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MAPI RESEARCH TRUST
Mapi Research Trust is the #1 provider of Patient-Centered Outcomes Research information worldwide: More than 4,000 Clinical Outcomes Assessments (COA) More than 40,000 COA translations. A research library with more than 29,000 COAs. Directly distributes over 600 questionnaires on behalf ofEPROVIDE™
Please note that the MRT team is available to support any questions you may have, and will work with you to review solutions and alternate modalities of data collection that are most suited to your programs, we remain at your full disposal. Click here for an up to date listing of COVID-19 related COA's available through ePROVIDE.MAPI-TRUST.ORG
mapi-trust.org
QUESTIONNAIRES DISTRIBUTED BY THE MAPI RESEARCH TRUST Questionnaires Distributed By The Mapi Research Trust. Below is a partial list of instruments distributed by Mapi Research Trust on behalf of their copyright owners. For full the full listing and any questions on these instruments please visit ePROVIDE. PedsQL:Pediatric
ABOUT PROQOLID
PROQOLID™ is a comprehensive online database designed to assist academic researchers, physicians, students, pharmaceutical companies, health authorities, and international organizations in the search and evaluation of Clinical Outcome Assessments (COAs).. The success of Patient-Centered Outcomes (PCO) Research depends a great deal on the choice of appropriate COAs.PGI-C, PGI-I, PGI-S
It consists of one item based on the CGI and adapted to the patient. It mainly measures change in clinical status (PGI-C) but can also measure disease severity (PGI-S) or disease improvement (PGI-I). This scale evaluates all aspects of patients' health and assesses if there has been an improvement or decline in clinical status. Guy W (ed). MTLSS - MODIFIED TOTAL LESION SYMPTOM SCORE Objective. To assess symptom severity in patients with chronic hand eczema. Therapeutic area. Skin and Connective Tissue Diseases. Therapeutic indication. WPAI:SHP - WORK PRODUCTIVITY AND ACTIVITY IMPAIRMENT Basic description. Original version developed in 1993. A General Health version (WPAI:GH) developed for general health status and versions specific of diseases exist, as well as a combination version (WPAI:GH/SHP) encompassing the specified health problem and all other health reasons. a WPAI:SHP Clinical Practice Version (CPV) with slight CVS-Q - COMPUTER VISION SYNDROME QUESTIONNAIRE Composite. PRO and ClinRO. Original language (s) Spanish for Spain. Bibliographic reference (s) of the original questionnaire. Seguí Mdel M, Cabrero-García J, Crespo A, Verdú J, Ronda E. A reliable and valid questionnaire was developed to measure computer vision syndrome at the workplace. J Clin Epidemiol. 2015 Jun;68 (6):662-73 ( PubMedEORTC QLQ-CIPN20
The development of an EORTC quality of life questionnaire to assess chemotherapy-induced peripheral neuropathy: the QLQ-CIPN20. Eur J Cancer. 2005 May;41 (8):1135-9 ( PubMed abstract) Kieffer JM, Postma TJ, van de Poll-Franse L, Mols F, Heimans JJ, Cavaletti G, Aaronson NK; CI-PeriNomS Group.MAPI RESEARCH TRUST
Mapi Research Trust is the #1 provider of Patient-Centered Outcomes Research information worldwide: More than 4,000 Clinical Outcomes Assessments (COA) More than 40,000 COA translations. A research library with more than 29,000 COAs. Directly distributes over 600 questionnaires on behalf of QUESTIONNAIRES DISTRIBUTED BY THE MAPI RESEARCH TRUST Questionnaires Distributed By The Mapi Research Trust. Below is a partial list of instruments distributed by Mapi Research Trust on behalf of their copyright owners. For full the full listing and any questions on these instruments please visit ePROVIDE. PedsQL:Pediatric
EPROVIDE™
Please note that the MRT team is available to support any questions you may have, and will work with you to review solutions and alternate modalities of data collection that are most suited to your programs, we remain at your full disposal. Click here for an up to date listing of COVID-19 related COA's available through ePROVIDE.MAPI-TRUST.ORG
mapi-trust.org
ABOUT PROQOLID
PROQOLID™ is a comprehensive online database designed to assist academic researchers, physicians, students, pharmaceutical companies, health authorities, and international organizations in the search and evaluation of Clinical Outcome Assessments (COAs).. The success of Patient-Centered Outcomes (PCO) Research depends a great deal on the choice of appropriate COAs.PGI-C, PGI-I, PGI-S
It consists of one item based on the CGI and adapted to the patient. It mainly measures change in clinical status (PGI-C) but can also measure disease severity (PGI-S) or disease improvement (PGI-I). This scale evaluates all aspects of patients' health and assesses if there has been an improvement or decline in clinical status. Guy W (ed). MTLSS - MODIFIED TOTAL LESION SYMPTOM SCORE Objective. To assess symptom severity in patients with chronic hand eczema. Therapeutic area. Skin and Connective Tissue Diseases. Therapeutic indication. WPAI:SHP - WORK PRODUCTIVITY AND ACTIVITY IMPAIRMENT Basic description. Original version developed in 1993. A General Health version (WPAI:GH) developed for general health status and versions specific of diseases exist, as well as a combination version (WPAI:GH/SHP) encompassing the specified health problem and all other health reasons. a WPAI:SHP Clinical Practice Version (CPV) with slight CVS-Q - COMPUTER VISION SYNDROME QUESTIONNAIRE Composite. PRO and ClinRO. Original language (s) Spanish for Spain. Bibliographic reference (s) of the original questionnaire. Seguí Mdel M, Cabrero-García J, Crespo A, Verdú J, Ronda E. A reliable and valid questionnaire was developed to measure computer vision syndrome at the workplace. J Clin Epidemiol. 2015 Jun;68 (6):662-73 ( PubMedEORTC QLQ-CIPN20
The development of an EORTC quality of life questionnaire to assess chemotherapy-induced peripheral neuropathy: the QLQ-CIPN20. Eur J Cancer. 2005 May;41 (8):1135-9 ( PubMed abstract) Kieffer JM, Postma TJ, van de Poll-Franse L, Mols F, Heimans JJ, Cavaletti G, Aaronson NK; CI-PeriNomS Group.QUESTIONNAIRES
Mapi Research Trust has a unique library that centralizes information on over 3,300 PRO, ClinRO, and ObsRO questionnaires. Our library also centralizes all the translated versions of these questionnaires that have been linguistically validated by Mapi or performed by other teams. Mapi have translated more than 2,500 questionnaires into over170 languages.
QUESTIONNAIRES DISTRIBUTED BY THE MAPI RESEARCH TRUST Questionnaires Distributed By The Mapi Research Trust. Below is a partial list of instruments distributed by Mapi Research Trust on behalf of their copyright owners. For full the full listing and any questions on these instruments please visit ePROVIDE. PedsQL:Pediatric
LIBRARY & QUESTIONNAIRES Our library houses a unique collection specialized in Patient-Centered Outcomes. Mapi Research Trust has access to any published COA article and subscribes to key journals in this field, such as Quality of Life Research and Value in Health.. It also houses 4,000 PCO questionnaires, as well as their 40,000 translations into some 170 languages (see PROQOLID TM on ePROVIDE TM for the full range.)MAPI-TRUST.ORG
mapi-trust.org
LOGIN - EPROVIDE™
Mapi Research Trust 2021, All rights reserved KPPS – OFFICIALLY DISTRIBUTED BY MAPI RESEARCH TRUST The King's Parkinson's Disease Pain Scale (KPPS) is officially distributed by Mapi Research Trust. Please visit PROQOLID/ePROVIDE formore information!
WHO CLINICAL PROGRESSION SCALE (WHO CLINICAL PROGRESSION Basic description. WHO Working Group on the Clinical Characterisation and Management of COVID-19 infection. To measure patient illness by tracking progress through the health-care system as well as to facilitate data pooling across cohort studies and clinical trials, with the objective of expediting the exchange of knowledge to benefitpatients
GAIS - GLOBAL AESTHETIC IMPROVEMENT SCALE Developed to evaluate injectable biomaterials for the correction of nasolabial folds. Has been also used in other cosmetic treatments or surgeries, such as facial rejuvenation or skin-tightening, and scars or hyperpigmentation treatments. Type of Clinical Outcome Assessment (COA) clinro. ClinRO. pro.OUR COA CATALOG
COA Instruments Distributed by Mapi Research Trust Filter by: NAVQ - NEAR ACTIVITY VISUAL QUESTIONNAIRE Buckhurst PJ, Wolffsohn JS, Gupta N, Naroo SA, Davies LN, Shah S. Development of a questionnaire to assess the relative subjective benefits of presbyopia correction.MAPI RESEARCH TRUST
Mapi Research Trust is the #1 provider of Patient-Centered Outcomes Research information worldwide: More than 4,000 Clinical Outcomes Assessments (COA) More than 40,000 COA translations. A research library with more than 29,000 COAs. Directly distributes over 600 questionnaires on behalf ofEPROVIDE™
Please note that the MRT team is available to support any questions you may have, and will work with you to review solutions and alternate modalities of data collection that are most suited to your programs, we remain at your full disposal. Click here for an up to date listing of COVID-19 related COA's available through ePROVIDE.MAPI-TRUST.ORG
mapi-trust.org
QUESTIONNAIRES DISTRIBUTED BY THE MAPI RESEARCH TRUST Questionnaires Distributed By The Mapi Research Trust. Below is a partial list of instruments distributed by Mapi Research Trust on behalf of their copyright owners. For full the full listing and any questions on these instruments please visit ePROVIDE. PedsQL:Pediatric
ABOUT PROQOLID
PROQOLID™ is a comprehensive online database designed to assist academic researchers, physicians, students, pharmaceutical companies, health authorities, and international organizations in the search and evaluation of Clinical Outcome Assessments (COAs).. The success of Patient-Centered Outcomes (PCO) Research depends a great deal on the choice of appropriate COAs.PGI-C, PGI-I, PGI-S
It consists of one item based on the CGI and adapted to the patient. It mainly measures change in clinical status (PGI-C) but can also measure disease severity (PGI-S) or disease improvement (PGI-I). This scale evaluates all aspects of patients' health and assesses if there has been an improvement or decline in clinical status. Guy W (ed). MTLSS - MODIFIED TOTAL LESION SYMPTOM SCORE Objective. To assess symptom severity in patients with chronic hand eczema. Therapeutic area. Skin and Connective Tissue Diseases. Therapeutic indication. WPAI:SHP - WORK PRODUCTIVITY AND ACTIVITY IMPAIRMENT Basic description. Original version developed in 1993. A General Health version (WPAI:GH) developed for general health status and versions specific of diseases exist, as well as a combination version (WPAI:GH/SHP) encompassing the specified health problem and all other health reasons. a WPAI:SHP Clinical Practice Version (CPV) with slight CVS-Q - COMPUTER VISION SYNDROME QUESTIONNAIRE Composite. PRO and ClinRO. Original language (s) Spanish for Spain. Bibliographic reference (s) of the original questionnaire. Seguí Mdel M, Cabrero-García J, Crespo A, Verdú J, Ronda E. A reliable and valid questionnaire was developed to measure computer vision syndrome at the workplace. J Clin Epidemiol. 2015 Jun;68 (6):662-73 ( PubMedEORTC QLQ-CIPN20
The development of an EORTC quality of life questionnaire to assess chemotherapy-induced peripheral neuropathy: the QLQ-CIPN20. Eur J Cancer. 2005 May;41 (8):1135-9 ( PubMed abstract) Kieffer JM, Postma TJ, van de Poll-Franse L, Mols F, Heimans JJ, Cavaletti G, Aaronson NK; CI-PeriNomS Group.MAPI RESEARCH TRUST
Mapi Research Trust is the #1 provider of Patient-Centered Outcomes Research information worldwide: More than 4,000 Clinical Outcomes Assessments (COA) More than 40,000 COA translations. A research library with more than 29,000 COAs. Directly distributes over 600 questionnaires on behalf ofEPROVIDE™
Please note that the MRT team is available to support any questions you may have, and will work with you to review solutions and alternate modalities of data collection that are most suited to your programs, we remain at your full disposal. Click here for an up to date listing of COVID-19 related COA's available through ePROVIDE.MAPI-TRUST.ORG
mapi-trust.org
QUESTIONNAIRES DISTRIBUTED BY THE MAPI RESEARCH TRUST Questionnaires Distributed By The Mapi Research Trust. Below is a partial list of instruments distributed by Mapi Research Trust on behalf of their copyright owners. For full the full listing and any questions on these instruments please visit ePROVIDE. PedsQL:Pediatric
ABOUT PROQOLID
PROQOLID™ is a comprehensive online database designed to assist academic researchers, physicians, students, pharmaceutical companies, health authorities, and international organizations in the search and evaluation of Clinical Outcome Assessments (COAs).. The success of Patient-Centered Outcomes (PCO) Research depends a great deal on the choice of appropriate COAs.PGI-C, PGI-I, PGI-S
It consists of one item based on the CGI and adapted to the patient. It mainly measures change in clinical status (PGI-C) but can also measure disease severity (PGI-S) or disease improvement (PGI-I). This scale evaluates all aspects of patients' health and assesses if there has been an improvement or decline in clinical status. Guy W (ed). MTLSS - MODIFIED TOTAL LESION SYMPTOM SCORE Objective. To assess symptom severity in patients with chronic hand eczema. Therapeutic area. Skin and Connective Tissue Diseases. Therapeutic indication. WPAI:SHP - WORK PRODUCTIVITY AND ACTIVITY IMPAIRMENT Basic description. Original version developed in 1993. A General Health version (WPAI:GH) developed for general health status and versions specific of diseases exist, as well as a combination version (WPAI:GH/SHP) encompassing the specified health problem and all other health reasons. a WPAI:SHP Clinical Practice Version (CPV) with slight CVS-Q - COMPUTER VISION SYNDROME QUESTIONNAIRE Composite. PRO and ClinRO. Original language (s) Spanish for Spain. Bibliographic reference (s) of the original questionnaire. Seguí Mdel M, Cabrero-García J, Crespo A, Verdú J, Ronda E. A reliable and valid questionnaire was developed to measure computer vision syndrome at the workplace. J Clin Epidemiol. 2015 Jun;68 (6):662-73 ( PubMedEORTC QLQ-CIPN20
The development of an EORTC quality of life questionnaire to assess chemotherapy-induced peripheral neuropathy: the QLQ-CIPN20. Eur J Cancer. 2005 May;41 (8):1135-9 ( PubMed abstract) Kieffer JM, Postma TJ, van de Poll-Franse L, Mols F, Heimans JJ, Cavaletti G, Aaronson NK; CI-PeriNomS Group.QUESTIONNAIRES
Mapi Research Trust has a unique library that centralizes information on over 3,300 PRO, ClinRO, and ObsRO questionnaires. Our library also centralizes all the translated versions of these questionnaires that have been linguistically validated by Mapi or performed by other teams. Mapi have translated more than 2,500 questionnaires into over170 languages.
QUESTIONNAIRES DISTRIBUTED BY THE MAPI RESEARCH TRUST Questionnaires Distributed By The Mapi Research Trust. Below is a partial list of instruments distributed by Mapi Research Trust on behalf of their copyright owners. For full the full listing and any questions on these instruments please visit ePROVIDE. PedsQL:Pediatric
LIBRARY & QUESTIONNAIRES Our library houses a unique collection specialized in Patient-Centered Outcomes. Mapi Research Trust has access to any published COA article and subscribes to key journals in this field, such as Quality of Life Research and Value in Health.. It also houses 4,000 PCO questionnaires, as well as their 40,000 translations into some 170 languages (see PROQOLID TM on ePROVIDE TM for the full range.)MAPI-TRUST.ORG
mapi-trust.org
LOGIN - EPROVIDE™
Mapi Research Trust 2021, All rights reserved KPPS – OFFICIALLY DISTRIBUTED BY MAPI RESEARCH TRUST The King's Parkinson's Disease Pain Scale (KPPS) is officially distributed by Mapi Research Trust. Please visit PROQOLID/ePROVIDE formore information!
WHO CLINICAL PROGRESSION SCALE (WHO CLINICAL PROGRESSION Basic description. WHO Working Group on the Clinical Characterisation and Management of COVID-19 infection. To measure patient illness by tracking progress through the health-care system as well as to facilitate data pooling across cohort studies and clinical trials, with the objective of expediting the exchange of knowledge to benefitpatients
GAIS - GLOBAL AESTHETIC IMPROVEMENT SCALE Developed to evaluate injectable biomaterials for the correction of nasolabial folds. Has been also used in other cosmetic treatments or surgeries, such as facial rejuvenation or skin-tightening, and scars or hyperpigmentation treatments. Type of Clinical Outcome Assessment (COA) clinro. ClinRO. pro.OUR COA CATALOG
COA Instruments Distributed by Mapi Research Trust Filter by: NAVQ - NEAR ACTIVITY VISUAL QUESTIONNAIRE Buckhurst PJ, Wolffsohn JS, Gupta N, Naroo SA, Davies LN, Shah S. Development of a questionnaire to assess the relative subjective benefits of presbyopia correction.QUESTIONNAIRES
Mapi Research Trust has a unique library that centralizes information on over 3,300 PRO, ClinRO, and ObsRO questionnaires. Our library also centralizes all the translated versions of these questionnaires that have been linguistically validated by Mapi or performed by other teams. Mapi have translated more than 2,500 questionnaires into over170 languages.
PGI-C, PGI-I, PGI-S
It consists of one item based on the CGI and adapted to the patient. It mainly measures change in clinical status (PGI-C) but can also measure disease severity (PGI-S) or disease improvement (PGI-I). This scale evaluates all aspects of patients' health and assesses if there has been an improvement or decline in clinical status. Guy W (ed).ABOUT PROQOLID
PROQOLID™ is a comprehensive online database designed to assist academic researchers, physicians, students, pharmaceutical companies, health authorities, and international organizations in the search and evaluation of Clinical Outcome Assessments (COAs).. The success of Patient-Centered Outcomes (PCO) Research depends a great deal on the choice of appropriate COAs. KPPS – OFFICIALLY DISTRIBUTED BY MAPI RESEARCH TRUST The King's Parkinson's Disease Pain Scale (KPPS) is officially distributed by Mapi Research Trust. Please visit PROQOLID/ePROVIDE formore information!
GAIS - GLOBAL AESTHETIC IMPROVEMENT SCALE Developed to evaluate injectable biomaterials for the correction of nasolabial folds. Has been also used in other cosmetic treatments or surgeries, such as facial rejuvenation or skin-tightening, and scars or hyperpigmentation treatments. Type of Clinical Outcome Assessment (COA) clinro. ClinRO. pro. BRIEF®-SR - BEHAVIOR RATING INVENTORY OF EXECUTIVE To assess an adolescent's view of his or her cognitive, emotional, and behavioral functions 6-PAQ - PARENTAL ACCEPTANCE QUESTIONNAIRE-6 English for the USA. Translations. 1 translation (s) Bibliographic reference (s) of the original questionnaire. Greene RL, Field CE, Fargo JD, Twohig MP. Development and validation of the parental acceptance questionnaire (6-PAQ).Journal of Contextual BehavioralScience. 2015. 4:3.
EORTC QLQ-CIPN20
The development of an EORTC quality of life questionnaire to assess chemotherapy-induced peripheral neuropathy: the QLQ-CIPN20. Eur J Cancer. 2005 May;41 (8):1135-9 ( PubMed abstract) Kieffer JM, Postma TJ, van de Poll-Franse L, Mols F, Heimans JJ, Cavaletti G, Aaronson NK; CI-PeriNomS Group. POPDI-6 - PELVIC ORGAN PROLAPSE DISTRESS INVENTORY-6 To provide a symptom inventory and to measure the degree of bother and distress caused by the broad array of pelvic floor symptoms, in particular related to pelvic organ prolapseSF-QUALIVEEN
To assess health-related quality of life of patients with urinary disorders in neurologic conditions. Bonniaud V, Bryant D, Parratte B, Guyatt G. Development and validation of the short form of a urinary quality of life questionnaire: SF-Qualiveen.QUESTIONNAIRES
Mapi Research Trust has a unique library that centralizes information on over 3,300 PRO, ClinRO, and ObsRO questionnaires. Our library also centralizes all the translated versions of these questionnaires that have been linguistically validated by Mapi or performed by other teams. Mapi have translated more than 2,500 questionnaires into over170 languages.
PGI-C, PGI-I, PGI-S
It consists of one item based on the CGI and adapted to the patient. It mainly measures change in clinical status (PGI-C) but can also measure disease severity (PGI-S) or disease improvement (PGI-I). This scale evaluates all aspects of patients' health and assesses if there has been an improvement or decline in clinical status. Guy W (ed).ABOUT PROQOLID
PROQOLID™ is a comprehensive online database designed to assist academic researchers, physicians, students, pharmaceutical companies, health authorities, and international organizations in the search and evaluation of Clinical Outcome Assessments (COAs).. The success of Patient-Centered Outcomes (PCO) Research depends a great deal on the choice of appropriate COAs. KPPS – OFFICIALLY DISTRIBUTED BY MAPI RESEARCH TRUST The King's Parkinson's Disease Pain Scale (KPPS) is officially distributed by Mapi Research Trust. Please visit PROQOLID/ePROVIDE formore information!
GAIS - GLOBAL AESTHETIC IMPROVEMENT SCALE Developed to evaluate injectable biomaterials for the correction of nasolabial folds. Has been also used in other cosmetic treatments or surgeries, such as facial rejuvenation or skin-tightening, and scars or hyperpigmentation treatments. Type of Clinical Outcome Assessment (COA) clinro. ClinRO. pro. BRIEF®-SR - BEHAVIOR RATING INVENTORY OF EXECUTIVE To assess an adolescent's view of his or her cognitive, emotional, and behavioral functions 6-PAQ - PARENTAL ACCEPTANCE QUESTIONNAIRE-6 English for the USA. Translations. 1 translation (s) Bibliographic reference (s) of the original questionnaire. Greene RL, Field CE, Fargo JD, Twohig MP. Development and validation of the parental acceptance questionnaire (6-PAQ).Journal of Contextual BehavioralScience. 2015. 4:3.
EORTC QLQ-CIPN20
The development of an EORTC quality of life questionnaire to assess chemotherapy-induced peripheral neuropathy: the QLQ-CIPN20. Eur J Cancer. 2005 May;41 (8):1135-9 ( PubMed abstract) Kieffer JM, Postma TJ, van de Poll-Franse L, Mols F, Heimans JJ, Cavaletti G, Aaronson NK; CI-PeriNomS Group. POPDI-6 - PELVIC ORGAN PROLAPSE DISTRESS INVENTORY-6 To provide a symptom inventory and to measure the degree of bother and distress caused by the broad array of pelvic floor symptoms, in particular related to pelvic organ prolapseSF-QUALIVEEN
To assess health-related quality of life of patients with urinary disorders in neurologic conditions. Bonniaud V, Bryant D, Parratte B, Guyatt G. Development and validation of the short form of a urinary quality of life questionnaire: SF-Qualiveen.MAPI-TRUST.ORG
mapi-trust.org
GAIS - GLOBAL AESTHETIC IMPROVEMENT SCALE Developed to evaluate injectable biomaterials for the correction of nasolabial folds. Has been also used in other cosmetic treatments or surgeries, such as facial rejuvenation or skin-tightening, and scars or hyperpigmentation treatments. Type of Clinical Outcome Assessment (COA) clinro. ClinRO. pro.OUR COA CATALOG
COA Instruments Distributed by Mapi Research Trust Filter by: OCS - OPIOID CRAVING SCALE - MAPI RESEARCH TRUST Assessing craving and its relationship to subsequent prescription opioid use among treatment-seeking prescription opioid dependent patients. Drug Alcohol Depend. 2014 Dec 1;145:121-6 ( Full text article) 3-item version of Cocaine Craving Scale. Weiss RD, Griffin ML, Mazurick C, Berkman B, Gastfriend DR, Frank A, Barber JP, BlaineJ, Salloum I
LSQ © - LUPUS SATISFACTION QUESTIONNAIRE Lupus Erythematosus, Systemic For more information on this rare disease, please consult the following link: Orphanet page PDAI - PEMPHIGUS DISEASE AREA INDEX The PDAI has 3 components relating to the skin, scalp, and mucous membranes. The skin has activity and damage scores. The activity score is a value given to the number of erosions, blisters, or new erythema at the time of examination. An individual activity score for the 12 anatomic locations is obtained by assigning a score for each site based on fitting into a bracketed number of lesions and FSIQ-RMS - FATIGUE SYMPTOMS AND IMPACTS QUESTIONNAIRE Hudgens S, Schüler R, Stokes J, Eremenco S, Hunsche E, Leist TP. Development and Validation of the FSIQ-RMS: A New Patient-Reported Questionnaire to Assess Symptoms and Impacts of Fatigue in Relapsing Multiple Sclerosis. Value Health. 2019 Apr;22 (4):453-466 ( Pubmedabstract)
CASA-Q - COUGH AND SPUTUM ASSESSMENT QUESTIONNAIRE Basic description. To measure cough and sputum production, and their impact in patients with chronic obstructive pulmonary disease (COPD) and/or chronic bronchitis. Crawford B, Monz B, Hohlfeld J, Roche N et al. Development and validation of a cough and sputum assessment questionnaire. Respiratory medicine. 2008;102 (11):1545-1555 ( FullText
NAVQ - NEAR ACTIVITY VISUAL QUESTIONNAIRE Buckhurst PJ, Wolffsohn JS, Gupta N, Naroo SA, Davies LN, Shah S. Development of a questionnaire to assess the relative subjective benefits of presbyopia correction. HRUQ - HEALTHCARE RESOURCE UTILIZATION QUESTIONNAIRE Kobelt G, Thompson A, Berg J. New insights into the burden and costs of multiple sclerosis in Europe. Mult Scler. 2017 Jul;23(8):1123-1136(Full Text Article)
MAPI RESEARCH TRUST
Mapi Research Trust is the #1 provider of Patient-Centered Outcomes Research information worldwide: More than 4,000 Clinical Outcomes Assessments (COA) More than 40,000 COA translations. A research library with more than 29,000 COAs. Directly distributes over 600 questionnaires on behalf ofABOUT PROQOLID
PROQOLID™ is a comprehensive online database designed to assist academic researchers, physicians, students, pharmaceutical companies, health authorities, and international organizations in the search and evaluation of Clinical Outcome Assessments (COAs).. The success of Patient-Centered Outcomes (PCO) Research depends a great deal on the choice of appropriate COAs. SWANSON, KOTKIN, AGLER, M-FLYNN, AND PELHAM RATING SCALE Developed in 1992. A revised version called T-SKAMP has also beendeveloped
PEDSQL™ – OFFICIALLY DISTRIBUTED BY MAPI RESEARCH TRUST Objective. To assess health-related quality of life in children in various diseases areas. Applicable for healthy school and community populations, as well as pediatric populations with acute and chronic health conditions. Therapeutic area. Depending on the module. Therapeutic indication. POPDI-6 - PELVIC ORGAN PROLAPSE DISTRESS INVENTORY-6 To provide a symptom inventory and to measure the degree of bother and distress caused by the broad array of pelvic floor symptoms, in particular related to pelvic organ prolapsePODCI-PARENT
Basic description. Daltroy LH, Liang MH, Fossel AH, Goldberg MJ. The POSNA pediatric musculoskeletal functional health questionnaire: report on reliability, validity, and sensitivity to change. Pediatric Outcomes Instrument Development Group. Pediatric Orthopaedic Society of North America. J Pediatr Orthop. 1998 Sep-Oct;18 (5):561-71 (PubMed
OAB-Q - OVERACTIVE BLADDER QUESTIONNAIRE Matza LS, Thompson CL, Krasnow J, Brewster-Jordan J, Zyczynski T, Coyne KS. Test-retest reliability of four questionnaires for patients with overactive bladder: the overactive bladder questionnaire (OAB-q), patient perception of bladder condition (PPBC), urgency questionnaire (UQ), and the primary OAB symptom questionnaire (POSQ). ITSEA - INFANT TODDLER SOCIAL EMOTIONAL ASSESSMENT Preliminary acceptability and psychometrics of the infant–toddler social and emotional assessment (ITSEA): A new adult‐report questionnaire. Infant Ment Health J. 1998 Winter ; 19 (4):422-445 ( Abstract) Carter AS, Briggs-Gowan MJ, Jones SM, Little TD. The Infant-Toddler Social and Emotional Assessment (ITSEA): factor structure, reliabilityASAS 20/40/50/70
The ASAS Response Criteria (ASAS 20) is defined as an improvement of at least 20% and an absolute improvement of at least 10 units on a 0-100 scale in at least three of the following domains: Patient global assessment, Pain assessment, Function (BASFI), and Inflammation (last 2 questions of BASDAI). ASAS 40, 50 and 70 are defined as above with NAVQ - NEAR ACTIVITY VISUAL QUESTIONNAIRE Buckhurst PJ, Wolffsohn JS, Gupta N, Naroo SA, Davies LN, Shah S. Development of a questionnaire to assess the relative subjective benefits of presbyopia correction.MAPI RESEARCH TRUST
Mapi Research Trust is the #1 provider of Patient-Centered Outcomes Research information worldwide: More than 4,000 Clinical Outcomes Assessments (COA) More than 40,000 COA translations. A research library with more than 29,000 COAs. Directly distributes over 600 questionnaires on behalf ofABOUT PROQOLID
PROQOLID™ is a comprehensive online database designed to assist academic researchers, physicians, students, pharmaceutical companies, health authorities, and international organizations in the search and evaluation of Clinical Outcome Assessments (COAs).. The success of Patient-Centered Outcomes (PCO) Research depends a great deal on the choice of appropriate COAs. SWANSON, KOTKIN, AGLER, M-FLYNN, AND PELHAM RATING SCALE Developed in 1992. A revised version called T-SKAMP has also beendeveloped
PEDSQL™ – OFFICIALLY DISTRIBUTED BY MAPI RESEARCH TRUST Objective. To assess health-related quality of life in children in various diseases areas. Applicable for healthy school and community populations, as well as pediatric populations with acute and chronic health conditions. Therapeutic area. Depending on the module. Therapeutic indication. POPDI-6 - PELVIC ORGAN PROLAPSE DISTRESS INVENTORY-6 To provide a symptom inventory and to measure the degree of bother and distress caused by the broad array of pelvic floor symptoms, in particular related to pelvic organ prolapsePODCI-PARENT
Basic description. Daltroy LH, Liang MH, Fossel AH, Goldberg MJ. The POSNA pediatric musculoskeletal functional health questionnaire: report on reliability, validity, and sensitivity to change. Pediatric Outcomes Instrument Development Group. Pediatric Orthopaedic Society of North America. J Pediatr Orthop. 1998 Sep-Oct;18 (5):561-71 (PubMed
OAB-Q - OVERACTIVE BLADDER QUESTIONNAIRE Matza LS, Thompson CL, Krasnow J, Brewster-Jordan J, Zyczynski T, Coyne KS. Test-retest reliability of four questionnaires for patients with overactive bladder: the overactive bladder questionnaire (OAB-q), patient perception of bladder condition (PPBC), urgency questionnaire (UQ), and the primary OAB symptom questionnaire (POSQ). ITSEA - INFANT TODDLER SOCIAL EMOTIONAL ASSESSMENT Preliminary acceptability and psychometrics of the infant–toddler social and emotional assessment (ITSEA): A new adult‐report questionnaire. Infant Ment Health J. 1998 Winter ; 19 (4):422-445 ( Abstract) Carter AS, Briggs-Gowan MJ, Jones SM, Little TD. The Infant-Toddler Social and Emotional Assessment (ITSEA): factor structure, reliabilityASAS 20/40/50/70
The ASAS Response Criteria (ASAS 20) is defined as an improvement of at least 20% and an absolute improvement of at least 10 units on a 0-100 scale in at least three of the following domains: Patient global assessment, Pain assessment, Function (BASFI), and Inflammation (last 2 questions of BASDAI). ASAS 40, 50 and 70 are defined as above with NAVQ - NEAR ACTIVITY VISUAL QUESTIONNAIRE Buckhurst PJ, Wolffsohn JS, Gupta N, Naroo SA, Davies LN, Shah S. Development of a questionnaire to assess the relative subjective benefits of presbyopia correction.MAPI-TRUST.ORG
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COA Instruments Distributed by Mapi Research Trust Filter by:PGI-C, PGI-I, PGI-S
It consists of one item based on the CGI and adapted to the patient. It mainly measures change in clinical status (PGI-C) but can also measure disease severity (PGI-S) or disease improvement (PGI-I). This scale evaluates all aspects of patients' health and assesses if there has been an improvement or decline in clinical status. Guy W (ed). GAIS - GLOBAL AESTHETIC IMPROVEMENT SCALE Developed to evaluate injectable biomaterials for the correction of nasolabial folds. Has been also used in other cosmetic treatments or surgeries, such as facial rejuvenation or skin-tightening, and scars or hyperpigmentation treatments. Type of Clinical Outcome Assessment (COA) clinro. ClinRO. pro. WPAI:SHP - WORK PRODUCTIVITY AND ACTIVITY IMPAIRMENT Basic description. Original version developed in 1993. A General Health version (WPAI:GH) developed for general health status and versions specific of diseases exist, as well as a combination version (WPAI:GH/SHP) encompassing the specified health problem and all other health reasons. a WPAI:SHP Clinical Practice Version (CPV) with slight 6-PAQ - PARENTAL ACCEPTANCE QUESTIONNAIRE-6 English for the USA. Translations. 1 translation (s) Bibliographic reference (s) of the original questionnaire. Greene RL, Field CE, Fargo JD, Twohig MP. Development and validation of the parental acceptance questionnaire (6-PAQ).Journal of Contextual BehavioralScience. 2015. 4:3.
MDP - MULTIDIMENSIONAL DYSPNEA PROFILE The development of the MDP started in 2005. The first use of the MDP prototype was published in 2008. Banzett RB et al. published in 2015 an article presenting and summarizing the existing information/data available about MDP.. WEBINAR: An Author Webinar on the Multidimensional Dyspnea Profile - Recorded session available here! CASA-Q - COUGH AND SPUTUM ASSESSMENT QUESTIONNAIRE Crawford B, Monz B, Hohlfeld J, Roche N et al. Development and validation of a cough and sputum assessment questionnaire. Respiratory medicine. 2008;102(11):1545-1555 (Full Text Article)Monz BU, Sachs P, McDonald J, Crawford B, Nivens MC, Tetzlaff K. Responsiveness of the cough and sputum assessment questionnaire in exacerbations of COPD andchronic bronchitis.
NAVQ - NEAR ACTIVITY VISUAL QUESTIONNAIRE Buckhurst PJ, Wolffsohn JS, Gupta N, Naroo SA, Davies LN, Shah S. Development of a questionnaire to assess the relative subjective benefits of presbyopia correction. COVID-19 MAPI RESEARCH TRUST UPDATE AND GUIDANCE Click here for more information__
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MAPI RESEARCH TRUST IS A NON-PROFIT ORGANIZATION DEDICATED TO IMPROVING PATIENTS’ QUALITY OF LIFE BY FACILITATING ACCESS TO PATIENT-CENTERED OUTCOME (PCO) INFORMATION Mapi Research Trust promotes scientific approaches in the PCO field and encourages exchanges between academics, pharmaceutical companies, and international organisations around the world in the service of incorporating the patient’s voice into every step of the development process of new treatments. For nearly two decades Mapi Research Trust has been a direct contributor to nearly every translational science research program incorporating PCO. We offer free and subsidized access to thousands of independent and academic research programs in over 130 countries every year. In this manner Mapi Research Trust contributes some 4 M€ a year in services that support academic research focusing on the improvement of patients’ lives. Mapi Research Trust is the #1 provider of Patient-Centered Outcomes Research information worldwide: * More than 4,000 Clinical Outcomes Assessments (COA) * More than 40,000 COA translations * A research library with more than 29,000 COAs * Directly distributes over 600 questionnaires on behalf of theirauthors
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