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THE SPOON THEORY ARCHIVES The Spoon Theory written by Christine Miserandino. Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness or disability. BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Christine Miserandino is an award-winning writer, blogger, speaker and lupus patient advocate. Her writing about lupus and her “Spoon Theory” of communicating about chronic illness has been featured in numerous newspapers, magazines, medical newsletters and television media around the world, as well as on her website ButYouDontLookSick.com. Long Island Business News recognized Christine BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Search. Articles. Caregiver Support and Tips; Daily Living Tips; Guest Writers; Hobbies and Crafts BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE haha, thanks for these, always annoys me when pain’s kept me awake so I’ve not slept for three days, not been able to shower for four and then on way to meet with HR, Occupational Health or Hospital and someone will tell me how “great” i look, or, my favourite recent occurence, going through an airport, unable to walk, security calling for a wheelchair and referring to me as a “woman THE SPOON THEORY WRITTEN BY CHRISTINE MISERANDINO You may NOT publish or re-print this article without the written permission of Christine Miserandino and ButYouDontLookSick.com. Thank you. Now you can purchase small and large poster prints of “The Spoon Theory” from our Online Store! These posters will make a BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Have you ever heard something about one of your kids that just really surprised you? We think we really know our family members, yet everyone has lots of details we don’t know! Here’s a fun little game for one of those long, boring late summer nights, when there’s nothing on TV. Or, you could just BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE The title is ominous, I know. But for so many of us that suffer from chronic illnesses, it’s an all too true reality. I must preface this by saying that not all people who suffer with a chronic illness experience this. However, the subtleties of it grow as time passes and one is confronted with the reality of it, be it large or small, at some point in their lives. TIPS FOR TRAVELING WITH A CHRONIC ILLNESS! Hi all, Those were great tips. However, for those of us flying in aircraft, there are very strict rules and guidelines. Because I do 20% Lidocaine subq injections for my incessant RSD burning pain, I make sure to carry not only the prescription for my syringes, don’t need to be considered a druggie, illegal that is, along with the copy of the script for my Lidocaine, which is a liquid, as BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE When my husband and I decided that we needed a new mattress, a memory foam mattress was the obvious choice. Due to my Fibromyalgia, I can always feel the springs, even on a very good mattress, and although I need a soft mattress for my tender pressure points, I also need goodsupport. Hubby lies
BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLEHOMEABOUT USGIFT SHOPADVERTISINGTHE PURPLE PARTY 2014CONTACT US If you ask my dad about Lupus he will give you a very seemingly odd answer. He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello witha string.
THE SPOON THEORY ARCHIVES The Spoon Theory written by Christine Miserandino. Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness or disability. BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Christine Miserandino is an award-winning writer, blogger, speaker and lupus patient advocate. Her writing about lupus and her “Spoon Theory” of communicating about chronic illness has been featured in numerous newspapers, magazines, medical newsletters and television media around the world, as well as on her website ButYouDontLookSick.com. Long Island Business News recognized Christine BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Search. Articles. Caregiver Support and Tips; Daily Living Tips; Guest Writers; Hobbies and Crafts BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE haha, thanks for these, always annoys me when pain’s kept me awake so I’ve not slept for three days, not been able to shower for four and then on way to meet with HR, Occupational Health or Hospital and someone will tell me how “great” i look, or, my favourite recent occurence, going through an airport, unable to walk, security calling for a wheelchair and referring to me as a “woman THE SPOON THEORY WRITTEN BY CHRISTINE MISERANDINO You may NOT publish or re-print this article without the written permission of Christine Miserandino and ButYouDontLookSick.com. Thank you. Now you can purchase small and large poster prints of “The Spoon Theory” from our Online Store! These posters will make a BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Have you ever heard something about one of your kids that just really surprised you? We think we really know our family members, yet everyone has lots of details we don’t know! Here’s a fun little game for one of those long, boring late summer nights, when there’s nothing on TV. Or, you could just BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE The title is ominous, I know. But for so many of us that suffer from chronic illnesses, it’s an all too true reality. I must preface this by saying that not all people who suffer with a chronic illness experience this. However, the subtleties of it grow as time passes and one is confronted with the reality of it, be it large or small, at some point in their lives. TIPS FOR TRAVELING WITH A CHRONIC ILLNESS! Hi all, Those were great tips. However, for those of us flying in aircraft, there are very strict rules and guidelines. Because I do 20% Lidocaine subq injections for my incessant RSD burning pain, I make sure to carry not only the prescription for my syringes, don’t need to be considered a druggie, illegal that is, along with the copy of the script for my Lidocaine, which is a liquid, as BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE When my husband and I decided that we needed a new mattress, a memory foam mattress was the obvious choice. Due to my Fibromyalgia, I can always feel the springs, even on a very good mattress, and although I need a soft mattress for my tender pressure points, I also need goodsupport. Hubby lies
BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Spoon Lady Speaks. May 12 is International Fibromyalgia Awareness Day! In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Search. Articles. Caregiver Support and Tips; Daily Living Tips; Guest Writers; Hobbies and Crafts BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Overwhelming fatigue.just the phrase itself sends sufferers of autoimmune disorders into a chorus of affirmative head nods. Whether the fatigue stems from Lupus, MS, Rheumatoid Arthritis, Fibromyalgia or Chronic Fatigue Syndrome itself, the debilitating feeling of completely “running out of steam” is universal. Just like every person is an individual, no case of autoimmune fatigue BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE It’s taken me a long time to get out of the automatic habit of saying, “How are you?” when I see someone. That question would be all right to ask most healthy people because the spontaneous response of “fine” would be appropriate. I have discovered that people who are ill hate that simple question. Most "SPOONIE" HOUSEHOLD CLEANING AND ORGANIZING TIPS: This very helpful general list of “life learned” tips and suggestions was written by one of our message board moderators, LindaK. (With some help and tips from other members.)This list is chock filled with helpful goodies that will save you “spoons“!.General Tips: •Do
BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE The following things are items that I or my friends have personally tried and found to be very helpful while in the hospital to make things much more bearable and enjoyable. * Pajamas or NIGHT CLOTHES for each day. You spend all day and night in your PJ’s and tend tosweat more in the
BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Yep, there are two ways of looking at it that’s for sure. I wonder are we supposed to live alone so we don’t annoy people. What is the real point of living a life either a sleep or in pain or in hospital. BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Maybe you’ve exhausted your hometown’s medical resources. Or maybe your doctors want to collaborate with a research facility regarding your condition. Or maybe you just want the expertise of the top specialists. Going to the Mayo Clinic is something many people only do once, and it really is to your benefit to be prepared. What AWARENESS RIBBON AND BRACELET COLORS AND MEANINGS I always see people wearing ribbons or bracelets to support different organizations/ disease awareness, and I wonder what color is for what? It can be confusing. Some colors and awareness ribbons have multiple meanings. We did the best we could to compile a list of colors and meanings from multiple sources and we checked with MAY 12 IS INTERNATIONAL FIBROMYALGIA AWARENESS DAY! The supplements I take that made the most immediate difference are MOA (34 Superfoods in a purer with 11 targeted to inflammation specifically), a natural energy booster called Rejuviniix, magnacald (magnesium, calcium and vitamin D with medicinal mushrooms included for anti-inflammation), bioproQ, which is CoQ10 as ubiquinol, OmegaQ which is fish oil with more bio available CoQ10, and and BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLEHOMEABOUT USGIFT SHOPADVERTISINGTHE PURPLE PARTY 2014CONTACT US If you ask my dad about Lupus he will give you a very seemingly odd answer. He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello witha string.
"SPOONIE" HOUSEHOLD CLEANING AND ORGANIZING TIPS: This very helpful general list of “life learned” tips and suggestions was written by one of our message board moderators, LindaK. (With some help and tips from other members.)This list is chock filled with helpful goodies that will save you “spoons“!.General Tips: •Do
BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Christine Miserandino is an award-winning writer, blogger, speaker and lupus patient advocate. Her writing about lupus and her “Spoon Theory” of communicating about chronic illness has been featured in numerous newspapers, magazines, medical newsletters and television media around the world, as well as on her website ButYouDontLookSick.com. Long Island Business News recognized Christine BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE haha, thanks for these, always annoys me when pain’s kept me awake so I’ve not slept for three days, not been able to shower for four and then on way to meet with HR, Occupational Health or Hospital and someone will tell me how “great” i look, or, my favourite recent occurence, going through an airport, unable to walk, security calling for a wheelchair and referring to me as a “woman BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Have you ever heard something about one of your kids that just really surprised you? We think we really know our family members, yet everyone has lots of details we don’t know! Here’s a fun little game for one of those long, boring late summer nights, when there’s nothing on TV. Or, you could just THE SPOON THEORY WRITTEN BY CHRISTINE MISERANDINO You may NOT publish or re-print this article without the written permission of Christine Miserandino and ButYouDontLookSick.com. Thank you. Now you can purchase small and large poster prints of “The Spoon Theory” from our Online Store! These posters will make a BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE The title is ominous, I know. But for so many of us that suffer from chronic illnesses, it’s an all too true reality. I must preface this by saying that not all people who suffer with a chronic illness experience this. However, the subtleties of it grow as time passes and one is confronted with the reality of it, be it large or small, at some point in their lives. BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE The following things are items that I or my friends have personally tried and found to be very helpful while in the hospital to make things much more bearable and enjoyable. * Pajamas or NIGHT CLOTHES for each day. You spend all day and night in your PJ’s and tend tosweat more in the
BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE When my husband and I decided that we needed a new mattress, a memory foam mattress was the obvious choice. Due to my Fibromyalgia, I can always feel the springs, even on a very good mattress, and although I need a soft mattress for my tender pressure points, I also need goodsupport. Hubby lies
BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE For those in NA, AA or any other 12 step program, these simple acronyms can be helpful when you need a reminder to “stay the course”. If you have any more to add, please feel free to comment on this article. AA Achieving Adulthood ACTION Any Change To Improve Our Nature BIG BOOK Believing In BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLEHOMEABOUT USGIFT SHOPADVERTISINGTHE PURPLE PARTY 2014CONTACT US If you ask my dad about Lupus he will give you a very seemingly odd answer. He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello witha string.
"SPOONIE" HOUSEHOLD CLEANING AND ORGANIZING TIPS: This very helpful general list of “life learned” tips and suggestions was written by one of our message board moderators, LindaK. (With some help and tips from other members.)This list is chock filled with helpful goodies that will save you “spoons“!.General Tips: •Do
BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Christine Miserandino is an award-winning writer, blogger, speaker and lupus patient advocate. Her writing about lupus and her “Spoon Theory” of communicating about chronic illness has been featured in numerous newspapers, magazines, medical newsletters and television media around the world, as well as on her website ButYouDontLookSick.com. Long Island Business News recognized Christine BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE haha, thanks for these, always annoys me when pain’s kept me awake so I’ve not slept for three days, not been able to shower for four and then on way to meet with HR, Occupational Health or Hospital and someone will tell me how “great” i look, or, my favourite recent occurence, going through an airport, unable to walk, security calling for a wheelchair and referring to me as a “woman BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Have you ever heard something about one of your kids that just really surprised you? We think we really know our family members, yet everyone has lots of details we don’t know! Here’s a fun little game for one of those long, boring late summer nights, when there’s nothing on TV. Or, you could just THE SPOON THEORY WRITTEN BY CHRISTINE MISERANDINO You may NOT publish or re-print this article without the written permission of Christine Miserandino and ButYouDontLookSick.com. Thank you. Now you can purchase small and large poster prints of “The Spoon Theory” from our Online Store! These posters will make a BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE The title is ominous, I know. But for so many of us that suffer from chronic illnesses, it’s an all too true reality. I must preface this by saying that not all people who suffer with a chronic illness experience this. However, the subtleties of it grow as time passes and one is confronted with the reality of it, be it large or small, at some point in their lives. BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE The following things are items that I or my friends have personally tried and found to be very helpful while in the hospital to make things much more bearable and enjoyable. * Pajamas or NIGHT CLOTHES for each day. You spend all day and night in your PJ’s and tend tosweat more in the
BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE When my husband and I decided that we needed a new mattress, a memory foam mattress was the obvious choice. Due to my Fibromyalgia, I can always feel the springs, even on a very good mattress, and although I need a soft mattress for my tender pressure points, I also need goodsupport. Hubby lies
BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE For those in NA, AA or any other 12 step program, these simple acronyms can be helpful when you need a reminder to “stay the course”. If you have any more to add, please feel free to comment on this article. AA Achieving Adulthood ACTION Any Change To Improve Our Nature BIG BOOK Believing In BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE ButYouDontLookSick.com Mission Statement The mission of ButYouDontLookSick.com is to help everyone with a chronic illness or invisible disability, in order for them to live their lives to the fullest and not feel isolated and alone. We believe that our medical circumstances have put us in a unique and understanding position, sothat we can help
BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Many Times Mental Illness Can Carry Stigma. If meeting 54-year-old Rita Dinquel in public, you likely would see her as confident, intelligent, and articulate. BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Search. Articles. Caregiver Support and Tips; Daily Living Tips; Guest Writers; Hobbies and Crafts THE SPOON THEORY ARCHIVES The Spoon Theory written by Christine Miserandino. Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness or disability. BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE I wish they sold nice posters with the spoon theory story on them, I think it would be easier to get more people to read it if we didnt gave to pester them to read it online, and I find the spoon theory story to be the best way to get across what I deal with daily to gealyhy people who dont grasp that I doing stuff isnt as simple as just toughing it out and enduring pain. BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE The following things are items that I or my friends have personally tried and found to be very helpful while in the hospital to make things much more bearable and enjoyable. * Pajamas or NIGHT CLOTHES for each day. You spend all day and night in your PJ’s and tend tosweat more in the
TIPS FOR TRAVELING WITH A CHRONIC ILLNESS! Hi all, Those were great tips. However, for those of us flying in aircraft, there are very strict rules and guidelines. Because I do 20% Lidocaine subq injections for my incessant RSD burning pain, I make sure to carry not only the prescription for my syringes, don’t need to be considered a druggie, illegal that is, along with the copy of the script for my Lidocaine, which is a liquid, as BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE It’s taken me a long time to get out of the automatic habit of saying, “How are you?” when I see someone. That question would be all right to ask most healthy people because the spontaneous response of “fine” would be appropriate. I have discovered that people who are ill hate that simple question. Most BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE If you ask my dad about Lupus he will give you a very seemingly odd answer. He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello with a string. It’s one of those tricky ones. Ya’ know the things that the “crazy old man in the movie says, that all BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Yep, there are two ways of looking at it that’s for sure. I wonder are we supposed to live alone so we don’t annoy people. What is the real point of living a life either a sleep or in pain or in hospital. BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLEHOMEABOUT USGIFT SHOPADVERTISINGTHE PURPLE PARTY 2014CONTACT US If you ask my dad about Lupus he will give you a very seemingly odd answer. He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello witha string.
BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Christine Miserandino is an award-winning writer, blogger, speaker and lupus patient advocate. Her writing about lupus and her “Spoon Theory” of communicating about chronic illness has been featured in numerous newspapers, magazines, medical newsletters and television media around the world, as well as on her website ButYouDontLookSick.com. Long Island Business News recognized Christine "SPOONIE" HOUSEHOLD CLEANING AND ORGANIZING TIPS: This very helpful general list of “life learned” tips and suggestions was written by one of our message board moderators, LindaK. (With some help and tips from other members.)This list is chock filled with helpful goodies that will save you “spoons“!.General Tips: •Do
BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE haha, thanks for these, always annoys me when pain’s kept me awake so I’ve not slept for three days, not been able to shower for four and then on way to meet with HR, Occupational Health or Hospital and someone will tell me how “great” i look, or, my favourite recent occurence, going through an airport, unable to walk, security calling for a wheelchair and referring to me as a “woman BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Have you ever heard something about one of your kids that just really surprised you? We think we really know our family members, yet everyone has lots of details we don’t know! Here’s a fun little game for one of those long, boring late summer nights, when there’s nothing on TV. Or, you could just THE SPOON THEORY WRITTEN BY CHRISTINE MISERANDINO You may NOT publish or re-print this article without the written permission of Christine Miserandino and ButYouDontLookSick.com. Thank you. Now you can purchase small and large poster prints of “The Spoon Theory” from our Online Store! These posters will make a BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE The title is ominous, I know. But for so many of us that suffer from chronic illnesses, it’s an all too true reality. I must preface this by saying that not all people who suffer with a chronic illness experience this. However, the subtleties of it grow as time passes and one is confronted with the reality of it, be it large or small, at some point in their lives. BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE The following things are items that I or my friends have personally tried and found to be very helpful while in the hospital to make things much more bearable and enjoyable. * Pajamas or NIGHT CLOTHES for each day. You spend all day and night in your PJ’s and tend tosweat more in the
BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE When my husband and I decided that we needed a new mattress, a memory foam mattress was the obvious choice. Due to my Fibromyalgia, I can always feel the springs, even on a very good mattress, and although I need a soft mattress for my tender pressure points, I also need goodsupport. Hubby lies
BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE For those in NA, AA or any other 12 step program, these simple acronyms can be helpful when you need a reminder to “stay the course”. If you have any more to add, please feel free to comment on this article. AA Achieving Adulthood ACTION Any Change To Improve Our Nature BIG BOOK Believing In BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLEHOMEABOUT USGIFT SHOPADVERTISINGTHE PURPLE PARTY 2014CONTACT US If you ask my dad about Lupus he will give you a very seemingly odd answer. He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello witha string.
BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Christine Miserandino is an award-winning writer, blogger, speaker and lupus patient advocate. Her writing about lupus and her “Spoon Theory” of communicating about chronic illness has been featured in numerous newspapers, magazines, medical newsletters and television media around the world, as well as on her website ButYouDontLookSick.com. Long Island Business News recognized Christine "SPOONIE" HOUSEHOLD CLEANING AND ORGANIZING TIPS: This very helpful general list of “life learned” tips and suggestions was written by one of our message board moderators, LindaK. (With some help and tips from other members.)This list is chock filled with helpful goodies that will save you “spoons“!.General Tips: •Do
BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE haha, thanks for these, always annoys me when pain’s kept me awake so I’ve not slept for three days, not been able to shower for four and then on way to meet with HR, Occupational Health or Hospital and someone will tell me how “great” i look, or, my favourite recent occurence, going through an airport, unable to walk, security calling for a wheelchair and referring to me as a “woman BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Have you ever heard something about one of your kids that just really surprised you? We think we really know our family members, yet everyone has lots of details we don’t know! Here’s a fun little game for one of those long, boring late summer nights, when there’s nothing on TV. Or, you could just THE SPOON THEORY WRITTEN BY CHRISTINE MISERANDINO You may NOT publish or re-print this article without the written permission of Christine Miserandino and ButYouDontLookSick.com. Thank you. Now you can purchase small and large poster prints of “The Spoon Theory” from our Online Store! These posters will make a BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE The title is ominous, I know. But for so many of us that suffer from chronic illnesses, it’s an all too true reality. I must preface this by saying that not all people who suffer with a chronic illness experience this. However, the subtleties of it grow as time passes and one is confronted with the reality of it, be it large or small, at some point in their lives. BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE The following things are items that I or my friends have personally tried and found to be very helpful while in the hospital to make things much more bearable and enjoyable. * Pajamas or NIGHT CLOTHES for each day. You spend all day and night in your PJ’s and tend tosweat more in the
BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE When my husband and I decided that we needed a new mattress, a memory foam mattress was the obvious choice. Due to my Fibromyalgia, I can always feel the springs, even on a very good mattress, and although I need a soft mattress for my tender pressure points, I also need goodsupport. Hubby lies
BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE For those in NA, AA or any other 12 step program, these simple acronyms can be helpful when you need a reminder to “stay the course”. If you have any more to add, please feel free to comment on this article. AA Achieving Adulthood ACTION Any Change To Improve Our Nature BIG BOOK Believing In BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE ButYouDontLookSick.com Mission Statement The mission of ButYouDontLookSick.com is to help everyone with a chronic illness or invisible disability, in order for them to live their lives to the fullest and not feel isolated and alone. We believe that our medical circumstances have put us in a unique and understanding position, sothat we can help
BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Many Times Mental Illness Can Carry Stigma. If meeting 54-year-old Rita Dinquel in public, you likely would see her as confident, intelligent, and articulate. BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Search. Articles. Caregiver Support and Tips; Daily Living Tips; Guest Writers; Hobbies and Crafts THE SPOON THEORY ARCHIVES The Spoon Theory written by Christine Miserandino. Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness or disability. BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE I wish they sold nice posters with the spoon theory story on them, I think it would be easier to get more people to read it if we didnt gave to pester them to read it online, and I find the spoon theory story to be the best way to get across what I deal with daily to gealyhy people who dont grasp that I doing stuff isnt as simple as just toughing it out and enduring pain. BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE The following things are items that I or my friends have personally tried and found to be very helpful while in the hospital to make things much more bearable and enjoyable. * Pajamas or NIGHT CLOTHES for each day. You spend all day and night in your PJ’s and tend tosweat more in the
TIPS FOR TRAVELING WITH A CHRONIC ILLNESS! Hi all, Those were great tips. However, for those of us flying in aircraft, there are very strict rules and guidelines. Because I do 20% Lidocaine subq injections for my incessant RSD burning pain, I make sure to carry not only the prescription for my syringes, don’t need to be considered a druggie, illegal that is, along with the copy of the script for my Lidocaine, which is a liquid, as BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE It’s taken me a long time to get out of the automatic habit of saying, “How are you?” when I see someone. That question would be all right to ask most healthy people because the spontaneous response of “fine” would be appropriate. I have discovered that people who are ill hate that simple question. Most BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE If you ask my dad about Lupus he will give you a very seemingly odd answer. He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello with a string. It’s one of those tricky ones. Ya’ know the things that the “crazy old man in the movie says, that all BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Yep, there are two ways of looking at it that’s for sure. I wonder are we supposed to live alone so we don’t annoy people. What is the real point of living a life either a sleep or in pain or in hospital. BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLEHOMEABOUT USGIFT SHOPADVERTISINGTHE PURPLE PARTY 2014CONTACT US If you ask my dad about Lupus he will give you a very seemingly odd answer. He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello witha string.
THE SPOON THEORY ARCHIVES The Spoon Theory written by Christine Miserandino. Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness or disability. BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Search. Articles. Caregiver Support and Tips; Daily Living Tips; Guest Writers; Hobbies and Crafts BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE We beleive that advertisements provide value to readers if they presented in a way that does not degrade the browsing experience. ButYouDontLookSick.com will not enter into a relationship with an advertiser that uses deceptive practices to direct a visitor to a particular product or service. The advertisements supporting ButYouDontLookSick.com include text and banner ads delivered BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Christine Miserandino is an award-winning writer, blogger, speaker and lupus patient advocate. Her writing about lupus and her “Spoon Theory” of communicating about chronic illness has been featured in numerous newspapers, magazines, medical newsletters and television media around the world, as well as on her website ButYouDontLookSick.com. Long Island Business News recognized Christine THE SPOON THEORY WRITTEN BY CHRISTINE MISERANDINO You may NOT publish or re-print this article without the written permission of Christine Miserandino and ButYouDontLookSick.com. Thank you. Now you can purchase small and large poster prints of “The Spoon Theory” from our Online Store! These posters will make a BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Have you ever heard something about one of your kids that just really surprised you? We think we really know our family members, yet everyone has lots of details we don’t know! Here’s a fun little game for one of those long, boring late summer nights, when there’s nothing on TV. Or, you could just BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE The title is ominous, I know. But for so many of us that suffer from chronic illnesses, it’s an all too true reality. I must preface this by saying that not all people who suffer with a chronic illness experience this. However, the subtleties of it grow as time passes and one is confronted with the reality of it, be it large or small, at some point in their lives. TIPS FOR TRAVELING WITH A CHRONIC ILLNESS! Hi all, Those were great tips. However, for those of us flying in aircraft, there are very strict rules and guidelines. Because I do 20% Lidocaine subq injections for my incessant RSD burning pain, I make sure to carry not only the prescription for my syringes, don’t need to be considered a druggie, illegal that is, along with the copy of the script for my Lidocaine, which is a liquid, as AWARENESS RIBBON AND BRACELET COLORS AND MEANINGS I always see people wearing ribbons or bracelets to support different organizations/ disease awareness, and I wonder what color is for what? It can be confusing. Some colors and awareness ribbons have multiple meanings. We did the best we could to compile a list of colors and meanings from multiple sources and we checked with BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLEHOMEABOUT USGIFT SHOPADVERTISINGTHE PURPLE PARTY 2014CONTACT US If you ask my dad about Lupus he will give you a very seemingly odd answer. He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello witha string.
THE SPOON THEORY ARCHIVES The Spoon Theory written by Christine Miserandino. Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness or disability. BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Search. Articles. Caregiver Support and Tips; Daily Living Tips; Guest Writers; Hobbies and Crafts BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE We beleive that advertisements provide value to readers if they presented in a way that does not degrade the browsing experience. ButYouDontLookSick.com will not enter into a relationship with an advertiser that uses deceptive practices to direct a visitor to a particular product or service. The advertisements supporting ButYouDontLookSick.com include text and banner ads delivered BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Christine Miserandino is an award-winning writer, blogger, speaker and lupus patient advocate. Her writing about lupus and her “Spoon Theory” of communicating about chronic illness has been featured in numerous newspapers, magazines, medical newsletters and television media around the world, as well as on her website ButYouDontLookSick.com. Long Island Business News recognized Christine THE SPOON THEORY WRITTEN BY CHRISTINE MISERANDINO You may NOT publish or re-print this article without the written permission of Christine Miserandino and ButYouDontLookSick.com. Thank you. Now you can purchase small and large poster prints of “The Spoon Theory” from our Online Store! These posters will make a BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Have you ever heard something about one of your kids that just really surprised you? We think we really know our family members, yet everyone has lots of details we don’t know! Here’s a fun little game for one of those long, boring late summer nights, when there’s nothing on TV. Or, you could just BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE The title is ominous, I know. But for so many of us that suffer from chronic illnesses, it’s an all too true reality. I must preface this by saying that not all people who suffer with a chronic illness experience this. However, the subtleties of it grow as time passes and one is confronted with the reality of it, be it large or small, at some point in their lives. TIPS FOR TRAVELING WITH A CHRONIC ILLNESS! Hi all, Those were great tips. However, for those of us flying in aircraft, there are very strict rules and guidelines. Because I do 20% Lidocaine subq injections for my incessant RSD burning pain, I make sure to carry not only the prescription for my syringes, don’t need to be considered a druggie, illegal that is, along with the copy of the script for my Lidocaine, which is a liquid, as AWARENESS RIBBON AND BRACELET COLORS AND MEANINGS I always see people wearing ribbons or bracelets to support different organizations/ disease awareness, and I wonder what color is for what? It can be confusing. Some colors and awareness ribbons have multiple meanings. We did the best we could to compile a list of colors and meanings from multiple sources and we checked with BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE ButYouDontLookSick.com Mission Statement The mission of ButYouDontLookSick.com is to help everyone with a chronic illness or invisible disability, in order for them to live their lives to the fullest and not feel isolated and alone. We believe that our medical circumstances have put us in a unique and understanding position, sothat we can help
BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE I wish they sold nice posters with the spoon theory story on them, I think it would be easier to get more people to read it if we didnt gave to pester them to read it online, and I find the spoon theory story to be the best way to get across what I deal with daily to gealyhy people who dont grasp that I doing stuff isnt as simple as just toughing it out and enduring pain. BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE If you ask my dad about Lupus he will give you a very seemingly odd answer. He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello witha string.
BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE It’s taken me a long time to get out of the automatic habit of saying, “How are you?” when I see someone. That question would be all right to ask most healthy people because the spontaneous response of “fine” would be appropriate. I have discovered that people who are ill hate that simple question. Most BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Overwhelming fatigue.just the phrase itself sends sufferers of autoimmune disorders into a chorus of affirmative head nods. Whether the fatigue stems from Lupus, MS, Rheumatoid Arthritis, Fibromyalgia or Chronic Fatigue Syndrome itself, the debilitating feeling of completely “running out of steam” is universal. Just like every person is an individual, no case of autoimmune fatigue BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE The following things are items that I or my friends have personally tried and found to be very helpful while in the hospital to make things much more bearable and enjoyable. * Pajamas or NIGHT CLOTHES for each day. You spend all day and night in your PJ’s and tend tosweat more in the
"SPOONIE" HOUSEHOLD CLEANING AND ORGANIZING TIPS: This very helpful general list of “life learned” tips and suggestions was written by one of our message board moderators, LindaK. (With some help and tips from other members.)This list is chock filled with helpful goodies that will save you “spoons“!.General Tips: •Do
AWARENESS RIBBON AND BRACELET COLORS AND MEANINGS I always see people wearing ribbons or bracelets to support different organizations/ disease awareness, and I wonder what color is for what? It can be confusing. Some colors and awareness ribbons have multiple meanings. We did the best we could to compile a list of colors and meanings from multiple sources and we checked with BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE You guys have been asking for this for a LONG time. This is me reading “The spoon theory” live at a Lupus Symposium. This video is from the speaking appearance at the Piedmont, NC LFA on September 11, 2010. Thank you to them for having me, and to Stealth Awareness for makingthe video. Please
MAY 12 IS INTERNATIONAL FIBROMYALGIA AWARENESS DAY! The supplements I take that made the most immediate difference are MOA (34 Superfoods in a purer with 11 targeted to inflammation specifically), a natural energy booster called Rejuviniix, magnacald (magnesium, calcium and vitamin D with medicinal mushrooms included for anti-inflammation), bioproQ, which is CoQ10 as ubiquinol, OmegaQ which is fish oil with more bio available CoQ10, and and BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLEHOMEABOUT USGIFT SHOPADVERTISINGTHE PURPLE PARTY 2014CONTACT US If you ask my dad about Lupus he will give you a very seemingly odd answer. He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello witha string.
THE SPOON THEORY ARCHIVES The Spoon Theory written by Christine Miserandino. Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness or disability. BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Search. Articles. Caregiver Support and Tips; Daily Living Tips; Guest Writers; Hobbies and Crafts BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Christine Miserandino is an award-winning writer, blogger, speaker and lupus patient advocate. Her writing about lupus and her “Spoon Theory” of communicating about chronic illness has been featured in numerous newspapers, magazines, medical newsletters and television media around the world, as well as on her website ButYouDontLookSick.com. Long Island Business News recognized Christine THE SPOON THEORY WRITTEN BY CHRISTINE MISERANDINO You may NOT publish or re-print this article without the written permission of Christine Miserandino and ButYouDontLookSick.com. Thank you. Now you can purchase small and large poster prints of “The Spoon Theory” from our Online Store! These posters will make a TIPS FOR TRAVELING WITH A CHRONIC ILLNESS! Hi all, Those were great tips. However, for those of us flying in aircraft, there are very strict rules and guidelines. Because I do 20% Lidocaine subq injections for my incessant RSD burning pain, I make sure to carry not only the prescription for my syringes, don’t need to be considered a druggie, illegal that is, along with the copy of the script for my Lidocaine, which is a liquid, as BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE The title is ominous, I know. But for so many of us that suffer from chronic illnesses, it’s an all too true reality. I must preface this by saying that not all people who suffer with a chronic illness experience this. However, the subtleties of it grow as time passes and one is confronted with the reality of it, be it large or small, at some point in their lives. BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE The following things are items that I or my friends have personally tried and found to be very helpful while in the hospital to make things much more bearable and enjoyable. * Pajamas or NIGHT CLOTHES for each day. You spend all day and night in your PJ’s and tend tosweat more in the
BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE When my husband and I decided that we needed a new mattress, a memory foam mattress was the obvious choice. Due to my Fibromyalgia, I can always feel the springs, even on a very good mattress, and although I need a soft mattress for my tender pressure points, I also need goodsupport. Hubby lies
AWARENESS RIBBON AND BRACELET COLORS AND MEANINGS I always see people wearing ribbons or bracelets to support different organizations/ disease awareness, and I wonder what color is for what? It can be confusing. Some colors and awareness ribbons have multiple meanings. We did the best we could to compile a list of colors and meanings from multiple sources and we checked with BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLEHOMEABOUT USGIFT SHOPADVERTISINGTHE PURPLE PARTY 2014CONTACT US If you ask my dad about Lupus he will give you a very seemingly odd answer. He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello witha string.
THE SPOON THEORY ARCHIVES The Spoon Theory written by Christine Miserandino. Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness or disability. BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Search. Articles. Caregiver Support and Tips; Daily Living Tips; Guest Writers; Hobbies and Crafts BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Christine Miserandino is an award-winning writer, blogger, speaker and lupus patient advocate. Her writing about lupus and her “Spoon Theory” of communicating about chronic illness has been featured in numerous newspapers, magazines, medical newsletters and television media around the world, as well as on her website ButYouDontLookSick.com. Long Island Business News recognized Christine THE SPOON THEORY WRITTEN BY CHRISTINE MISERANDINO You may NOT publish or re-print this article without the written permission of Christine Miserandino and ButYouDontLookSick.com. Thank you. Now you can purchase small and large poster prints of “The Spoon Theory” from our Online Store! These posters will make a TIPS FOR TRAVELING WITH A CHRONIC ILLNESS! Hi all, Those were great tips. However, for those of us flying in aircraft, there are very strict rules and guidelines. Because I do 20% Lidocaine subq injections for my incessant RSD burning pain, I make sure to carry not only the prescription for my syringes, don’t need to be considered a druggie, illegal that is, along with the copy of the script for my Lidocaine, which is a liquid, as BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE The title is ominous, I know. But for so many of us that suffer from chronic illnesses, it’s an all too true reality. I must preface this by saying that not all people who suffer with a chronic illness experience this. However, the subtleties of it grow as time passes and one is confronted with the reality of it, be it large or small, at some point in their lives. BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE The following things are items that I or my friends have personally tried and found to be very helpful while in the hospital to make things much more bearable and enjoyable. * Pajamas or NIGHT CLOTHES for each day. You spend all day and night in your PJ’s and tend tosweat more in the
BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE When my husband and I decided that we needed a new mattress, a memory foam mattress was the obvious choice. Due to my Fibromyalgia, I can always feel the springs, even on a very good mattress, and although I need a soft mattress for my tender pressure points, I also need goodsupport. Hubby lies
AWARENESS RIBBON AND BRACELET COLORS AND MEANINGS I always see people wearing ribbons or bracelets to support different organizations/ disease awareness, and I wonder what color is for what? It can be confusing. Some colors and awareness ribbons have multiple meanings. We did the best we could to compile a list of colors and meanings from multiple sources and we checked with BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE ButYouDontLookSick.com Mission Statement The mission of ButYouDontLookSick.com is to help everyone with a chronic illness or invisible disability, in order for them to live their lives to the fullest and not feel isolated and alone. We believe that our medical circumstances have put us in a unique and understanding position, sothat we can help
BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Spoon Lady Speaks. May 12 is International Fibromyalgia Awareness Day! In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. "SPOONIE" HOUSEHOLD CLEANING AND ORGANIZING TIPS: This very helpful general list of “life learned” tips and suggestions was written by one of our message board moderators, LindaK. (With some help and tips from other members.)This list is chock filled with helpful goodies that will save you “spoons“!.General Tips: •Do
BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE I wish they sold nice posters with the spoon theory story on them, I think it would be easier to get more people to read it if we didnt gave to pester them to read it online, and I find the spoon theory story to be the best way to get across what I deal with daily to gealyhy people who dont grasp that I doing stuff isnt as simple as just toughing it out and enduring pain. BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE A Little Reminder Maybe It Is Time To Read “The Spoon Theory” Again? If you follow me on Twitter you know that I’ve been dealing with issues at work: Lack of hours; going in to work and then being sent home before even clocking in. BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE You do not need to spend a lot of money. You can be thoughtful in so many ways. The point is to do something, and do something today. I have listed below 36 easy ideas that anyone would appreciate. Sometimes it is hard for a patient to ask for help. Just do it! Thehardest
BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE If you ask my dad about Lupus he will give you a very seemingly odd answer. He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello witha string.
BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE Have you ever heard something about one of your kids that just really surprised you? We think we really know our family members, yet everyone has lots of details we don’t know! Here’s a fun little game for one of those long, boring late summer nights, when there’s nothing on TV. Or, you could just BUT YOU DONT LOOK SICK? SUPPORT FOR THOSE WITH INVISIBLE May 10th is Lupus Awareness Day! Have you loved someone with Lupus lately? Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with AWARENESS RIBBON AND BRACELET COLORS AND MEANINGS I always see people wearing ribbons or bracelets to support different organizations/ disease awareness, and I wonder what color is for what? It can be confusing. Some colors and awareness ribbons have multiple meanings. We did the best we could to compile a list of colors and meanings from multiple sources and we checked with* Home
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* Young Adults /teens and 20 Somethings MAY 12 IS INTERNATIONAL FIBROMYALGIA AWARENESS DAY! May 11, 2016 | christine| Featured
, Spoon Lady Speaks
| 41 Comments
In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen her in pain both emotionally and physically. TAGS: awareness , fibro, fibromyalgia
, may 12
, spoonie
PLEASE DON’T ASK MY DAD ABOUT LUPUS! THE ANSWER MIGHT INVOLVE JELLO. May 10, 2016 | christine| Articles
, Featured
, Personal Essays
|
8 Comments
If you ask my dad about Lupus he will give you a very seemingly odd answer. He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello with a string. It's oneTAGS: angry , dad
, jello
, lupus
, metaphor
, miserandino
, sle
MAY 10TH IS LUPUS AWARENESS DAY! HAVE YOU LOVED SOMEONE WITH LUPUSLATELY?
May 9, 2016 | christine| Featured
, Spoon Lady Speaks
| 5 Comments
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living withTAGS: lupus , lupus
awareness , may
10 , orange
, purple
, sle
, spoonie
PLEASE DON’T ASK MY DAD ABOUT LUPUS! THE ANSWER MIGHT INVOLVE JELLO. If you ask my dad about Lupus he will give you a very seemingly odd answer. He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello with a string. It's one WIGS, HATS, AND MAKE UP… OH MY! TRYING TO LOOK BETTER, WHEN YOU FEELBAD.
We have all heard the dreaded saying "But you don't look sick?" But the last thing we want to do is walk around looking like death 24/7. It is true that when you look better you feel better, but there is a fine balance between spending tons of hours putting on full face make up, hair done, and full NIMBLE: GOOD THINGS COME IN SMALL PACKAGES, ESPECIALLY WHEN THEY HELP YOU OPEN BIG PACKAGES! The old saying goes that "good things come in small packages." But when you are like me, and are best friends with the UPS delivery man; good things can come in all size packages. As someone who is chronically ill, living with lupus, fibromyalgia and a collage of other chronic illnesses; I have lear CHRISTINE IS ON TWITTER @BYDLS AND IF YOU USE THE HASHTAG #SPOONIE YOU CAN CONNECT WITH OVER 11,200 FOLLOWERS! There is a amazing growing community of our readers who have been using twitter to connect by using the hashtag #spoonie at the end of every post. These people are all fans of butyoudontlooksick.com and are all somehow connected to "The spoon theory". I personally(Christine) use t
WE HAVE REACHED OVER 135,000 LIKES ON OUR FACEBOOK PAGE! COME JOIN OUR#SPOONIE COMMUNITY!
WHoooo HHhhoooo!!! Do a happy Dance! We have reached OVER 135,000 fans/ likes on our ButYouDontLookSick.com facebook fanpage! Thank you to all our readers, friends, and "spoonies" for making every part of our online community as supportive as it is. You guys areamazing!
LOOK OUT WORLD… I’M BACK IN THE SADDLE AGAIN! A few years ago I got thrown from my horse. OK, who am I kidding? I am a Brooklyn girl at heart, no horses for me. But literally I felt like I had, if not been thrown from my horse, I was certainly thrown off my game. Life kept throwing me obstacles and I found it harder and harderto get around the
HOW DO YOU DESCRIBE YOUR PAIN? NUMBERS ON PAIN SCALE, ADJECTIVES, SILLY WEIRD PAIN FACES. I hear it all the time from doctors and nurses: "Tell me your pain on a scale from 1 to 10". I always cringe at the thought of summarizing my pain and fatigue down to a number. I also get scared at the thought that I have never felt below a 4 or 5. How can every patient from a broken leg, to a chemo WHAT IS THE PERFECT GIFT TO GIVE, WHEN YOU WANT TO GIVE THE MOSTMEMORABLE GIFT?
My father turned 66 this summer and I decided to get him a gift that was both unique and memorable. He has a great interest in family history and saved some mementos from his mother’s estate. In an old worn out shipping box in the basement I found a small reel of old fashioned video film: the kind I AM SICK, NOT STUPID. Many years ago I heard a joke that was going around and it went like this. A guy was going home from the auto mechanic and just as he was passing a psychiatric center, a wheel fell off his car. He stopped, surveyed the situation and realized that the mechanic must have been distracted and never p PAINSOMNIA – TICK TOCK, TICK TOCK, THE CLOCK KEEPS MOVING… My mind won’t stop working. Tick, tock, tick, tock…many nights I just can’t sleep and the only companion I have is the clock and a teddy bear. Teddy doesn’t talk and I can’t get the clock to “SHUT UP”. I know, it’s just my brain trying to work things out but still I AM AWAKE. Some WELCOME TO BUTYOUDONTLOOKSICK.COM * Sign up for our FREE Newsletter* RSS feed
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MAY 12 IS INTERNATIONAL FIBROMYALGIA AWARENESS DAY! In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen ... More: May 12 is International Fibromyalgia Awareness Day! MAY 10TH IS LUPUS AWARENESS DAY! HAVE YOU LOVED SOMEONE WITH LUPUSLATELY?
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with ... More: May 10th is Lupus Awareness Day! Have you loved someone withLupus lately?
AFTER SAYING HELLO TO MY GUESTS, I SAY #HELLOKEURIG AND FEEL LIKE THEPERFECT HOST
Don’t Be Afraid of the Paper Directions! So much paper packing In the box and such a thick instruction book. All those languages, I only speak English. I have to guess you are trying to hide the best secret in the world: that the new 550 is EASY to use. I ... More: After saying hello to my guests, I say #hellokeurig and feel like the perfect host I MADE A HEALTHY LITTLE SWITCH TO MUSSELMAN'S APPLESAUCE. SMALL DIET CHANGES CAN MAKE A BIG DIFFERENCE. How lucky is this? In the mail today, I received a free sample of Musselman’s Apple Sauce, just when I made a commitment to lose weight last week. The great god of internet says I can snack on ½ cup of unsweetened apple sauce for 2 points but with a ... More: I made a healthy little switch to Musselman's Applesauce. Small diet changes can make a big difference.POPULAR POSTS
* The Spoon Theory written by Christine Miserandino Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness... * Sick Humor: The top ten worst suggestions commonly given to someone with a chronic illness Sometimes you just gotta have a sense of humor! The top ten worst suggestions commonly given to someone with a chronic... * Handicap Parking and My Invisible Illness I have an invisible illness. To look at me you would see a short, fat, middle-aged grandmother. Sometimes I walk with a... * When You're Not Sick Enough Before I even get started with this article, let me state for the record, that for those who have been approved for shor... * Pay no attention to the girl behind the smile -what I wish peopleknew about me.
Pay no attention to the girl behind the smile... It has been said by many people that I am a very good actress. "But ...FEATURED VIDEO
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