UPDATE ON COVID-19 VACCINE Update on COVID-19 Vaccine. 13 May 2021. All patients with RA are encouraged to receive a COVID-19 vaccine. This includes people taking Disease Modifying Anti Rhematic Drugs such as methotrexate, sulfasalazine, leflunomide and hydroxychloroquine and/or advanced therapies such as biologics, biosimilars and JAK inhibitors. BENEFITS | NRAS | ADVICE ON CLAIMING BENEFITS Eligibility will depend on the severity of your disease. If your disease is active enough and has been for a long enough time, there could be a number of benefits that you could claim, including a blue badge, to help you with parking and disability living allowance, a benefit which can be claimed regardless of whether or not you work. FATIGUE IN RHEUMATOID ARTHRITIS (RA) Fatigue is one of the most common and can be one of the most debilitating symptoms of RA. It is a level of tiredness which cannot always be eased through getting a good night’s sleep, and it can have a major impact on day-to-day living. In an NRAS survey in 2014, 89% of those surveyed said that they experienced fatigue, with 40% of

those

THE FOOT AND RHEUMATOID ARTHRITIS Rheumatoid arthritis (RA) is the commonest type of inflammatory arthritis. Up to 90% of people with this condition will report associated foot problems. For some people, the foot is the first area of the body to present with signs and symptoms of RA. For others, it may be months, years or they may never experience any foot problems at

all.

MONITORING RA

Monitoring RA. RA is a complex condition to diagnose, treat and manage and requires a continual level of ongoing monitoring. Imaging techniques, such as x-ray or ultrasound, can give insight into how active RA is, as well as checking for any signs of damage caused by the RA and other complications. STEROIDS USED IN RHEUMATOID ARTHRITIS (RA) Steroids. Steroids are used sparingly for conditions such as RA, because of the side effects, in the smallest possible dose for the shortest time. They can be given as tablets or injected or by infusion (a ‘drip’). Steroids are also known as corticosteroids or glucocorticoids. They are used to help control many forms of

arthritis.

APNI JUNG | NRAS

Apni Jung. Apni Jung (translates to “Our Fight” in Hindi) is an initiative that aims to engage with RA patients within the UK South Asian community – encouraging them not just to seek medical help for their condition but also to gain an understanding about RA and the benefits of continuing to take prescribed medication to improve

outcomes.

FATIGUE MATTERS

Fatigue matters. Fatigue is one of the most common symptoms of RA and can also be one of the most debilitating. Fatigue can have a severe impact on the quality of life of those affected and it can come on at anytime without warning. We have created a self-help guide to explain what fatigue is, the causes and what you can do to tackle this

symptom.

NORTH BRISTOL SUPPORT GROUP (NON-NRAS GROUP) Organised by the people who attend the support group, led by a physiotherapist, we meet on Wednesdays at 5.30pm at Southmead Hospital Bristol. There is a small charge to cover the physiotherapist time. If you are interested in attending please contact group coordinator Angela Miles by email to dm007h2223@blueyonder.co.uk or by phone on

0117 949

PUBLIC HEALTH ENGLAND PILOTS RHEUMATOID ARTHRITIS Public Health England pilots rheumatoid arthritis awareness campaign. 02 February 2015. This local pilot will follow the approach for piloting previously used in the cancer and breathlessness symptom awareness campaigns, i.e. the message will be disseminated via a range of media channels, for example press, posters and radio

advertisements.

UPDATE ON COVID-19 VACCINE Update on COVID-19 Vaccine. 13 May 2021. All patients with RA are encouraged to receive a COVID-19 vaccine. This includes people taking Disease Modifying Anti Rhematic Drugs such as methotrexate, sulfasalazine, leflunomide and hydroxychloroquine and/or advanced therapies such as biologics, biosimilars and JAK inhibitors. BENEFITS | NRAS | ADVICE ON CLAIMING BENEFITS Eligibility will depend on the severity of your disease. If your disease is active enough and has been for a long enough time, there could be a number of benefits that you could claim, including a blue badge, to help you with parking and disability living allowance, a benefit which can be claimed regardless of whether or not you work. FATIGUE IN RHEUMATOID ARTHRITIS (RA) Fatigue is one of the most common and can be one of the most debilitating symptoms of RA. It is a level of tiredness which cannot always be eased through getting a good night’s sleep, and it can have a major impact on day-to-day living. In an NRAS survey in 2014, 89% of those surveyed said that they experienced fatigue, with 40% of

those

THE FOOT AND RHEUMATOID ARTHRITIS Rheumatoid arthritis (RA) is the commonest type of inflammatory arthritis. Up to 90% of people with this condition will report associated foot problems. For some people, the foot is the first area of the body to present with signs and symptoms of RA. For others, it may be months, years or they may never experience any foot problems at

all.

MONITORING RA

Monitoring RA. RA is a complex condition to diagnose, treat and manage and requires a continual level of ongoing monitoring. Imaging techniques, such as x-ray or ultrasound, can give insight into how active RA is, as well as checking for any signs of damage caused by the RA and other complications. STEROIDS USED IN RHEUMATOID ARTHRITIS (RA) Steroids. Steroids are used sparingly for conditions such as RA, because of the side effects, in the smallest possible dose for the shortest time. They can be given as tablets or injected or by infusion (a ‘drip’). Steroids are also known as corticosteroids or glucocorticoids. They are used to help control many forms of

arthritis.

APNI JUNG | NRAS

Apni Jung. Apni Jung (translates to “Our Fight” in Hindi) is an initiative that aims to engage with RA patients within the UK South Asian community – encouraging them not just to seek medical help for their condition but also to gain an understanding about RA and the benefits of continuing to take prescribed medication to improve

outcomes.

FATIGUE MATTERS

Fatigue matters. Fatigue is one of the most common symptoms of RA and can also be one of the most debilitating. Fatigue can have a severe impact on the quality of life of those affected and it can come on at anytime without warning. We have created a self-help guide to explain what fatigue is, the causes and what you can do to tackle this

symptom.

NORTH BRISTOL SUPPORT GROUP (NON-NRAS GROUP) Organised by the people who attend the support group, led by a physiotherapist, we meet on Wednesdays at 5.30pm at Southmead Hospital Bristol. There is a small charge to cover the physiotherapist time. If you are interested in attending please contact group coordinator Angela Miles by email to dm007h2223@blueyonder.co.uk or by phone on

0117 949

PUBLIC HEALTH ENGLAND PILOTS RHEUMATOID ARTHRITIS Public Health England pilots rheumatoid arthritis awareness campaign. 02 February 2015. This local pilot will follow the approach for piloting previously used in the cancer and breathlessness symptom awareness campaigns, i.e. the message will be disseminated via a range of media channels, for example press, posters and radio

advertisements.

CORONAVIRUS AND RA

Update on COVID-19 Vaccine. All patients with RA are encouraged to receive a COVID-19 vaccine. This includes people taking Disease Modifying Anti Rhematic Drugs such as methotrexate, sulfasalazine, leflunomide and hydroxychloroquine and/or advanced therapies such as biologics, biosimilars and JAK inhibitors. The only potential

exception is for

BIGGEST CHANGE TO TREATMENT OF RA SINCE THE INTRODUCTION Biggest change to treatment of RA since the introduction of biologics in the early 2000s. 10 June 2021. The National Rheumatoid Arthritis Society are extremely excited to announce that today 10 June, 2021, the National Institute for Health and Care Excellence (NICE) has issued draft guidance that gives approval for certain anti-TNF therapies to be prescribed for people with so-called

CONNECT WITH OTHERS

A daughter’s letter to her father, who lives with RA. Dear Dad, you took care of me within your strong arms until I could walk, then embraced me in hugs every day after, keeping our connection forever strong. You took care of me, and you still do, but I want to talk about the time where this case was inversed. To look back on when

WHO WE ARE LEAFLET

Who we are leaflet. Print. This leaflet provides information about the National Rheumatoid Arthritis Society (NRAS), what we do and why we do it. It also gives you information on how you can support NRAS, to help us to keep supporting people with RA and JIA, their friends, families and anyone else affected by these conditions. Order leaflet. IMMUNISATION FOR PEOPLE WITH RHEUMATOID ARTHRITIS Immunisation is an important issue for people with rheumatoid arthritis (RA) as they experience infections more frequently than the general population, and these infections tend to be more serious. This may be in part due to the abnormal activity of the immune system which is an inherent feature of RA, but infection is also a recognised NRAS RHEUM FOR INCLUSION MEMBER NRAS is currently seeking to recruit five new members for our Rheum for Inclusion board. We strongly encourage applicants from all backgrounds, and are hoping to represent all the different geographical locations in the UK (including Wales, Scotland & Northern Ireland). We are also committed to our members being representative of region, age, religion, profession, NRAS WELLBEING COURSE: STRENGTH AND RESISTANCE BASED Join Ayesha for this 6-week course focusing on resistance training for strength. You will be using resistance bands, a 6kg kettlebell and 3kg dumbbells, but don’t worry If you don’t have the equipment! You can use easy home swaps such as a pair of cans and a rucksack loaded with some books. You will be learning “the

NEWSLETTER SIGN UP

Stay in the loop about our vital work, latest RA and JIA news and research, fundraising opportunities, events, and local activities through our newsletters. NRAS WELLBEING COURSE: MINDFULNESS AND MEDITATION Join Life Coach and Wellbeing expert Carolyne Bennett for this 5 -week course which focuses on Mindfulness and Meditation. Life can be stressful, overwhelming and tiring – but it doesn’t have to be this way! Meditation and mindfulness aides relaxation promotes genuine happiness and assists in connecting to a peaceful place within. This

simple yet

NRAS WELLBEING COURSE: #SINGING4WELLBEING SUMMER SERIES Join Louisa for six relaxing evening sessions of vocal fun with invited music and singing experts spanning a range of genres and songs starting Tuesday 6 July 7:00pm – 7:45pm on Zoom. Practise skills together in breathing and relaxation, posture, pitching, expanding your vocal range and understanding the individuality and sound of your

own voice

NRAS | RHEUMATOID ARTHRITIS CHARITYABOUT RAHELP FOR YOUGET INVOLVEDNEWSFOR PROFESSIONALSCORONAVIRUS AND RA NRAS is the UK's leading national charity supporting people living with rheumatoid arthritis (RA) and juvenile idiopathic arthritis

(JIA).

UPDATE ON COVID-19 VACCINE Update on COVID-19 Vaccine. 13 May 2021. All patients with RA are encouraged to receive a COVID-19 vaccine. This includes people taking Disease Modifying Anti Rhematic Drugs such as methotrexate, sulfasalazine, leflunomide and hydroxychloroquine and/or advanced therapies such as biologics, biosimilars and JAK inhibitors.

CORONAVIRUS AND RA

Update on COVID-19 Vaccine. All patients with RA are encouraged to receive a COVID-19 vaccine. This includes people taking Disease Modifying Anti Rhematic Drugs such as methotrexate, sulfasalazine, leflunomide and hydroxychloroquine and/or advanced therapies such as biologics, biosimilars and JAK inhibitors. The only potential

exception is for

SHOP | NRAS

Shop. Fly the flag for NRAS and support the charity by buying an NRAS branded t-shirt, wristband, lapel badge or another item of NRAS merchandise. All profits from the sale of NRAS merchandise will support the vital work of the charity and ensure NRAS are able to continue delivering its services. All of our publications are provided

free of

FATIGUE IN RHEUMATOID ARTHRITIS (RA) Fatigue is one of the most common and can be one of the most debilitating symptoms of RA. It is a level of tiredness which cannot always be eased through getting a good night’s sleep, and it can have a major impact on day-to-day living. In an NRAS survey in 2014, 89% of those surveyed said that they experienced fatigue, with 40% of

those

PERSONAL INDEPENDENCE PAYMENT Personal Independence Payment (PIP) is one of the benefits most commonly claimed by people with RA. It is not means tested and covers two areas of life commonly affected by RA: daily living and mobility. This booklet offers a step-by-step guide to how to claim PIP, including filling in the forms, providing evidence to back up your

claim and

IMMUNISATION FOR PEOPLE WITH RHEUMATOID ARTHRITIS Immunisation is an important issue for people with rheumatoid arthritis (RA) as they experience infections more frequently than the general population, and these infections tend to be more serious. This may be in part due to the abnormal activity of the immune system which is an inherent feature of RA, but infection is also a recognised NRAS | RHEUMATOID ARTHRITIS CHARITYABOUT RAHELP FOR YOUGET INVOLVEDNEWSFOR PROFESSIONALSCORONAVIRUS AND RA NRAS is the UK's leading national charity supporting people living with rheumatoid arthritis (RA) and juvenile idiopathic arthritis

(JIA).

UPDATE ON COVID-19 VACCINE Update on COVID-19 Vaccine. 13 May 2021. All patients with RA are encouraged to receive a COVID-19 vaccine. This includes people taking Disease Modifying Anti Rhematic Drugs such as methotrexate, sulfasalazine, leflunomide and hydroxychloroquine and/or advanced therapies such as biologics, biosimilars and JAK inhibitors.

CORONAVIRUS AND RA

Update on COVID-19 Vaccine. All patients with RA are encouraged to receive a COVID-19 vaccine. This includes people taking Disease Modifying Anti Rhematic Drugs such as methotrexate, sulfasalazine, leflunomide and hydroxychloroquine and/or advanced therapies such as biologics, biosimilars and JAK inhibitors. The only potential

exception is for

SHOP | NRAS

Shop. Fly the flag for NRAS and support the charity by buying an NRAS branded t-shirt, wristband, lapel badge or another item of NRAS merchandise. All profits from the sale of NRAS merchandise will support the vital work of the charity and ensure NRAS are able to continue delivering its services. All of our publications are provided

free of

FATIGUE IN RHEUMATOID ARTHRITIS (RA) Fatigue is one of the most common and can be one of the most debilitating symptoms of RA. It is a level of tiredness which cannot always be eased through getting a good night’s sleep, and it can have a major impact on day-to-day living. In an NRAS survey in 2014, 89% of those surveyed said that they experienced fatigue, with 40% of

those

PERSONAL INDEPENDENCE PAYMENT Personal Independence Payment (PIP) is one of the benefits most commonly claimed by people with RA. It is not means tested and covers two areas of life commonly affected by RA: daily living and mobility. This booklet offers a step-by-step guide to how to claim PIP, including filling in the forms, providing evidence to back up your

claim and

IMMUNISATION FOR PEOPLE WITH RHEUMATOID ARTHRITIS Immunisation is an important issue for people with rheumatoid arthritis (RA) as they experience infections more frequently than the general population, and these infections tend to be more serious. This may be in part due to the abnormal activity of the immune system which is an inherent feature of RA, but infection is also a recognised

APNI JUNG | NRAS

Apni Jung. Apni Jung (translates to “Our Fight” in Hindi) is an initiative that aims to engage with RA patients within the UK South Asian community – encouraging them not just to seek medical help for their condition but also to gain an understanding about RA and the benefits of continuing to take prescribed medication to improve

outcomes.

RHEUMATOID ARTHRITIS CARE: PATIENT QUESTIONNAIRE Page 1 of 4 Rheumatoid arthritis care: patient questionnaire What is the questionnaire about? This national questionnaire is about your experience of rheumatoid arthritis services and treatment at the NHS hospital where you get care for your rheumatoid arthritis. PUBLIC HEALTH ENGLAND PILOTS RHEUMATOID ARTHRITIS Public Health England pilots rheumatoid arthritis awareness campaign. 02 February 2015. This local pilot will follow the approach for piloting previously used in the cancer and breathlessness symptom awareness campaigns, i.e. the message will be disseminated via a range of media channels, for example press, posters and radio

advertisements.

CORONAVIRUS AND RA

Update on COVID-19 Vaccine. All patients with RA are encouraged to receive a COVID-19 vaccine. This includes people taking Disease Modifying Anti Rhematic Drugs such as methotrexate, sulfasalazine, leflunomide and hydroxychloroquine and/or advanced therapies such as biologics, biosimilars and JAK inhibitors. The only potential

exception is for

BIGGEST CHANGE TO TREATMENT OF RA SINCE THE INTRODUCTION The National Rheumatoid Arthritis Society are extremely excited to announce that today 10 June, 2021, the National Institute for Health and Care Excellence (NICE) has issued draft guidance that gives approval for certain anti-TNF therapies to be prescribed for people with so-called ‘moderate’ rheumatoid arthritis (full and final guidance will be issued in July). These BENEFITS | NRAS | ADVICE ON CLAIMING BENEFITS The benefits system can be tricky to navigate, especially if you have never claimed any benefits before. Your healthcare team will give you information on treatments, your employer may discuss with you your rights at work, but when it comes to finding out whether you might be entitled to benefits, this is often something you are expected to do (and to know to do) yourself, which can be very

NEWSLETTER SIGN UP

Stay in the loop about our vital work, latest RA and JIA news and research, fundraising opportunities, events, and local activities through our newsletters. BIOLOGICS IN RHEUMATOID ARHRITIS (RA) Biologics. Biologic drugs for the treatment of rheumatoid arthritis (RA) are made from proteins. They work by blocking the activity of a key chemical or cell or protein involved in inflammation that gives rise to joint swelling and other symptoms. They are powerful and specific therapies that target very particular parts of the immune

system.

NRAS RHEUM FOR INCLUSION MEMBER NRAS is currently seeking to recruit five new members for our Rheum for Inclusion board. We strongly encourage applicants from all backgrounds, and are hoping to represent all the different geographical locations in the UK (including Wales, Scotland & Northern Ireland). We are also committed to our members being representative of region, age, religion, profession, STEROIDS USED IN RHEUMATOID ARTHRITIS (RA) Steroids. Steroids are used sparingly for conditions such as RA, because of the side effects, in the smallest possible dose for the shortest time. They can be given as tablets or injected or by infusion (a ‘drip’). Steroids are also known as corticosteroids or glucocorticoids. They are used to help control many forms of

arthritis.

MONITORING RA

Monitoring RA. RA is a complex condition to diagnose, treat and manage and requires a continual level of ongoing monitoring. Imaging techniques, such as x-ray or ultrasound, can give insight into how active RA is, as well as checking for any signs of damage caused by the RA and other complications. METHOTREXATE INFORMATION LEAFLET AND BLOOD MONITORING AND What's here. All the different ways you can get involved with NRAS, including fundraising, volunteering, becoming a Member and research HAND SURGERY IN RHEUMATOID ARTHRITIS: AN OVERVIEW Rheumatoid arthritis is a disease with widespread effects. Whilst it is natural to think of surgery to joints as being the most significant surgical intervention, it is, in fact, soft tissue problems which cause the surgeon most concern – these include nerve compression syndrome due to inflammation and soft tissue swelling, tendon ruptures and skin problems such as rheumatoid nodules and NRAS | RHEUMATOID ARTHRITIS CHARITYABOUT RAHELP FOR YOUGET INVOLVEDNEWSFOR PROFESSIONALSCORONAVIRUS AND RA NRAS is the UK's leading national charity supporting people living with rheumatoid arthritis (RA) and juvenile idiopathic arthritis

(JIA).

UPDATE ON COVID-19 VACCINE Update on COVID-19 Vaccine. 13 May 2021. All patients with RA are encouraged to receive a COVID-19 vaccine. This includes people taking Disease Modifying Anti Rhematic Drugs such as methotrexate, sulfasalazine, leflunomide and hydroxychloroquine and/or advanced therapies such as biologics, biosimilars and JAK inhibitors.

CORONAVIRUS AND RA

Update on COVID-19 Vaccine. All patients with RA are encouraged to receive a COVID-19 vaccine. This includes people taking Disease Modifying Anti Rhematic Drugs such as methotrexate, sulfasalazine, leflunomide and hydroxychloroquine and/or advanced therapies such as biologics, biosimilars and JAK inhibitors. The only potential

exception is for

SHOP | NRAS

Shop. Fly the flag for NRAS and support the charity by buying an NRAS branded t-shirt, wristband, lapel badge or another item of NRAS merchandise. All profits from the sale of NRAS merchandise will support the vital work of the charity and ensure NRAS are able to continue delivering its services. All of our publications are provided

free of

FATIGUE IN RHEUMATOID ARTHRITIS (RA) Fatigue is one of the most common and can be one of the most debilitating symptoms of RA. It is a level of tiredness which cannot always be eased through getting a good night’s sleep, and it can have a major impact on day-to-day living. In an NRAS survey in 2014, 89% of those surveyed said that they experienced fatigue, with 40% of

those

PERSONAL INDEPENDENCE PAYMENT Personal Independence Payment (PIP) is one of the benefits most commonly claimed by people with RA. It is not means tested and covers two areas of life commonly affected by RA: daily living and mobility. This booklet offers a step-by-step guide to how to claim PIP, including filling in the forms, providing evidence to back up your

claim and

IMMUNISATION FOR PEOPLE WITH RHEUMATOID ARTHRITIS Immunisation is an important issue for people with rheumatoid arthritis (RA) as they experience infections more frequently than the general population, and these infections tend to be more serious. This may be in part due to the abnormal activity of the immune system which is an inherent feature of RA, but infection is also a recognised

APNI JUNG | NRAS

Apni Jung. Apni Jung (translates to “Our Fight” in Hindi) is an initiative that aims to engage with RA patients within the UK South Asian community – encouraging them not just to seek medical help for their condition but also to gain an understanding about RA and the benefits of continuing to take prescribed medication to improve

outcomes.

RHEUMATOID ARTHRITIS CARE: PATIENT QUESTIONNAIRE Page 1 of 4 Rheumatoid arthritis care: patient questionnaire What is the questionnaire about? This national questionnaire is about your experience of rheumatoid arthritis services and treatment at the NHS hospital where you get care for your rheumatoid arthritis. PUBLIC HEALTH ENGLAND PILOTS RHEUMATOID ARTHRITIS Public Health England pilots rheumatoid arthritis awareness campaign. 02 February 2015. This local pilot will follow the approach for piloting previously used in the cancer and breathlessness symptom awareness campaigns, i.e. the message will be disseminated via a range of media channels, for example press, posters and radio

advertisements.

NRAS | RHEUMATOID ARTHRITIS CHARITYABOUT RAHELP FOR YOUGET INVOLVEDNEWSFOR PROFESSIONALSCORONAVIRUS AND RA NRAS is the UK's leading national charity supporting people living with rheumatoid arthritis (RA) and juvenile idiopathic arthritis

(JIA).

UPDATE ON COVID-19 VACCINE Update on COVID-19 Vaccine. 13 May 2021. All patients with RA are encouraged to receive a COVID-19 vaccine. This includes people taking Disease Modifying Anti Rhematic Drugs such as methotrexate, sulfasalazine, leflunomide and hydroxychloroquine and/or advanced therapies such as biologics, biosimilars and JAK inhibitors.

CORONAVIRUS AND RA

Update on COVID-19 Vaccine. All patients with RA are encouraged to receive a COVID-19 vaccine. This includes people taking Disease Modifying Anti Rhematic Drugs such as methotrexate, sulfasalazine, leflunomide and hydroxychloroquine and/or advanced therapies such as biologics, biosimilars and JAK inhibitors. The only potential

exception is for

SHOP | NRAS

Shop. Fly the flag for NRAS and support the charity by buying an NRAS branded t-shirt, wristband, lapel badge or another item of NRAS merchandise. All profits from the sale of NRAS merchandise will support the vital work of the charity and ensure NRAS are able to continue delivering its services. All of our publications are provided

free of

FATIGUE IN RHEUMATOID ARTHRITIS (RA) Fatigue is one of the most common and can be one of the most debilitating symptoms of RA. It is a level of tiredness which cannot always be eased through getting a good night’s sleep, and it can have a major impact on day-to-day living. In an NRAS survey in 2014, 89% of those surveyed said that they experienced fatigue, with 40% of

those

PERSONAL INDEPENDENCE PAYMENT Personal Independence Payment (PIP) is one of the benefits most commonly claimed by people with RA. It is not means tested and covers two areas of life commonly affected by RA: daily living and mobility. This booklet offers a step-by-step guide to how to claim PIP, including filling in the forms, providing evidence to back up your

claim and

IMMUNISATION FOR PEOPLE WITH RHEUMATOID ARTHRITIS Immunisation is an important issue for people with rheumatoid arthritis (RA) as they experience infections more frequently than the general population, and these infections tend to be more serious. This may be in part due to the abnormal activity of the immune system which is an inherent feature of RA, but infection is also a recognised

APNI JUNG | NRAS

Apni Jung. Apni Jung (translates to “Our Fight” in Hindi) is an initiative that aims to engage with RA patients within the UK South Asian community – encouraging them not just to seek medical help for their condition but also to gain an understanding about RA and the benefits of continuing to take prescribed medication to improve

outcomes.

RHEUMATOID ARTHRITIS CARE: PATIENT QUESTIONNAIRE Page 1 of 4 Rheumatoid arthritis care: patient questionnaire What is the questionnaire about? This national questionnaire is about your experience of rheumatoid arthritis services and treatment at the NHS hospital where you get care for your rheumatoid arthritis. PUBLIC HEALTH ENGLAND PILOTS RHEUMATOID ARTHRITIS Public Health England pilots rheumatoid arthritis awareness campaign. 02 February 2015. This local pilot will follow the approach for piloting previously used in the cancer and breathlessness symptom awareness campaigns, i.e. the message will be disseminated via a range of media channels, for example press, posters and radio

advertisements.

CORONAVIRUS AND RA

Update on COVID-19 Vaccine. All patients with RA are encouraged to receive a COVID-19 vaccine. This includes people taking Disease Modifying Anti Rhematic Drugs such as methotrexate, sulfasalazine, leflunomide and hydroxychloroquine and/or advanced therapies such as biologics, biosimilars and JAK inhibitors. The only potential

exception is for

BIGGEST CHANGE TO TREATMENT OF RA SINCE THE INTRODUCTION The National Rheumatoid Arthritis Society are extremely excited to announce that today 10 June, 2021, the National Institute for Health and Care Excellence (NICE) has issued draft guidance that gives approval for certain anti-TNF therapies to be prescribed for people with so-called ‘moderate’ rheumatoid arthritis (full and final guidance will be issued in July). These BENEFITS | NRAS | ADVICE ON CLAIMING BENEFITS The benefits system can be tricky to navigate, especially if you have never claimed any benefits before. Your healthcare team will give you information on treatments, your employer may discuss with you your rights at work, but when it comes to finding out whether you might be entitled to benefits, this is often something you are expected to do (and to know to do) yourself, which can be very

NEWSLETTER SIGN UP

Stay in the loop about our vital work, latest RA and JIA news and research, fundraising opportunities, events, and local activities through our newsletters. BIOLOGICS IN RHEUMATOID ARHRITIS (RA) Biologics. Biologic drugs for the treatment of rheumatoid arthritis (RA) are made from proteins. They work by blocking the activity of a key chemical or cell or protein involved in inflammation that gives rise to joint swelling and other symptoms. They are powerful and specific therapies that target very particular parts of the immune

system.

NRAS RHEUM FOR INCLUSION MEMBER NRAS is currently seeking to recruit five new members for our Rheum for Inclusion board. We strongly encourage applicants from all backgrounds, and are hoping to represent all the different geographical locations in the UK (including Wales, Scotland & Northern Ireland). We are also committed to our members being representative of region, age, religion, profession, STEROIDS USED IN RHEUMATOID ARTHRITIS (RA) Steroids. Steroids are used sparingly for conditions such as RA, because of the side effects, in the smallest possible dose for the shortest time. They can be given as tablets or injected or by infusion (a ‘drip’). Steroids are also known as corticosteroids or glucocorticoids. They are used to help control many forms of

arthritis.

MONITORING RA

Monitoring RA. RA is a complex condition to diagnose, treat and manage and requires a continual level of ongoing monitoring. Imaging techniques, such as x-ray or ultrasound, can give insight into how active RA is, as well as checking for any signs of damage caused by the RA and other complications. METHOTREXATE INFORMATION LEAFLET AND BLOOD MONITORING AND What's here. All the different ways you can get involved with NRAS, including fundraising, volunteering, becoming a Member and research HAND SURGERY IN RHEUMATOID ARTHRITIS: AN OVERVIEW Rheumatoid arthritis is a disease with widespread effects. Whilst it is natural to think of surgery to joints as being the most significant surgical intervention, it is, in fact, soft tissue problems which cause the surgeon most concern – these include nerve compression syndrome due to inflammation and soft tissue swelling, tendon ruptures and skin problems such as rheumatoid nodules and Skip to content Visit JIA.org.uk

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WHAT'S HAPPENING

News, 14 May

DEPARTMENT OF HEALTH & SOCIAL CARE Q&A ON SOCIAL DISTANCING CHANGES FOR CLINICALLY EXTREMELY VULNERABLE PEOPLE IN ENGLAND FROM 17 MAY This is a UK government Q&A which is relevant to people living in England who have been classified as ‘Clinically Extremely Vulnerable The new guidance for everyone on social distancing can be found here: https://www.gov.uk/guidance/meeting-friends-and-family-covid-19 The specific guidance for Clinically Extremely Vulnerable people will be updated from 17 May and can be found here: https://www.gov.uk/government/publications/guidance-on-shielding-and-protecting-extremely-vulnerable-persons-from-covid-19

1. What

News, 13 May

UPDATE ON COVID-19 VACCINE All patients with RA are encouraged to receive a COVID-19 vaccine. This includes people taking Disease Modifying Anti Rhematic Drugs such as methotrexate, sulfasalazine, leflunomide and hydroxychloroquine and/or advanced therapies such as biologics, biosimilars and JAK inhibitors. The only potential exception is for those on rituximab for which it is recommended to have a consultation

News, 01 Apr

APRIL UPDATE: SIR LENNY HENRY URGES BLACK BRITONS TO TAKE COVID-19 VACCINE; ANNOUNCEMENT FOR ADULTS LIVING WITH ADULTS WHO ARE

IMMUNOSUPPRESSED

Sir Lenny Henry urges black Britons to take COVID-19 vaccine  Sir Lenny Henry has written an open letter to encourage Black Britons to take the COVID-19 vaccine, signed by some of the most high-profile names in the UK.  12 Years a Slave actor and Oscar nominee Chiwetel Ejiofor, author Malorie Blackman, actor Thandie Newton, football

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ABOUT RHEUMATOID ARTHRITIS All our information on rheumatoid arthritis, what it is, how it’s managed and living with the condition.

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WHAT IS RA? _→_

Rheumatoid arthritis is an auto-immune disease, meaning that the symptoms such as pain and inflammation are caused by the immune system attacking the joints.

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SYMPTOMS OF RA _→_ RA is a systemic condition, meaning that it can affect the body all over. RA occurs when the immune system attacks the lining of the joints, and this can cause pain, swelling and stiffness.

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RA DIAGNOSIS AND POSSIBLE CAUSES _→_ RA is diagnosed through a combination of blood tests, scans and examination of the joints.

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RA is a very variable condition so, doctors do not start all patients in exactly the same way on the same drug regimen.

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Read about the people involved in treating RA, best practice models for clinical practice and information on monitoring of RA. SEARCH FOR RESOURCES Try searching our resource hub to find the articles, videos, tools and publications most helpful for you.

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REMOTE MONITORING IN RHEUMATOID ARTHRITIS PROJECT NRAS are supporting the following project. Please read and if interested get involved! You need to live in South London to take part and be a patient at Guy’s and St Thomas’ NHS Foundation Trust, King’s College Hospital NHS Foundation Trust, or Lewisham and Greenwich NHS Trust. Do you live in south London and have experience

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VOLUNTEERS NEEDED FOR A UNIVERSITY OF BIRMINGHAM RESEARCH PROJECT The Rheumatology Research Group at the University of Birmingham are developing two videos for people who are considering whether or not to take part in a research study about Rheumatoid Arthritis. One video will be about what it’s like to take part in a clinical study/trial. The second will be about what it’s like to

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FACEBOOK LIVE: UPDATE ON COVID-19 VACCINATIONS Facebook Live: Update on COVID-19 Vaccinations 26/05/2021 Clare Jacklin (NRAS CEO) is joined by Dr Lizzy MacPhie for an update on COVID-19 Vaccinations.

Article

GLOBAL RHEUMATOLOGY ALLIANCE COVID-19 VACCINE SURVEY If you are 18 years or older and have a rheumatic disease, please consider participating in this survey. You are eligible to take the survey whether or not you received the COVID-19 vaccine. GRA will not collect personal information such as name, email address, IP address, or other data that will make you easily identifiable.

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RA CAN BE LIFE-CHANGING, BUT YOU CAN BE THE ONE TO CHANGE YOUR LIFE Becoming a mother, retraining, going self-employed and setting up an NRAS group. How NRAS volunteer Sharon Branagh did all this after her RA diagnosis.  To mark International Women’s Day (8th March), we celebrate inspirational women everywhere, women such as our very own amazing NRAS volunteer Sharon Branagh.  “I was diagnosed with rheumatoid arthritis at the age of I KEPT PUSHING FORWARD, AND NOW I ABSOLUTELY LOVE MY LIFE I am 24 years old, and at aged 19, my world was turned upside down when I was diagnosed with an aggressive form of RA. Somehow I kept pushing forward, and now I absolutely love my life and everything about it!  My name is Eleanor Farr – known as Ellie or Ell to my friends! I am 24 years WHY MAJOR JAKE P BAKER STAYS ‘FAITHFUL IN ADVERSITY’ Major Jake P Baker discusses a life in the army, his diagnosis of RA and how his healthcare team, family and NRAS have helped him through his journey with RA.  I retired from the Army on 30th April 2013 after nearly 42 years’ service – man and boy. I enlisted 6 days after my 15th birthday, taking A DAUGHTER’S LETTER TO HER FATHER, WHO LIVES WITH RA Dear Dad, you took care of me within your strong arms until I could walk, then embraced me in hugs every day after, keeping our connection forever strong. You took care of me, and you still do, but I want to talk about the time where this case was inversed. To look back on when IT ALL STARTED WITH A PAIN IN MY RIGHT WRIST My RA is still in remission and I am able to enjoy activities like cycling and walking. Last August we had a family holiday in Wales and I managed to climb Snowdon – a real sense of achievement. I do still get some pain and swelling in my joints, especially my wrists and hands, but compared to where I

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National Rheumatoid Arthritis Society (NRAS) is a registered charity in England and Wales (1134859) and Scotland (SC039721). A private company limited by guarantee. Registered in England and Wales (7127101). VAT: 371541506

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