes women with a range of physical disabilities such as muscular dystrophy or multiple sclerosis. While in some areas women are able to access smear tests, whether through home visits, equipped GPs or provision to attend in other settings such hospitals, this is ROBERT MUSIC, CHIEF EXECUTIVE I am addressing this to everyone working in our NHS, in public health, in social care. Whether you work in a laboratory, general practice, a hospital or are supporting any aspect of our health and care system in your home - I want to thank you and say the team at Jo’s Cervical Cancer Trust are right beside you. Categories: coronavirus support. JADE GOODY'S LEGACY, 10 YEARS ON COMMUNITY ENGAGEMENT RESEARCH PROJECT 4 Executive summary Every year in the UK, around 3,200 women will be diagnosed with cervical cancer. It is the most common cancer in women

under 35.

CERVICAL SCREENING, CERVICAL CANCER, AND INEQUALITY. 7 Operated by Public Health England Cervical cancer: epidemiological context •Mortality rates reduced by 60% over the past 20 years •From 5.8 to 2.2 per 100,000 female population JO'S CERVICAL CANCER TRUST Jo’s Cervical Cancer Trust is the UK’s leading cervical cancer charity. We campaign for change, provide support and trustworthy information at every step. CERVICAL SCREENING (SMEAR TEST) Cervical screening (smear test) Find out what cervical screening is for, who is invited and what to expect at the appointment. Your world might look different because of coronavirus (COVID-19), so our How it works now series aims to help you make sense of how our healthcare system works at the moment. BARRIERS TO CERVICAL SCREENING The information on this page is aimed at professionals who want to understand barriers to cervical screening. What do we mean by a ‘barrier’? There is a broad and complex range of reasons why women and people with a cervix find cervical screening difficult. IMPROVING ACCESS TO CERVICAL SCREENING Improving access to cervical screening. Attending cervical screening is a patient choice, but some patients may not have that choice available for many reasons – from lack of understanding through to inappropriate equipment or adjustments. Understanding these patients and evaluating how you can offer them the correct support can help

improve

FACTSHEET: HPV

Jo’s Cervical Cancer Trust Helpline: 0808 802 8000 T 020 7250 8311 E info@jostrust.org.uk www.jostrust.org.uk Registered in England and Wales Company Limited by Guarantee: 7111375 LET’S TALK ABOUT…ACCESSING SMEAR TESTS WHEN YOU HAVE A Smear tests can be difficult for a variety of reasons, but some women can face additional barriers to getting tested. This includes women with a range of physical disabilities such as muscular dystrophy or multiple sclerosis. While in some areas women are able to access smear tests, whether through home visits, equipped GPs or provision to attend in other settings such hospitals, this is ROBERT MUSIC, CHIEF EXECUTIVE I am addressing this to everyone working in our NHS, in public health, in social care. Whether you work in a laboratory, general practice, a hospital or are supporting any aspect of our health and care system in your home - I want to thank you and say the team at Jo’s Cervical Cancer Trust are right beside you. Categories: coronavirus support. JADE GOODY'S LEGACY, 10 YEARS ON COMMUNITY ENGAGEMENT RESEARCH PROJECT 4 Executive summary Every year in the UK, around 3,200 women will be diagnosed with cervical cancer. It is the most common cancer in women

under 35.

CERVICAL SCREENING, CERVICAL CANCER, AND INEQUALITY. 7 Operated by Public Health England Cervical cancer: epidemiological context •Mortality rates reduced by 60% over the past 20 years •From 5.8 to 2.2 per 100,000 female population IMPROVING ACCESS TO CERVICAL SCREENING Improving access to cervical screening. Attending cervical screening is a patient choice, but some patients may not have that choice available for many reasons – from lack of understanding through to inappropriate equipment or adjustments. Understanding these patients and evaluating how you can offer them the correct support can help

improve

WHO CAN HAVE THE HPV VACCINE? Transgender people. If you are a trans man or trans woman, you may be able to have the HPV vaccine free: Trans men may be able to have the HPV vaccine free if they have sex with other men and are age 45 and under. Trans women may be able to have the HPV vaccine free if their risk of getting HPV is the same as men who have sex with men. COLPOSCOPY | INFORMATION | JO'S CERVICAL CANCER TRUST Colposcopy. Understand why you have been invited to colposcopy, what happens at your appointment, and the different results you can get. Your world might look different because of coronavirus (COVID-19), so our How it works now series aims to help you make sense of how our healthcare system works at the moment. If you see the logo, it means

the

CERVICAL SCREENING AWARENESS WEEK 2021 Join us during Cervical Screening Awareness Week to help: Reduce confusion about HPV. De-mystify cervical screening results. Shout about the importance of cervical screening. “The results showed I had cell changes and HPV. I had no idea what HPV was or how I had got

it”.

RISKS AND SIDE EFFECTS OF BRACHYTHERAPY Brachytherapy can have a long-term impact on your body and day-to-day life. It can cause effects that start or last for months or years after treatment. In some cases, these effects can last for the rest of your life. You may hear these effects called pelvic radiation disease or PRD. They can include: early menopause. bladder and bowel problems. HUMAN PAPILLOMAVIRUS (HPV) Human papillomavirus (HPV) Understand what HPV is and how it is linked to cell changes and cervical cancer. If you have HPV and your next cervical screening appointment has been cancelled, we know you may be worried. We have created a hub of information and support, covering topics including HPV and cervical screening. NERVE DAMAGE AFTER PELVIC RADIOTHERAPY The lumbar plexus is a collection of nerves that relate to the back, stomach and legs. Pelvic radiotherapy can damage these nerves and cause symptoms including pain, weakness and changes to mobility over time. Research shows that RILP is very rare after pelvic radiotherapy. We need more research to understand RILP, as well as find effective ROBERT MUSIC, CHIEF EXECUTIVE I am addressing this to everyone working in our NHS, in public health, in social care. Whether you work in a laboratory, general practice, a hospital or are supporting any aspect of our health and care system in your home - I want to thank you and say the team at Jo’s Cervical Cancer Trust are right beside you. Categories: coronavirus support. CANCER AND ITS IMPACT ON RELATIONSHIPS Both of you may feel anxious about resuming sexual activity and some of this anxiety is a normal part of going through the diagnosis and subsequent treatment for cervical cancer. You may feel worried about hurting your partner or concerned about damaging the area in which she has received treatment. LET’S TALK ABOUT IT… SOMETIMES SMEAR TESTS ARE PAINFUL Smear tests, or cervical screening, are regular checks to make sure there are no changes to the cells of your cervix.A nurse uses a speculum and a small brush to take a sample of cells from the cervix that are sent away and tested. For a lot of people, it’s a five minute appointment that may be slightly uncomfortable and embarrassing, but is over and done with quickly. JO'S CERVICAL CANCER TRUST Jo’s Cervical Cancer Trust is the UK’s leading cervical cancer charity. We campaign for change, provide support and trustworthy information at every step. JO'S CERVICAL CANCER TRUST ONLINE FORUM Welcome to the Jo’s Cervical Cancer Trust Forum! Our forum is a place for anyone with questions about, or personal experience of, any aspect of cervical cancer or cell changes (abnormal cells). This includes partners, family members and friends. Whether you are looking for support, have a question or want to share your story, it is a

great

CERVICAL SCREENING AWARENESS WEEK 2021 Join us during Cervical Screening Awareness Week to help: Reduce confusion about HPV. De-mystify cervical screening results. Shout about the importance of cervical screening. “The results showed I had cell changes and HPV. I had no idea what HPV was or how I had got

it”.

BARRIERS TO CERVICAL SCREENING The information on this page is aimed at professionals who want to understand barriers to cervical screening. What do we mean by a ‘barrier’? There is a broad and complex range of reasons why women and people with a cervix find cervical screening difficult. HUMAN PAPILLOMAVIRUS (HPV) Human papillomavirus (HPV) Understand what HPV is and how it is linked to cell changes and cervical cancer. If you have HPV and your next cervical screening appointment has been cancelled, we know you may be worried. We have created a hub of information and support, covering topics including HPV and cervical screening. ROBERT MUSIC, CHIEF EXECUTIVE I am addressing this to everyone working in our NHS, in public health, in social care. Whether you work in a laboratory, general practice, a hospital or are supporting any aspect of our health and care system in your home - I want to thank you and say the team at Jo’s Cervical Cancer Trust are right beside you. Categories: coronavirus support. CERVICAL SCREENING FOR WOMEN WITH PHYSICAL DISABILITIES Key findings. 88% said it is harder for women with physical disabilities to attend or access cervical screening. 63% said that they have been unable to attend cervical screening because of their disability. 49% said that they have chosen not to attend cervical screening in the past for reasons such as previous bad experiences

related to their

COMMUNITY ENGAGEMENT RESEARCH PROJECT 4 Executive summary Every year in the UK, around 3,200 women will be diagnosed with cervical cancer. It is the most common cancer in women

under 35.

ODD SMELL AFTER LLETZ Hi I had my LLETZ procedure on Friday and apart from a little cramping on Friday eve when I assumed the anaesthetic had worn off I have been absolutely fine. I''ve had no pain, no bleeding etc. I have had a very little, light brown discharge but nothing to bother me over. However over the past 2 days I have noticed an odd smell and i'm not sure if I need to be worrying. POST LLETZ SMELL -WARNING TMI!! Sorry if any of you are squeamish or are eating your dinner but I'm unsure as to whether I should bother trying to get an appointment with my doctor if my problem is normal.I had a Colposcopy and LLETZ 8 days ago, from which I had only a little bleeding and pain after. Since I have just had a very watery discharge with the commonly mentioned 'black bits' this doesn't concern me too much, but I JO'S CERVICAL CANCER TRUST Jo’s Cervical Cancer Trust is the UK’s leading cervical cancer charity. We campaign for change, provide support and trustworthy information at every step. JO'S CERVICAL CANCER TRUST ONLINE FORUM Welcome to the Jo’s Cervical Cancer Trust Forum! Our forum is a place for anyone with questions about, or personal experience of, any aspect of cervical cancer or cell changes (abnormal cells). This includes partners, family members and friends. Whether you are looking for support, have a question or want to share your story, it is a

great

CERVICAL SCREENING AWARENESS WEEK 2021 Join us during Cervical Screening Awareness Week to help: Reduce confusion about HPV. De-mystify cervical screening results. Shout about the importance of cervical screening. “The results showed I had cell changes and HPV. I had no idea what HPV was or how I had got

it”.

BARRIERS TO CERVICAL SCREENING The information on this page is aimed at professionals who want to understand barriers to cervical screening. What do we mean by a ‘barrier’? There is a broad and complex range of reasons why women and people with a cervix find cervical screening difficult. HUMAN PAPILLOMAVIRUS (HPV) Human papillomavirus (HPV) Understand what HPV is and how it is linked to cell changes and cervical cancer. If you have HPV and your next cervical screening appointment has been cancelled, we know you may be worried. We have created a hub of information and support, covering topics including HPV and cervical screening. ROBERT MUSIC, CHIEF EXECUTIVE I am addressing this to everyone working in our NHS, in public health, in social care. Whether you work in a laboratory, general practice, a hospital or are supporting any aspect of our health and care system in your home - I want to thank you and say the team at Jo’s Cervical Cancer Trust are right beside you. Categories: coronavirus support. CERVICAL SCREENING FOR WOMEN WITH PHYSICAL DISABILITIES Key findings. 88% said it is harder for women with physical disabilities to attend or access cervical screening. 63% said that they have been unable to attend cervical screening because of their disability. 49% said that they have chosen not to attend cervical screening in the past for reasons such as previous bad experiences

related to their

COMMUNITY ENGAGEMENT RESEARCH PROJECT 4 Executive summary Every year in the UK, around 3,200 women will be diagnosed with cervical cancer. It is the most common cancer in women

under 35.

ODD SMELL AFTER LLETZ Hi I had my LLETZ procedure on Friday and apart from a little cramping on Friday eve when I assumed the anaesthetic had worn off I have been absolutely fine. I''ve had no pain, no bleeding etc. I have had a very little, light brown discharge but nothing to bother me over. However over the past 2 days I have noticed an odd smell and i'm not sure if I need to be worrying. POST LLETZ SMELL -WARNING TMI!! Sorry if any of you are squeamish or are eating your dinner but I'm unsure as to whether I should bother trying to get an appointment with my doctor if my problem is normal.I had a Colposcopy and LLETZ 8 days ago, from which I had only a little bleeding and pain after. Since I have just had a very watery discharge with the commonly mentioned 'black bits' this doesn't concern me too much, but I

PROFESSIONALS

Professionals. In this section, we provide information for healthcare professionals who are supporting patients through HPV, cervical screening, colposcopy, and cervical cancer. We also have lesson plans for teachers who want to raise awareness of HPV and the HPV vaccine. CERVICAL SCREENING AWARENESS WEEK 2021 Join us during Cervical Screening Awareness Week to help: Reduce confusion about HPV. De-mystify cervical screening results. Shout about the importance of cervical screening. “The results showed I had cell changes and HPV. I had no idea what HPV was or how I had got

it”.

OUR VIDEOS | JO'S CERVICAL CANCER TRUST Jo's Cervical Cancer Trust is the only UK charity dedicated to women and their loved ones affected by cervical cancer and abnormalities. In this video find out about the information and support services we offer, our campaigning work, and the impact these have on women's

lives. support.

OUR MANAGEMENT TEAM

Julie joined Jo’s Cervical Cancer Trust in February 2015 as the Executive Assistant to the CEO. In 2018 she became Head of Finance and Corporate Services and has been responsible for growing her team. Julie has over 31 years’ experience working in an administrative environment covering Finance, IT, HR and premises management.

FACTSHEET: HPV

Jo’s Cervical Cancer Trust Helpline: 0808 802 8000 T 020 7250 8311 E info@jostrust.org.uk www.jostrust.org.uk Registered in England and Wales Company Limited by Guarantee: 7111375 COMMUNITY ENGAGEMENT RESEARCH PROJECT 4 Executive summary Every year in the UK, around 3,200 women will be diagnosed with cervical cancer. It is the most common cancer in women

under 35.

POST LLETZ SMELL -WARNING TMI!! Sorry if any of you are squeamish or are eating your dinner but I'm unsure as to whether I should bother trying to get an appointment with my doctor if my problem is normal.I had a Colposcopy and LLETZ 8 days ago, from which I had only a little bleeding and pain after. Since I have just had a very watery discharge with the commonly mentioned 'black bits' this doesn't concern EXERCISE AFTER LLETZ Hi, I had a smear a few weeks ago which came back abnormal, high grade. I was referred for colopscopy which I had today. I also had LLETZ treatment and the nurse advised they took out a very large area. i do a lot of sports, I'm currently marathon training and normally cycle ten miles each way to work. The Dr warned sternly not to exercise for at least 10days as I'd put myself NURSE COULDN’T FIND CERVIX... AGAIN! Hi thereive just been to have my smear test, my Last one was 3 years ago, and the same thing has happened on both the bloody nurse couldn’t find my cervix! She tried getting me to rest my hands under my bum to try and find it but that didn’t do anything. She insereted and re inserted the instrument a few times and there was plenty of digging around but she failed to find PAINFUL SMEAR AFTER MENOPAUSE Painful smear after menopause. I just had a reminder for a smear test - I ignored the first call as the last test 5 years ago was so painful. I'm 64, and my vagina has tightened a lot - I wasn't sexually active for a number of years, and now penetration is impossibly painful. I am taking hormone pessaries for vaginal atrophy/dryness. We use cookies to give you the best experience on our website. By using the site you are agreeing to our use of cookies. To change your settings or opt-out view our

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HELP US KEEP OUR SERVICES OPEN We need your help to keep our services open. Changes to cancer treatment and uncertainty around screening mean more people are coming to us but we are struggling to keep up with the demand. Just £16 could fund an urgent helpline call. Donate now WE'RE THE UK'S LEADING CERVICAL CANCER CHARITY

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