Are you over 18 and want to see adult content?
More Annotations
A complete backup of trouconulohgal.gq
Are you over 18 and want to see adult content?
A complete backup of siteworthchecker.com
Are you over 18 and want to see adult content?
A complete backup of stadt-waldkirch.de
Are you over 18 and want to see adult content?
Favourite Annotations
A complete backup of directcolors.com
Are you over 18 and want to see adult content?
A complete backup of mastercard.com.br
Are you over 18 and want to see adult content?
A complete backup of bestfreevpns.com
Are you over 18 and want to see adult content?
A complete backup of malariaconsortium.org
Are you over 18 and want to see adult content?
Text
translates
DIAGNOSIS | CREUTZFELDT-JAKOB DISEASE FOUNDATION Diagnosis. General Practitioners should be aware of Creutzfeldt-Jakob Disease, although they may never see a case. A prompt referral to a neurologist should follow observation of any suspicious pattern of symptoms. Real-Time Quaking Induced Conversion (RT-QuIC) : RT-QuIC can detect the actual prions in the spinal fluid and is 98.5% diagnosticFOR FAMILIES
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from DONATE | CREUTZFELDT-JAKOB DISEASE FOUNDATION 3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from2020 PRESENTATIONS
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from RESEARCH | CREUTZFELDT-JAKOB DISEASE FOUNDATION Since 2006, the CJD Foundation has awarded 29 research grants to scientists from around the world. In 2015-16 alone, the CJD Foundation awarded nearly a half million dollars to ten researchers. Researchers receiving one-year grants are invited to speak at the CJD Foundation’s Annual Family Conference and they provide a year-end report describing the status of their study at the end of the year. FREQUENTLY ASKED QUESTIONS 3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from GENETIC PRION DISEASES Genetic Prion Diseases. Genetic Prion Disease mutations are inherited in an autosomal dominant pattern. Therefore, if one parent carries the mutation there is a 50-50 chance for each child to inherit the gene. If a blood relative has had prion disease confirmed by autopsy, family members can be genetically tested for the prion disease mutation. PATIENT QUESTIONNAIRE Patient Questionnaire. For the past several years the CJD Foundation has asked family members to complete a questionnaire about their loved one. We are the only repository for this information. Beginning in September of 2005, family members who have completed the questionnaire will also be asked if the information from it can be shared with theBOARD OF DIRECTORS
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from ABOUT CJD AND PRION DISEASE About CJD and Prion Disease. Prion diseases are a group of rare, invariably fatal brain disorders which occur both in humans and certain animals. In humans the best known of the prion diseases is Creutzfeldt-Jakob Disease (CJD), which reportedly affects around one person per million per population per year. In the United States thistranslates
DIAGNOSIS | CREUTZFELDT-JAKOB DISEASE FOUNDATION Diagnosis. General Practitioners should be aware of Creutzfeldt-Jakob Disease, although they may never see a case. A prompt referral to a neurologist should follow observation of any suspicious pattern of symptoms. Real-Time Quaking Induced Conversion (RT-QuIC) : RT-QuIC can detect the actual prions in the spinal fluid and is 98.5% diagnosticFOR FAMILIES
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from DONATE | CREUTZFELDT-JAKOB DISEASE FOUNDATION 3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from2020 PRESENTATIONS
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from RESEARCH | CREUTZFELDT-JAKOB DISEASE FOUNDATION Since 2006, the CJD Foundation has awarded 29 research grants to scientists from around the world. In 2015-16 alone, the CJD Foundation awarded nearly a half million dollars to ten researchers. Researchers receiving one-year grants are invited to speak at the CJD Foundation’s Annual Family Conference and they provide a year-end report describing the status of their study at the end of the year. FREQUENTLY ASKED QUESTIONS 3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from GENETIC PRION DISEASES Genetic Prion Diseases. Genetic Prion Disease mutations are inherited in an autosomal dominant pattern. Therefore, if one parent carries the mutation there is a 50-50 chance for each child to inherit the gene. If a blood relative has had prion disease confirmed by autopsy, family members can be genetically tested for the prion disease mutation. PATIENT QUESTIONNAIRE Patient Questionnaire. For the past several years the CJD Foundation has asked family members to complete a questionnaire about their loved one. We are the only repository for this information. Beginning in September of 2005, family members who have completed the questionnaire will also be asked if the information from it can be shared with theBOARD OF DIRECTORS
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from DIAGNOSIS | CREUTZFELDT-JAKOB DISEASE FOUNDATION Diagnosis. General Practitioners should be aware of Creutzfeldt-Jakob Disease, although they may never see a case. A prompt referral to a neurologist should follow observation of any suspicious pattern of symptoms. Real-Time Quaking Induced Conversion (RT-QuIC) : RT-QuIC can detect the actual prions in the spinal fluid and is 98.5% diagnosticFOR FAMILIES
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from RESEARCH | CREUTZFELDT-JAKOB DISEASE FOUNDATION Since 2006, the CJD Foundation has awarded 29 research grants to scientists from around the world. In 2015-16 alone, the CJD Foundation awarded nearly a half million dollars to ten researchers. Researchers receiving one-year grants are invited to speak at the CJD Foundation’s Annual Family Conference and they provide a year-end report describing the status of their study atCAREGIVING IDEAS
Families who receive a prion disease diagnosis are often shocked, confused and overwhelmed. They must rapidly accept the news that their loved one – who probably appeared quite healthy just weeks ago – is suffering from a terminal disease that has no treatment. And they must quickly determine who will care for the patient, and where. Here are some thoughts to consider. Develop a Care Plan ACQUIRED | CREUTZFELDT-JAKOB DISEASE FOUNDATION Acquired cases represent less than 1% of cases in the U.S. Form: Iatrogenic CJD (iCJD) Cause: Contamination through brain surgery, corneal transplant, dura mater graft, or growth hormone Distinguishing Features: Age at onset depends on the age at exposure and on the incubation time. Clinical and pathological features are often indistinguishable from sCJD.UPCOMING EVENTS
TOLL-FREE HELPLINE: 1-800-659-1991. Main menu. About CJD. Types of Prion Diseases. Sporadic; Genetic; Acquired; GlossaryWAYS TO CONTRIBUTE
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant fromFAMILY STORIES
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from RESEARCH GRANT RECIPIENTS Grant Year: 2021. "Detection and characterization of rare strains of sporadic Creutzfeldt-Jakob Disease using a suite of novel biological and biochemical tools". Read more. about Stephanie Booth, PhD. Jason Thomas Duskey and Barbara Ruozi, PhD. University of Modena and Reggio Emilia, Modena, Italy.AMANDA'S STORY
Amanda's Story. Follow the journey of Amanda and her husband, Bradley, as they fight to have children free of the gene that causes Gerstmann-Straussler-Scheinker disease, a prion disease that has "stalked her family for generations." " At the age of 26, I was handeda death sentence.
ABOUT CJD AND PRION DISEASE About CJD and Prion Disease. Prion diseases are a group of rare, invariably fatal brain disorders which occur both in humans and certain animals. In humans the best known of the prion diseases is Creutzfeldt-Jakob Disease (CJD), which reportedly affects around one person per million per population per year. In the United States thistranslates
FOR FAMILIES
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from2020 PRESENTATIONS
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant fromFAMILY STORIES
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from PATIENT QUESTIONNAIRE Patient Questionnaire. For the past several years the CJD Foundation has asked family members to complete a questionnaire about their loved one. We are the only repository for this information. Beginning in September of 2005, family members who have completed the questionnaire will also be asked if the information from it can be shared with theSUPPORT GROUPS
To receive the dial-in number, call 1-800-659-1991 or email help@cjdfoundation.org. To hear recordings of past Teleconference Support Groups, click here. New York City Support Group - The CJD Foundation hosts a monthly support group on the East Side ofManhattan,
2021 CJD FOUNDATION VIRTUAL FAMILY CONFERENCE Tuesday, June 1, 2021 - 8:00am. The CJD Foundation Family Conference is typically held annually in July in Washington, DC. Due to the pandemic, this year's event will be Virtual. We are pleased to be able to bring conference sessions to you virtually this year, at no cost.BOARD OF DIRECTORS
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant fromSONIA VALLABH, PHD
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant fromDEAN BRUNNABEND
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from ABOUT CJD AND PRION DISEASE About CJD and Prion Disease. Prion diseases are a group of rare, invariably fatal brain disorders which occur both in humans and certain animals. In humans the best known of the prion diseases is Creutzfeldt-Jakob Disease (CJD), which reportedly affects around one person per million per population per year. In the United States thistranslates
FOR FAMILIES
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from2020 PRESENTATIONS
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant fromFAMILY STORIES
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from PATIENT QUESTIONNAIRE Patient Questionnaire. For the past several years the CJD Foundation has asked family members to complete a questionnaire about their loved one. We are the only repository for this information. Beginning in September of 2005, family members who have completed the questionnaire will also be asked if the information from it can be shared with theSUPPORT GROUPS
To receive the dial-in number, call 1-800-659-1991 or email help@cjdfoundation.org. To hear recordings of past Teleconference Support Groups, click here. New York City Support Group - The CJD Foundation hosts a monthly support group on the East Side ofManhattan,
2021 CJD FOUNDATION VIRTUAL FAMILY CONFERENCE Tuesday, June 1, 2021 - 8:00am. The CJD Foundation Family Conference is typically held annually in July in Washington, DC. Due to the pandemic, this year's event will be Virtual. We are pleased to be able to bring conference sessions to you virtually this year, at no cost.BOARD OF DIRECTORS
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant fromSONIA VALLABH, PHD
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant fromDEAN BRUNNABEND
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from DIAGNOSIS | CREUTZFELDT-JAKOB DISEASE FOUNDATION Diagnosis. General Practitioners should be aware of Creutzfeldt-Jakob Disease, although they may never see a case. A prompt referral to a neurologist should follow observation of any suspicious pattern of symptoms. Real-Time Quaking Induced Conversion (RT-QuIC) : RT-QuIC can detect the actual prions in the spinal fluid and is 98.5% diagnosticCAREGIVING IDEAS
Families who receive a prion disease diagnosis are often shocked, confused and overwhelmed. They must rapidly accept the news that their loved one – who probably appeared quite healthy just weeks ago – is suffering from a terminal disease that has no treatment. And they must quickly determine who will care for the patient, and where. Here are some thoughts to consider. Develop a Care Plan RESEARCH | CREUTZFELDT-JAKOB DISEASE FOUNDATION Since 2006, the CJD Foundation has awarded 29 research grants to scientists from around the world. In 2015-16 alone, the CJD Foundation awarded nearly a half million dollars to ten researchers. Researchers receiving one-year grants are invited to speak at the CJD Foundation’s Annual Family Conference and they provide a year-end report describing the status of their study at the end of the year.FAMILY STORIES
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from 2021 VIRTUAL CONFERENCE: CENTERS FOR DISEASE CONTROL AND with Ryan Maddox, PhD, Epidemiologist, Prion and Public Health Office Division of High-Consequence Pathogens and Pathology, Centers for Disease Control and Prevention (CDC)WAYS TO CONTRIBUTE
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from 2021 VIRTUAL CONFERENCE: CLINICIANS PANEL Speakers: Brian Appleby, MD, Medical Director, CJD Foundation, and Director, National Prion Disease Pathology Surveillance Center Gregory Day, M.D., Neurologist, Dementia Specialist and Clinical Researcher, Mayo Clinic Michael Geschwind, MD, PhD, Professor of Neurology, Memory and Aging Center(MAC), University of California San Francisco (UCSF) Moderator: Richard Knight, BA, BM BCh,SUPPORT GROUPS
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from FREQUENTLY ASKED QUESTIONS 3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant fromDEAN BRUNNABEND
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from ABOUT CJD AND PRION DISEASE About CJD and Prion Disease. Prion diseases are a group of rare, invariably fatal brain disorders which occur both in humans and certain animals. In humans the best known of the prion diseases is Creutzfeldt-Jakob Disease (CJD), which reportedly affects around one person per million per population per year. In the United States thistranslates
FOR FAMILIES
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from DIAGNOSIS | CREUTZFELDT-JAKOB DISEASE FOUNDATION Diagnosis. General Practitioners should be aware of Creutzfeldt-Jakob Disease, although they may never see a case. A prompt referral to a neurologist should follow observation of any suspicious pattern of symptoms. Real-Time Quaking Induced Conversion (RT-QuIC) : RT-QuIC can detect the actual prions in the spinal fluid and is 98.5% diagnostic DONATE | CREUTZFELDT-JAKOB DISEASE FOUNDATION 3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from2020 PRESENTATIONS
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from FREQUENTLY ASKED QUESTIONS 3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from TYPES OF PRION DISEASES Prion diseases are a group of rare, invariably fatal brain diseases that occur both in humans and animals. In humans, the best known prion disease is Creutzfeldt-Jakob Disease (CJD), first documented in 1920 by two German doctors, Hans Gerhard Creutzfeldt (1885-1964) and Alfons Maria Jakob (1884-1931). CJD reportedly affects approximately one person per million per population GENETIC PRION DISEASES Genetic Prion Diseases. Genetic Prion Disease mutations are inherited in an autosomal dominant pattern. Therefore, if one parent carries the mutation there is a 50-50 chance for each child to inherit the gene. If a blood relative has had prion disease confirmed by autopsy, family members can be genetically tested for the prion disease mutation. PATIENT QUESTIONNAIRE Patient Questionnaire. For the past several years the CJD Foundation has asked family members to complete a questionnaire about their loved one. We are the only repository for this information. Beginning in September of 2005, family members who have completed the questionnaire will also be asked if the information from it can be shared with the SPORADIC | CREUTZFELDT-JAKOB DISEASE FOUNDATION 3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from ABOUT CJD AND PRION DISEASE About CJD and Prion Disease. Prion diseases are a group of rare, invariably fatal brain disorders which occur both in humans and certain animals. In humans the best known of the prion diseases is Creutzfeldt-Jakob Disease (CJD), which reportedly affects around one person per million per population per year. In the United States thistranslates
FOR FAMILIES
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from DIAGNOSIS | CREUTZFELDT-JAKOB DISEASE FOUNDATION Diagnosis. General Practitioners should be aware of Creutzfeldt-Jakob Disease, although they may never see a case. A prompt referral to a neurologist should follow observation of any suspicious pattern of symptoms. Real-Time Quaking Induced Conversion (RT-QuIC) : RT-QuIC can detect the actual prions in the spinal fluid and is 98.5% diagnostic DONATE | CREUTZFELDT-JAKOB DISEASE FOUNDATION 3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from2020 PRESENTATIONS
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from FREQUENTLY ASKED QUESTIONS 3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from TYPES OF PRION DISEASES Prion diseases are a group of rare, invariably fatal brain diseases that occur both in humans and animals. In humans, the best known prion disease is Creutzfeldt-Jakob Disease (CJD), first documented in 1920 by two German doctors, Hans Gerhard Creutzfeldt (1885-1964) and Alfons Maria Jakob (1884-1931). CJD reportedly affects approximately one person per million per population GENETIC PRION DISEASES Genetic Prion Diseases. Genetic Prion Disease mutations are inherited in an autosomal dominant pattern. Therefore, if one parent carries the mutation there is a 50-50 chance for each child to inherit the gene. If a blood relative has had prion disease confirmed by autopsy, family members can be genetically tested for the prion disease mutation. PATIENT QUESTIONNAIRE Patient Questionnaire. For the past several years the CJD Foundation has asked family members to complete a questionnaire about their loved one. We are the only repository for this information. Beginning in September of 2005, family members who have completed the questionnaire will also be asked if the information from it can be shared with the SPORADIC | CREUTZFELDT-JAKOB DISEASE FOUNDATION 3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from DIAGNOSIS | CREUTZFELDT-JAKOB DISEASE FOUNDATION Diagnosis. General Practitioners should be aware of Creutzfeldt-Jakob Disease, although they may never see a case. A prompt referral to a neurologist should follow observation of any suspicious pattern of symptoms. Real-Time Quaking Induced Conversion (RT-QuIC) : RT-QuIC can detect the actual prions in the spinal fluid and is 98.5% diagnosticCAREGIVING IDEAS
Families who receive a prion disease diagnosis are often shocked, confused and overwhelmed. They must rapidly accept the news that their loved one – who probably appeared quite healthy just weeks ago – is suffering from a terminal disease that has no treatment. And they must quickly determine who will care for the patient, and where. Here are some thoughts to consider. Develop a Care Plan RESEARCH | CREUTZFELDT-JAKOB DISEASE FOUNDATION Since 2006, the CJD Foundation has awarded 29 research grants to scientists from around the world. In 2015-16 alone, the CJD Foundation awarded nearly a half million dollars to ten researchers. Researchers receiving one-year grants are invited to speak at the CJD Foundation’s Annual Family Conference and they provide a year-end report describing the status of their study at the end of the year.FAMILY STORIES
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from PATIENT QUESTIONNAIRE 3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from 2021 VIRTUAL CONFERENCE: CLINICIANS PANEL Speakers: Brian Appleby, MD, Medical Director, CJD Foundation, and Director, National Prion Disease Pathology Surveillance Center Gregory Day, M.D., Neurologist, Dementia Specialist and Clinical Researcher, Mayo Clinic Michael Geschwind, MD, PhD, Professor of Neurology, Memory and Aging Center(MAC), University of California San Francisco (UCSF) Moderator: Richard Knight, BA, BM BCh,SUPPORT GROUPS
To receive the dial-in number, call 1-800-659-1991 or email help@cjdfoundation.org. To hear recordings of past Teleconference Support Groups, click here. New York City Support Group - The CJD Foundation hosts a monthly support group on the East Side ofManhattan,
RESEARCH GRANT RECIPIENTS 3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from END OF LIFE PLANNING Unfortunately, prion diseases do not currently have any current or cure. Treatment is usually focused on managing symptoms and enhancing quality of life. Because of this, families must often consider end-of-life issues shortly after receiving a diagnosis of prion disease. The following provides information regarding several end-of-life issues that patients and families faceSONIA VALLABH, PHD
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from ABOUT CJD AND PRION DISEASE About CJD and Prion Disease. Prion diseases are a group of rare, invariably fatal brain disorders which occur both in humans and certain animals. In humans the best known of the prion diseases is Creutzfeldt-Jakob Disease (CJD), which reportedly affects around one person per million per population per year. In the United States thistranslates
FOR FAMILIES
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from2020 PRESENTATIONS
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant fromWAYS TO CONTRIBUTE
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from PATIENT QUESTIONNAIRE Patient Questionnaire. For the past several years the CJD Foundation has asked family members to complete a questionnaire about their loved one. We are the only repository for this information. Beginning in September of 2005, family members who have completed the questionnaire will also be asked if the information from it can be shared with the GENETIC PRION DISEASES Genetic Prion Diseases. Genetic Prion Disease mutations are inherited in an autosomal dominant pattern. Therefore, if one parent carries the mutation there is a 50-50 chance for each child to inherit the gene. If a blood relative has had prion disease confirmed by autopsy, family members can be genetically tested for the prion disease mutation.BOARD OF DIRECTORS
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant fromSONIA VALLABH, PHD
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant fromAMANDA'S STORY
Amanda's Story. Follow the journey of Amanda and her husband, Bradley, as they fight to have children free of the gene that causes Gerstmann-Straussler-Scheinker disease, a prion disease that has "stalked her family for generations." " At the age of 26, I was handeda death sentence.
DEAN BRUNNABEND
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from ABOUT CJD AND PRION DISEASE About CJD and Prion Disease. Prion diseases are a group of rare, invariably fatal brain disorders which occur both in humans and certain animals. In humans the best known of the prion diseases is Creutzfeldt-Jakob Disease (CJD), which reportedly affects around one person per million per population per year. In the United States thistranslates
FOR FAMILIES
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from2020 PRESENTATIONS
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant fromWAYS TO CONTRIBUTE
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from PATIENT QUESTIONNAIRE Patient Questionnaire. For the past several years the CJD Foundation has asked family members to complete a questionnaire about their loved one. We are the only repository for this information. Beginning in September of 2005, family members who have completed the questionnaire will also be asked if the information from it can be shared with the GENETIC PRION DISEASES Genetic Prion Diseases. Genetic Prion Disease mutations are inherited in an autosomal dominant pattern. Therefore, if one parent carries the mutation there is a 50-50 chance for each child to inherit the gene. If a blood relative has had prion disease confirmed by autopsy, family members can be genetically tested for the prion disease mutation.BOARD OF DIRECTORS
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant fromSONIA VALLABH, PHD
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant fromAMANDA'S STORY
Amanda's Story. Follow the journey of Amanda and her husband, Bradley, as they fight to have children free of the gene that causes Gerstmann-Straussler-Scheinker disease, a prion disease that has "stalked her family for generations." " At the age of 26, I was handeda death sentence.
DEAN BRUNNABEND
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from DONATE | CREUTZFELDT-JAKOB DISEASE FOUNDATION 3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant fromCAREGIVING IDEAS
Families who receive a prion disease diagnosis are often shocked, confused and overwhelmed. They must rapidly accept the news that their loved one – who probably appeared quite healthy just weeks ago – is suffering from a terminal disease that has no treatment. And they must quickly determine who will care for the patient, and where. Here are some thoughts to consider. Develop a Care Plan 2021 VIRTUAL CONFERENCE: CENTERS FOR DISEASE CONTROL AND with Ryan Maddox, PhD, Epidemiologist, Prion and Public Health Office Division of High-Consequence Pathogens and Pathology, Centers for Disease Control and Prevention (CDC) RESEARCH | CREUTZFELDT-JAKOB DISEASE FOUNDATION Since 2006, the CJD Foundation has awarded 29 research grants to scientists from around the world. In 2015-16 alone, the CJD Foundation awarded nearly a half million dollars to ten researchers. Researchers receiving one-year grants are invited to speak at the CJD Foundation’s Annual Family Conference and they provide a year-end report describing the status of their study at the end of the year.FAMILY STORIES
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from 2021 VIRTUAL CONFERENCE: CLINICIANS PANEL Speakers: Brian Appleby, MD, Medical Director, CJD Foundation, and Director, National Prion Disease Pathology Surveillance Center Gregory Day, M.D., Neurologist, Dementia Specialist and Clinical Researcher, Mayo Clinic Michael Geschwind, MD, PhD, Professor of Neurology, Memory and Aging Center(MAC), University of California San Francisco (UCSF) Moderator: Richard Knight, BA, BM BCh,WAYS TO CONTRIBUTE
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from FREQUENTLY ASKED QUESTIONS 3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant fromBOARD OF DIRECTORS
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant fromSONIA VALLABH, PHD
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from ABOUT CJD AND PRION DISEASE About CJD and Prion Disease. Prion diseases are a group of rare, invariably fatal brain disorders which occur both in humans and certain animals. In humans the best known of the prion diseases is Creutzfeldt-Jakob Disease (CJD), which reportedly affects around one person per million per population per year. In the United States thistranslates
FOR FAMILIES
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from DIAGNOSIS | CREUTZFELDT-JAKOB DISEASE FOUNDATIONCREUTZFELDT JAKOB DISEASE FOUNDATIONCREUTZFELDT JAKOB DISEASE HISTORY Diagnosis. General Practitioners should be aware of Creutzfeldt-Jakob Disease, although they may never see a case. A prompt referral to a neurologist should follow observation of any suspicious pattern of symptoms. Real-Time Quaking Induced Conversion (RT-QuIC) : RT-QuIC can detect the actual prions in the spinal fluid and is 98.5% diagnostic DONATE | CREUTZFELDT-JAKOB DISEASE FOUNDATIONCREUTZFELDT JAKOB DISEASE HISTORYCREUTZFELDT JAKOB DISEASE ORIGINCREUTZFELDT JAKOB DISEASE UK 3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from RESEARCH | CREUTZFELDT-JAKOB DISEASE FOUNDATIONCJD DISEASE CASESCJD DISEASE CURECJD DISEASE PRECAUTIONSFAMILIAL CJD DISEASEPRION CJD DISEASEVARIANT CJD DISEASE Since 2006, the CJD Foundation has awarded 29 research grants to scientists from around the world. In 2015-16 alone, the CJD Foundation awarded nearly a half million dollars to ten researchers. Researchers receiving one-year grants are invited to speak at the CJD Foundation’s Annual Family Conference and they provide a year-end report describing the status of their study at the end of the year.2020 PRESENTATIONS
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from PATIENT QUESTIONNAIRE Patient Questionnaire. For the past several years the CJD Foundation has asked family members to complete a questionnaire about their loved one. We are the only repository for this information. Beginning in September of 2005, family members who have completed the questionnaire will also be asked if the information from it can be shared with the FREQUENTLY ASKED QUESTIONS 3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from TYPES OF PRION DISEASES Prion diseases are a group of rare, invariably fatal brain diseases that occur both in humans and animals. In humans, the best known prion disease is Creutzfeldt-Jakob Disease (CJD), first documented in 1920 by two German doctors, Hans Gerhard Creutzfeldt (1885-1964) and Alfons Maria Jakob (1884-1931). CJD reportedly affects approximately one person per million per population GENETIC PRION DISEASES Genetic Prion Diseases. Genetic Prion Disease mutations are inherited in an autosomal dominant pattern. Therefore, if one parent carries the mutation there is a 50-50 chance for each child to inherit the gene. If a blood relative has had prion disease confirmed by autopsy, family members can be genetically tested for the prion disease mutation. ABOUT CJD AND PRION DISEASE About CJD and Prion Disease. Prion diseases are a group of rare, invariably fatal brain disorders which occur both in humans and certain animals. In humans the best known of the prion diseases is Creutzfeldt-Jakob Disease (CJD), which reportedly affects around one person per million per population per year. In the United States thistranslates
FOR FAMILIES
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from DIAGNOSIS | CREUTZFELDT-JAKOB DISEASE FOUNDATIONCREUTZFELDT JAKOB DISEASE FOUNDATIONCREUTZFELDT JAKOB DISEASE HISTORY Diagnosis. General Practitioners should be aware of Creutzfeldt-Jakob Disease, although they may never see a case. A prompt referral to a neurologist should follow observation of any suspicious pattern of symptoms. Real-Time Quaking Induced Conversion (RT-QuIC) : RT-QuIC can detect the actual prions in the spinal fluid and is 98.5% diagnostic DONATE | CREUTZFELDT-JAKOB DISEASE FOUNDATIONCREUTZFELDT JAKOB DISEASE HISTORYCREUTZFELDT JAKOB DISEASE ORIGINCREUTZFELDT JAKOB DISEASE UK 3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from RESEARCH | CREUTZFELDT-JAKOB DISEASE FOUNDATIONCJD DISEASE CASESCJD DISEASE CURECJD DISEASE PRECAUTIONSFAMILIAL CJD DISEASEPRION CJD DISEASEVARIANT CJD DISEASE Since 2006, the CJD Foundation has awarded 29 research grants to scientists from around the world. In 2015-16 alone, the CJD Foundation awarded nearly a half million dollars to ten researchers. Researchers receiving one-year grants are invited to speak at the CJD Foundation’s Annual Family Conference and they provide a year-end report describing the status of their study at the end of the year.2020 PRESENTATIONS
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from PATIENT QUESTIONNAIRE Patient Questionnaire. For the past several years the CJD Foundation has asked family members to complete a questionnaire about their loved one. We are the only repository for this information. Beginning in September of 2005, family members who have completed the questionnaire will also be asked if the information from it can be shared with the FREQUENTLY ASKED QUESTIONS 3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from TYPES OF PRION DISEASES Prion diseases are a group of rare, invariably fatal brain diseases that occur both in humans and animals. In humans, the best known prion disease is Creutzfeldt-Jakob Disease (CJD), first documented in 1920 by two German doctors, Hans Gerhard Creutzfeldt (1885-1964) and Alfons Maria Jakob (1884-1931). CJD reportedly affects approximately one person per million per population GENETIC PRION DISEASES Genetic Prion Diseases. Genetic Prion Disease mutations are inherited in an autosomal dominant pattern. Therefore, if one parent carries the mutation there is a 50-50 chance for each child to inherit the gene. If a blood relative has had prion disease confirmed by autopsy, family members can be genetically tested for the prion disease mutation. DIAGNOSIS | CREUTZFELDT-JAKOB DISEASE FOUNDATION Diagnosis. General Practitioners should be aware of Creutzfeldt-Jakob Disease, although they may never see a case. A prompt referral to a neurologist should follow observation of any suspicious pattern of symptoms. Real-Time Quaking Induced Conversion (RT-QuIC) : RT-QuIC can detect the actual prions in the spinal fluid and is 98.5% diagnostic DONATE | CREUTZFELDT-JAKOB DISEASE FOUNDATION 3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from2020 PRESENTATIONS
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant fromCAREGIVING IDEAS
Families who receive a prion disease diagnosis are often shocked, confused and overwhelmed. They must rapidly accept the news that their loved one – who probably appeared quite healthy just weeks ago – is suffering from a terminal disease that has no treatment. And they must quickly determine who will care for the patient, and where. Here are some thoughts to consider. Develop a Care PlanWAYS TO CONTRIBUTE
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant fromFAMILY STORIES
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant fromBOARD OF DIRECTORS
3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from END OF LIFE PLANNING Unfortunately, prion diseases do not currently have any current or cure. Treatment is usually focused on managing symptoms and enhancing quality of life. Because of this, families must often consider end-of-life issues shortly after receiving a diagnosis of prion disease. The following provides information regarding several end-of-life issues that patients and families face SPORADIC | CREUTZFELDT-JAKOB DISEASE FOUNDATION 3634 W. Market Street, Suite 110 Akron, OH 44333 HelpLine: 1-800-659-1991 Fax: 234-466-7077 help@cjdfoundation.org. This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from Q&A ON CHRONIC WASTING DISEASE (CWD) What is Chronic Wasting Disease (CWD)? Chronic Wasting Disease (CWD), a prion disease of elk and deer, presents a disturbing challenge in combatting prion disease. CWD is highly contagious among cervids, spreading from animal to animal through environmental contamination, including soil and plants, and has spread from 2 to 22 states since2000.
Skip to main content CREUTZFELDT-JAKOB DISEASE FOUNDATIONFundraising
Donate
Contact Us
Search this site
Select Language▼ TOLL-FREE HELPLINE: 1-800-659-1991MAIN MENU
* About CJD
* Types of Prion Diseases* Sporadic
* Genetic
* Acquired
* Glossary
* Research
* Frequently Asked Questions* For Students
* Q&A on CWD
* Resources
* CJD Foundation Literature * CJD Foundation Videos* For Families
* Get Support - Call our Helpline* Caregiving Ideas
* Diagnosis
* Family Stories
* Amanda's Story
* Brandi and Jeffrey's Story* Brian's Story
* Charlotte's Story
* Ed's Story
* Golden Family Story * Hunter Family Story* Janine's Story
* Jeanne's Story
* Kathy's Story
* Lauren's Story
* Lavonne's Story
* Rhonda's Story
* Sonia & Eric's Story* Trevor's Story
* Family Workshops
* Interviews with Experts * Family Memorial Research Grants * Research Grant Recipients* Newsletters
* CJD Foundation Family Conference * 2019 Presentations * 2018 Presentations * 2018 Presentations * 2017 Presentations * 2016 Presentations * 2015 Presentations * 2014 Presentations * 2013 Presentations * 2012 Presentations * 2011 Presentations * 2010 Presentations * 2009 Presentations * 2008 Presentations* For Professionals
* Researchers
* Funeral Professionals * Hospice Professionals* Infection Control
* Medical Education
* Take Action
* Contact the NIH
* Ways to Contribute * Establish a Family Memorial Research Grant * Corporate Matching Gifts* Program Grants
* Family Fundraisers* Store
* Memory Quilt
* Donate and Create a Memory Quilt Square* Donate
* CJD Foundation Family Conference* Advocacy
* Strides For CJD
* Support Groups
* Patient Questionnaire* Prion Registry
* International CJD Awareness Day* About Us
* Upcoming Events
* Event Calendar
* News Stories
* History
* Board of Directors* Staff
* Financial Information* Store
* CJD Foundation Awards* Contact Us
HELP LINE
Questions about CJD and other prion diseases?ONLINE STORE
Shop our store items.MEMORY QUILT
Honor the memory of someone you love.RESOURCES
Find helpful links, articles and more in our library.UPCOMING EVENTS
Telephone Support Group for Current Caregivers of a CJD/Prion DiseasePatient
Tuesday, April 21, 2020 - 7:00pm If you are CURRENTLY caring for a loved one with CJD/Prion Disease, please join us for a Caregivers’ Support Group by phone. Support Group discussion will be led by several family members who have cared for a loved one in the past. Participants have the opportunity to share their questions and concerns and gain ideas and insights from the group. Only CURRENT caregivers may register. To register, please contact our Helpline at 800-659-1991. We will share information and referrals with you, then qualify and register you for the caregivers group.GSS Support Group
Wednesday, April 29, 2020 - 8:00pm Time: 8:00 P.M. ET / 5:00 P.M. PT For families affected by Gerstmann-Sträussler-Scheinker (GSS)Disease.
New York Metro Area Support Group Monday, May 4, 2020 - 6:00pm While typically this event is an in person meeting in Manhattan, THE EVENT LOCATION IS TEMPORARILY CLOSED. This will instead be ateleconference.
Advance registration is required to receive the teleconference log in information; email Help@CJDFoundation.org.> View all events
FEATURED EVENT
2020 Family Conference Friday, July 10, 2020 - 8:00am July 10 – 12, 2020 2020 CJD Foundation Family Conference The CJD Foundation's Family Conference, held annually in Washington, D.C., brings together prion disease experts and families affected byprion disease.
>View all events
SOCIAL MEDIA
SHOW YOUR SUPPORT
Visit our store and show your support for the CJD Foundation and those affected by priondiseases.
> VISIT STORE
Text Samples
Standard paragraph text. Style with base font-family and font-size and adjust line spacing and spacing between paragraphs as needed. Lorem ipsum dolor sit amet, consectetur adipiscing elit. Phasellus at placerat elit, id pulvinar orci. Donec felis eros, volutpat sit amet pharetra euismod, dictum sit amet nibh. Ut commodo turpis vitae enim rutrum, at sagittis lorem maximus. Pellentesque vitae mi nec lectus suscipit aliquam. Etiam ornare enim a dolor tempor venenatis. Nam eu consectetur enim, vitae consequat elit. Nam vehicula elit sed arcu consectetur finibus. Paragraph 2 text. Style with base font and adjust spacing as needed Lorem ipsum dolor sit amet, consectetur adipiscing elit. Phasellus at placerat elit, id pulvinar orci. Donec felis eros, volutpat sit amet pharetra euismod, dictum sit amet nibh. Ut commodo turpis vitae enim rutrum, at sagittis lorem maximus. Pellentesque vitae mi nec lectus suscipit aliquam. Etiam ornare enim a dolor tempor venenatis. Nam eu consectetur enim, vitae consequat elit. Nam vehicula elit sed arcu consectetur finibus. ------------------------- ^^^^^ Style the Horizontal Line itself ^^^^^ -------------------------Link Text
BOLD TEXT
_Italics Text_
Underlined Text
Strike Through Text
-------------------------HEADING 1
HEADING 2
HEADING 3
HEADING 4
HEADING 5
HEADING 6
------------------------- * Unordered List Items * Unordered List Items * Unordered List Items * Unordered List Items ------------------------- * Ordered List Items * Ordered List Items * Ordered List Items * Ordered List Items ------------------------- This is a basic Table. Adjust borders and backgrounds to match the site style. But do not go overboard. Tables are heavily used in the admin interface so do not change anything that will break the admin screens. Do fix tables for mobile responsiveness though. We do not need to make the admin interface mobile friendly. ------------------------- > This is a "Blockquote" paragraph. Rarely used but it is > occassionally. Lorem ipsum dolor sit amet, consectetur adipiscing > elit. Phasellus at placerat elit, id pulvinar orci. Donec felis > eros, volutpat sit amet pharetra euismod, dictum sit amet nibh. Ut > commodo turpis vitae enim rutrum, at sagittis lorem maximus. > Pellentesque vitae mi nec lectus suscipit aliquam. Etiam ornare enim > a dolor tempor venenatis. Nam eu consectetur enim, vitae consequat > elit. Nam vehicula elit sed arcu consectetur finibus. 3634 W. Market Street, Suite 110Akron, OH 44333
HelpLine: 1-800-659-1991Fax: 234-466-7077
help@cjdfoundation.org This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from the Centers for Disease Control and Prevention. GET SUPPORT - CALL OUR HELPLINE TOLL-FREE HELPLINE: 1-800-659-1991More Info
Contact Us Donate Now Fundraise* About CJD
* For Families
* For Professionals
* Take Action
* About Us
The CJD Foundation Inc. (CJDF) is a registered 501(c)(3) non-profitorganization.
ORIGINAL TEXT
Contribute a better translation -------------------------Details
Copyright © 2024 ArchiveBay.com. All rights reserved. Terms of Use | Privacy Policy | DMCA | 2021 | Feedback | Advertising | RSS 2.0